PIP payments with endometriosis and adenomyosis

[Derekthebunny12]

Hi,

I’ve recently been diagnosed with endometriosis and adenomyosis after 7 years of severe pelvic pain.

I’m struggling to maintain my usual working hours due to my pain being so severe. I’m missing days and when I’m in work, I’m struggling to focus. Sadly I’m having to consider reducing my hours for my own quality of life.

I’m not sure if anyone has experience claiming PIP for endo and adeno, but it’s something I’d very much appreciate some advice on. I’d need to have some extra support financially after cutting down my working hours. I’ve heard it can be very tricky to claim for these conditions. If anyone has any advice on the process, it’d be very much appreciated!

Thank you very much😊x

[MrsPaddingtonBear]

Hello

I’ve had Endo for years. Diagnosed 20 years ago. Many surgeries, many miscarriages, ectopic pregnancy, many treatments, pre cancerous cells on cervix that didn’t respond to treatment, surgery for that, then finally last October a hysterectomy after bleeding for 7 months constantly. Emergency bowel surgery during hysterectomy as bowel and womb stuck together, emergency colostomy bag operation to save my life, call to husband that it was 50/50 I’d pull through. Lumps found in womb tissue during operation required lab testing. Got cancer all clear earlier this year. Ongoing issues and awaiting more bowel surgery. I was refused pip, they said there was nothing wrong with me, I was fine, but then agreed I needed personal care with the colostomy, but still refused pip. They definitely don’t class anything female/hormone/period related as an issue. I even had latest hospital post op reports and was refused. Hope you have better luck.

[Giraffegreen]

Hello, I have endometriosis and adenomyosis, I do also have other health conditions.

My initial pip application was denied, I then did a mandatory reconsider where they awarded me the lowest rate of daily living. I then went to appeal and I was awarded the highest rate for both.

Ultimately pip is really hard to get and I would seek advice, I went to citizens advice and they helped me a lot.

Focus on how your condion effects you and your life. Try not to use emotional language, and really show the impact this is having on you.

If you can do it have a face to face appointment, I was heavily penalised over the phone for not looking in pain enough. I also put in a complaint about the assessor.

[BloomingMarvellous]

I would advise you to go to Citizens Advice and ask for help with putting together an application. The language, questions and what they are looking for is exceptionally specific and narrow. Sometimes applications get refused in part because this is not adequately understood and used to the assessors right to deny your need rather than your actual struggles.

Reapplying is often the norm post refusal so expect the application to long drawn out and likely unsuccessful rather than based on sense. Too often the assessment is carried out by people who aren’t qualified to really judge which makes it a farce. Hence it becomes more of a tickbox exercise rather than a thoughtful process. Good luck

[Sparkles2000]

Hi.. I think PIP and other related benefits are difficult to get for this condition similar to mental health because they focus to much on mobility and how you freely move around to eat .. dress and complete your daily routine. It’s important to demonstrate the pain stops you being mobile. Therefore you can’t easily do any normal activities because if it’s like the pains I have you can’t even stand up! Which leads to having to lie down until it stops meaning you can do little to help yourself. Then it’s probably the frequency which needs to be demonstrated regularly to stop your daily routine. If you can still work 2 days then what you are saying clearly is 5 days a week you require help preparing food.. with household chores.. etc. I think being genuine, honest open and showing your medication as well. Explaining is debilitating pain which leaves you unable to complete normal activities. There is a page on citizens advice on how to fill in the form- citizensadvice.org.uk/benef....

If the first application fails put another one in and keeping going don’t give up.

Best Wishes and hope you get the help you need.

[Thistlegirl49]

Hi,

Unfortunately Endometriosis is not recognised as a ‘disability’ by government, so it will probably be declined first time around! I’d recommend seeing The Citizens Advice Bureau (in person appt) so they can support you with the application and so your answers reflect the reality of your situation. It’s better to have someone who knows how they score these forms. Mine was declined completing it by myself with the no clue how the system actually works… I haven’t appealed, as yet!!

Best of luck.