Fibromyalgia Action UK
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Visit to Pain Clinuc

Well I went along to Pain Clinic today to see if the pain management course is for me. I must say that I am quietly optimistic that they might help me to manage my pain and fatigue. I don’t know what I expected but there was about 12 of us there and we were all suffering along similar lines. I asked one if the people who was taking the session ( a psychologist, I think ) if they would concentrate on the fatigue as well as the pain and she said definitely yes. I have my son’s wedding in July and really want to be well ( I’m not expecting to be pain free ) just able to cope with the day. She said that was a great thing to aim towards in this course. It’s 11 weeks , three hours each week. Quite a commitment but I feel motivated today. If you would like, I could tell you each week what we cover . Very briefly! I don’t start till March. Anyway, sorry got long text but I often text when I’m feeling down so just thought I’d like to post something a bit more positive. I hope everyone has had as good a day as possible . Xx

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I would like to hear about your experience I had another MRI on my upper back and neck today and if its clear then I will be put forward to pain management...so any information would be most welcome mcglada0

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Hi mcglada, Did you have to wait a long time for referral to pain clinic? I hope they can help you to find a coping strategy. Please let us know how you get on, what you cover and any tips. 🤗Xx

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Thanks . I will let you know how I get on and any useful tips. I had quite a long time to wait. Probably about 9 months. Hope you have had quite a good day. Xx

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Looks like we’re all heading in the same direction lol. I was discharged from physio today and he’s putting me on the waiting list for pain management. I’d love to hear more about what to expect Hun xx

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Yes will definitely keep you up to speed. I hope that the waiting list where you are isn’t too long. Xx

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Hi Hun, I was told that it’s approximately 6 months xx

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Hi I hope you get a lot out of the pain clinic. I hope that it builds you up for your son's wedding and helps to make it as pain free as possible

Gentle hugs Rosie xx 😊

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Thank you so much for your good wishes. I hope it helps and I hope that in turn I can pass on some helpful tips to the members of this forum. Xx

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Hi that's good it is long but if you can concentrate and implement everything could really help you I hope so .sounds like you are pleased as well that's good .there Is a high demand for them

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Lol! Yes I’ll have to really try to concentrate! They did say that they’ll be giving us lots of different strategies and some will be better for some individuals than others. I’m really hoping for advice and tips on good pacing . Xx

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The paceing IS one of lots.i still struggle with paceing but you just go back to it if you do over do it .paceing clean 1 room a day etc.irononig small bits mot chunks .washing the same .walking stop and rest wot your limits are.swimming even walk in water just.these are some you will get on paceing and lots more on paceing as well .xx

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and try do the 11 weeks .you usually get 2 or 3 drop out as it not for everyone

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Thanks for your advice re pacing. It does help to hear how others manage and I hope in turn I will be able to give some advice. At the moment I feel really geared up to completing the course. Fingers crossed 🤞. Xx

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Thats good take care and maybe you can give advice to us after course 🤞

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I hope so! X

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This sounds really interesting & positive, I am on the waiting list for the pain management course at St Thomas's so it would be good to hear about your experience.

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Will definitely let you know how it goes. Hope the waiting list is not too long for you. Xx

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Thank you so much mcglada0 for sharing this with us I am sure many members would love to hear about your experience I definitely know i would thank you so much. I am sure it will be a help to a lot of members to get an insight to what they may expect from the pain clinic sessions :)

Momo

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I went on a pain management course in 2016 which is different from a pain clinic, it helped me a lot so good luck 👍😃

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Good luck!

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Morning

Finished a pain course Oct 2017

Mine was 9am/4pm

Over 6 weeks I think your shorter hours would be achievable

A psychologist,physio,and a phyciatric nurse the class was a real mixed bag motorbike accident stroke fibromyalgia all lovely people by week 3 you feel bonded as a group

It’s nice to be around others in your situation and be part of something

Everything is covered

I’m going to see a nurologist 31st jan as my fatigue has got worst spent 4 years seeing specialists diagnosed with fibromyalgia cfs

Had a flare up after pain management but it was not the course I pushed myself at home for weeks before

Any positive ie the wedding is a lovely thing to aim for

There are no negatives coming from the teachers you do get negatives from patients my only advice is to try and not take any notice it’s them having a bad day venting

Wishing you all the best

Sam

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Thanks for your detailed reply and for selling the positives of the course that you were on. I too am struggling with the fatigue probably more than the pain as it’s so completely debilitating. I hope that the neurologist is able to help with your fatigue. We are all intelligent enough to know that when we push ourselves too hard , we suffer but it’s so hard to slow down to the pace that we seem to have to go at to have some kind of a life! I really hope that you get the help that you deserve. Xx

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I hope you go on ok. I was due to start a 6 week vourse but they hadnt got enough i the group. Be intersted to hear how you get on x

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I had me appointment yesterday with the PMC doctor she was so lovely and said I’m on all the right meds. My appt with the PMC team is also in but in the mean time she is sending me so material on their resources xxx

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I now have my appointment to see The a PMC psychiatrist which is on my birthday 18th of April. It will be almost 6 months since my doctor 1st recommended me 😩xxx

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Hi, I have been on two pain management courses. One in Liverpool, 4 full days a week for 6 weeks and one in Bath, 4 weeks, @ the Bath hospital for rheumatic diseases. They are very good, but they treat your ailments psychologically, as the ‘new’ way of thinking, is that pain is felt in the brain, so they work on your perception of pain. You will come away with new coping skills, and more optimism but in no way take your health problems away. I wish you luck, I’m sure you will gain something from it

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I’m hoping to learn some coping skills. Realise that the pain is here for keeps but maybe stressing less about it will lower the pain a notch. Fingers crossed 🤞. Xx

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It is indeed a positive post. This sounds like a great idea and I hope it is very helpful for you. Please keep us updated.

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Glad to hear your first experience was positive. Looking forward to the next report. You are certainly getting plenty of time.

Dee

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Did any of you have an accident before your FMG/CFS?

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Did any of you have an accident before FMG ?

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Not me, I’ve Got ME so my fibro is secondary but because of my other illness xxx

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