Advice?

[Marijanicka]

Hi,

I just wanted to ask, if someone had a similar story.

I suffer from really painful menstruation ( lying on the floor crying, hot and cold flushes, tunnel vision, sharp pain and pain while going to the toilet) since I was 13. I am almost 24.

I was dismissed numerous times by doctors in my country, I finally went to GP in England and she did blood tests. All the blood tests were normal.

She referred me for vaginal ultrasound, I had to wait for 6 months. I finally went there and they told me I have cystic ovaries.

My GP diagnosed me with PCOS and offered to put me on birth control.

I refused and that was end of the story. I don’t have power to go there again.

Is it normal to get diagnosed with PCOS if all your blood tests are normal?

I suffer every period and the pain is unbearable, I miss work because of this and that’s affecting my work and personal life.

From what I understand you can have PCOS but also endometriosis? I don’t know, how to go further, I will try to change GP and tell them my concerns. I am pretty sure, I might have endometriosis because all the symptoms match perfectly and I know my body.

it’s so hard being dismissed all the time.

anyone had a similar experience and how did you get referred for laparoscopy?

I can’t afford private treatment

[Marijanicka]

to add my period is not missing or very irregular, just very painful for 1-2 weeks before period and the actual period.

[Sunset-lady]

I have endometriosis, fibroids and cysts but nothing ever showed up with blood tests x

[E-ZEE]

If the cyst contains blood so its endo cyst.Push your GP to refer you to the Ob gyne,and take it from there.If you have a pain in back passage during periods while going to toilet,it is the typical symptoms of bowel endo.Stay blessed xxx.

[Washington1]

I've read that PCOS can manifest due to an underlying problem, such as endometriosis. I have a friend who went on a pcos diet years ago as she couldn't conceive and she now has 3 children. I have lived with endo for a few decades and it caused bowel problems. I would see a new GP and ask to be referred to a gynae specialist to check for endometriosis. I had a laparoscopy and hysteroscopy which showed the endo. They burnt away what they could see, but now I know more I think I probably have deep infiltrating endo as the pain over the years has been awful. I would ask for an mri and be open to a laparoscopy. Are you on any painkillers? I found out after many years that it is important to take painkillers at the first twinge of pain so they can work on the brain's pain signals. I used to wait too long before taking them and therefore didn't get the benefit. It might be worth you looking into gluten sensitivity. A number of women find that symptoms ease after going gluten free. It can take up to 12 months to reap the benefits though, so it's not a quick fix. And I highly recommend getting a tens machine. I've used an Ova tens machine for years. It works similarly to pain meds in that you need to put it on at the first twinge of pain, but can reduce the time of agony.

I hope you get some help soon. There are medics out there who are compassionate and want to try to help. Hope you have a pain free day x