Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

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All posts for February 2024

Wait for lap after pre -op?

I've been waiting for over 12 months for my lap at Birmingham women's hospital and had my pre op at the end of November. I was told I would get a phone call...

I've been waiting for over 12 months for my lap at Birmingham women's hospital a...

Mich80

•6 months ago

5 Replies

Endo while being a uni student

Hello, I was wondering if there are any fellow uni students suffering with endometriosis. I am 19 and struggling a lot with pain and fatigue and how much...

Hello, I was wondering if there are any fellow uni students suffering with endom...

Ilbc

•6 months ago

3 Replies

Did anyone not take birth control following excision surgery?

Hello, I'm due to finally have surgery to remove endometriosis in 2 weeks' time after 12 years of trying to get doctors to take my pain seriously. I've had an...

Hello, I'm due to finally have surgery to remove endometriosis in 2 weeks' time...

Jessieb92

•6 months ago

10 Replies

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help!

i have had my periods since the age of 12 i’m now 20, they’ve always been fairly heavy and painful, but abouts a year ago the pain started to get unbearable, i...

i have had my periods since the age of 12 i’m now 20, they’ve always been fairly...

waleskbj

•6 months ago

1 Reply

First period on progesterone only pill

Hey everyone💗 I was put on Desogestrel (the progesterone only pill) around 2.5 weeks ago to help 'manage' my endo while I wait for surgery and I would...

Hey everyone💗 I was put on Desogestrel (the progesterone only pill) around 2.5...

endo_the_stigma

•6 months ago

17 Replies

Advice?

Hi, I just wanted to ask, if someone had a similar story. I suffer from really painful menstruation ( lying on the floor crying, hot and cold flushes,...

Hi, I just wanted to ask, if someone had a similar story. I suffer from reall...

Marijanicka

•6 months ago

4 Replies

Quick pre-MRI constipation question!!!

OK so finally getting an MRI this week to check for adeno/endo, should get a date for my lap after 🤞, my question is about preparing for the MRI...I take...

OK so finally getting an MRI this week to check for adeno/endo, should get a da...

PAPanda

•6 months ago

11 Replies

Stomach issues

I just had to tell this story, I’m sure plenty of us have experienced being fobbed off with different diagnoses before being diagnosed with endo, however I’ve...

I just had to tell this story, I’m sure plenty of us have experienced being fobb...

Ps-endo

•6 months ago

9 Replies

Hysterectomy. Thanks and goodbye

I have been posting for about a year re my pelvic pain, as initially I was told it could be Endo and then Adenomyosis. I've had a misdiagnosis, when infact I...

I have been posting for about a year re my pelvic pain, as initially I was told ...

Mindfullness4791

•6 months ago

2 Replies

oophorectomy and tubes snd endo removed ten days ago pain still

I had ovaries and tubes and endo removed ten days ago. I thought I was doing quite well but my left side ovary pain is back so I’m worried now but the ovary is...

I had ovaries and tubes and endo removed ten days ago. I thought I was doing qui...

Zanlancaster

•6 months ago

2 Replies

Vaginal Tablets Estradiol

Hi I've been on Tibolone since having full hysterectomy 3 years ago, following severe and rapid growing endometriosis. I went through such an ordeal with...

Hi I've been on Tibolone since having full hysterectomy 3 years ago, following ...

catsrule40

•6 months ago

2 Replies

GnRH Injections & Mirena Coil

Hey all, I have spoken about this at great length with my friends & partner but obviously unless you know what it feels like, it's hard to give an opinion....

Hey all, I have spoken about this at great length with my friends & partner bu...

Chloejams

•6 months ago

6 Replies

blood sugar monitoring

I’m not diabetic, but wondering if it’s worth monitoring my blood glucose and tracking alongside endo symptoms. My own research seems to suggest it might be...

I’m not diabetic, but wondering if it’s worth monitoring my blood glucose and tr...

JEWM

•6 months ago

3 Replies

Umbilical endometriosis

Hi all. Reaching out for hopefully a little help. My belly button is so raw and on fire nothing is helping atm I'm wondering if anyone else suffers with...

Hi all. Reaching out for hopefully a little help. My belly button is so raw and...

Lornalost89

•6 months ago

3 Replies

Living hell

Anybody else on here feel like you are completely alone in this? I had the Marina Coil fitted last week, the whole process made me cry, scream in pain and...

Anybody else on here feel like you are completely alone in this? I had the Mari...

Lunaloo123

•6 months ago

11 Replies

Finally getting my Laparoscopy

Hey,First time posting, been reading many post, but just thought I would ask for any advise for my first laparoscopy ? After waiting 2 years since my pre...

