Is an MRI beneficial?

[rach3110]

Hello all, following on from my previous post I am now debating getting a second opinion, but also I have never had an MRI performed and due to having back pain, pelvic pain and leg pain would this be any use do you think? I just don't know if it would show endometriosis or anything elsewhere, I'm not convinced by the negative laparoscopy when my first two found endometriosis and my ultrasound showed two suspected endometriomas, yet when they went in they said they couldn't see anything and suggested they had ruptured and that's what had caused my pain and bleeding the week prior to the lap. I'm maybe clutching at straws here but any opinions would be much appreciated 🙏

[Tangoandmax]

Hi there, I genuinely believe a second opinion with a specialist would be a better option. The surgeon should have taken photos of findings, could it be worth requesting those and asking to speak to another gyne or referred to a specialist. It seems bizarre the first two laps were endo and the latest not.

I will say, my MRI has been reviewed by three different teams. NHS Gyne, Private BSGE Specialist (waste of money and time) and NHS BSGE Specialist (who has been great) - all three reported different findings. It’s really about finding a reputable specialist with extensive experience.

I have my first lap next week, I can’t imagine waking up to find they have not been able to find anything that explains my pain/shitty quality of life. It’s so distressing - I hope you’re mentally doing ok 🤍

Just don’t give up. You’ve really got to fight them every step of the way!

[rach3110 in reply to Tangoandmax]

Thank you so much, I will take your advice and request the report and photos and book an appointment with a specialist for a consultation and take it from there 😊

Mentally I'm a bit upset about it all but doing OK, but I have 3 dogs and a 5 year old daughter to focus on so not much time to be dwelling really anyway 🤣

I really hope your lap goes OK, I really hope you get the answers you need and sending lots of positivity your way xx

[1Poppy1234]

My MRI showed nothing yet I had hystoscopy 6cm adenomyosis endo and took a biopsy also showed on ultrasound so I'm not convinced MRI is worth it unless you have a specialist in endo which is impossible to find.

[rach3110 in reply to 1Poppy1234]

Thank you, yes I think I'll leave the MRI then. My ultrasound had shown one large suspected endometrioma and another smaller one on the other ovary and that's what's blowing my mind that when they did the laparoscopy they found barely anything 😕

[1Poppy1234 in reply to rach3110]

It all seems rubbish doesn't it. 😞

[Pugparent]

I had an MRI done on the NHS for a dermoid ovarian cyst which was about the size of a satsuma. I went private to have it removed in June this year as I first went to the GP in 2022. The MRI report said just a cyst on the left which previous ultrasounds showed.

When she did the lap, she found endometriosis over my right kidney tube and also found I only have half a uterus!! After my op, she had a gynae radiologist read my MRI and the MRI did show what she found during the lap!

It was a bit of a shock for me and my consultant tbh and a lot to get my head around!

[Sunset-lady]

I had 3 ultra sounds which only showed fibroids. I then went for a hysterectomy which was abandoned after they found stage 4 endometriosis and couldn't do it. I went private for an MRI with dye which was interpreted by an endo specialist and they picked up everything. It absolutely depends on who is reading the images. I have another MRI on Saturday so it'll be interesting to compare private vs NHS.

[rach3110 in reply to Sunset-lady]

Yeah I think I will definitely try to go private if I can afford it for one as like you say it really does depend who reads the scans and does the surgery. I'm maybe clutching at straws but I just don't really believe the laparoscopy and the surgeon was just so dismissive of me despite the ultrasound flagging up cysts and thickening. I know this isn't in my head and I just feel a bit lost, despite having a diagnosis previously. It's just knocked me a bit xx

[Sunset-lady]

Also the endometriomas do burst at times- it's excruciating. You are on the floor. Xxx

[rach3110 in reply to Sunset-lady]

Yes that's what I was like the week before my op, crying in pain, bleeding, I nearly went to A&E but when I called out of hours they weren't really interested and just told me to take my tramadol, soak in the bath and to call my GP the next day x