Hey,First time posting, been reading many post, but just thought I would ask for...

ektmj78

•6 months ago

2 Replies

Pouch of Douglas

Has anybody had pod involvement and had success with surgery?

Hopeful112

•6 months ago

5 Replies

Prostrap

Hi there I am new year can someone help me I been having prostrap injection for the 9 pass months and last month I received my injection and now I am...

Hi there I am new year can someone help me I been having prostrap injection for...

Spicy85

•6 months ago

6 Replies

Medication

I have been prescribed codine phosphate for the pain, but it makes me drowsy is there anything else I could have that doesn't I am asthmatic, feel like not...

I have been prescribed codine phosphate for the pain, but it makes me drowsy is ...

Sallyram

•6 months ago

11 Replies

New to this

hi, can someone describe their pain with endometriosis and where it’s mostly located? I am new to this and I also have health anxiety alongside it :(

hi, can someone describe their pain with endometriosis and where it’s mostly lo...

Kimbad1990

•6 months ago

3 Replies

decapeptyl injection for endometriosis

Hi, i was told in feb after my first lap that they found nothing. However, i had a review with the top consultant on tuesday and he said they found small...

Hi, i was told in feb after my first lap that they found nothing. However, i had...

Sky342

•6 months ago

3 Replies

is everyone else not getting diagnosed or much treatment?

I’ve had severe period pain for years, when I wasn’t taking painkiller in time I would be sick and feel faint. I have tried paracetamol and ibuprofen in the...

I’ve had severe period pain for years, when I wasn’t taking painkiller in time I...

pinkie25

•6 months ago

21 Replies

Best time of menstrual cycle for an MRI to diagnose Adeno?

Hi, after years of fighting to get some sort of help and being told after numerous 2-minute ultrasound procedures that nothing is wrong, I am finally scheduled...

Hi, after years of fighting to get some sort of help and being told after numero...

smee3life

•6 months ago

5 Replies

Can someone please show me a sample of what they wrote on their PIP2 How Your Disability Affects You' form?

I am in the process of applying for PIP (my 2nd time- awarded 0 on everything last time, but I have much more backing from health professionals this time)....

I am in the process of applying for PIP (my 2nd time- awarded 0 on everything la...

Magagie10

•6 months ago

11 Replies

I’ve been brave!

I waited sooooo long for a face to face GP appt but have now had one with a really nice dr. I’m lucky to have some private medical care through work and I’m...

I waited sooooo long for a face to face GP appt but have now had one with a real...

endotheline

•6 months ago

11 Replies

Ultrasound

Can somebody help me with my ultrasound report please. Does this mean endometriosis has affected my ovaries now? 😢

Can somebody help me with my ultrasound report please. Does this mean endometrio...

Hopeful112

•6 months ago

4 Replies

Utrogestan

Does anyone take Utrogestan? I was looking into bio identical progesterone as I've never tolerated the mini pill well. Dr has suggested mirena after my lap but...

Does anyone take Utrogestan? I was looking into bio identical progesterone as I'...

DarkStar85

•6 months ago

10 Replies

Pain is back

Hi all, So I have always suffered with painful periods, lower back pain and pelvic pain. About 2 years ago doctor said it is most likely Endometriosis and to...

Hi all, So I have always suffered with painful periods, lower back pain and pe...

Kimbad1990

•6 months ago

2 Replies

does stopping depo help?

Hi ladies, I have been diagnosed with endo since september of last year. I am on the depo injection and myself and my partner think i should ask my GP if I...

Hi ladies, I have been diagnosed with endo since september of last year. I am...

MrsBee1996

•6 months ago

10 Replies

severity of endo

I had a lap investigation in october. the surgeon told me post op that she couldn’t remove any endo and she suggested GNRH injections. I had my follow up...

I had a lap investigation in october. the surgeon told me post op that she coul...

shell131

•6 months ago

21 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for February 2024

Wait for lap after pre -op?

Endo while being a uni student

Did anyone not take birth control following excision surgery?

help!

First period on progesterone only pill

Advice?

Quick pre-MRI constipation question!!!

Stomach issues

Hysterectomy. Thanks and goodbye

oophorectomy and tubes snd endo removed ten days ago pain still

Vaginal Tablets Estradiol

GnRH Injections & Mirena Coil

blood sugar monitoring

Umbilical endometriosis

Living hell

Finally getting my Laparoscopy

Pouch of Douglas

Prostrap

Medication

New to this

decapeptyl injection for endometriosis

is everyone else not getting diagnosed or much treatment?

Best time of menstrual cycle for an MRI to diagnose Adeno?

Can someone please show me a sample of what they wrote on their PIP2 How Your Disability Affects You' form?

I’ve been brave!

Ultrasound

Utrogestan

Pain is back

does stopping depo help?

severity of endo

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