Stomach issues

[Ps-endo]

I just had to tell this story, I’m sure plenty of us have experienced being fobbed off with different diagnoses before being diagnosed with endo, however I’ve just experienced the opposite way around.

I was diagnosed with endo and adenomyosis in November of last year, this weekend I fell really ill and saw my gp who listened and suspected appendicitis, I was sent to the hospital and oh my god for 2 days all I heard was “it’s probably your endo flaring up” I was so shocked as before diagnosis it was never that and I knew that this was different! Turns out it was appendicitis and I had emergency surgery last night, however I thought I would just share that now I’m sure every stomach problem I have will be blamed on the endo and how ironic it is considering it took 12 years for me to be diagnosed in the first place 😂

[Jess96]

Omg that's just typical! 🙄 Don't you just want to rub it in their face and say how far they were from the truth lol

[1Poppy1234]

Not as bad as yours or anything but I worry now with all the pain etc I wouldn't know if I had a water infection or anything else?? When my symptoms go worse then GP was treating me for about 6 months with antibiotics for recurrent water infections. It's like no one has any sympathy for the condition at all isn't it.

[Sunset-lady]

You must have been in so much pain. All my issues were fobbed off as gastro. So glad you got the help in the end.

[Purplerain23]

wow! Thank you for sharing this. Can I ask what new symptoms you had which concerned you? Ie what was different from the usually created symptoms from endo and aden? Also what test discovered you had appendicitis? The reason I ask, I had a horrible post period flare up last week and for the first time was so bloated my bowel stopped working and the pain was more central in my tummy area. The pain was the worst I’ve ever experienced since being diagnosed with endo last summer. I haven’t fully recovered from last weeks episode as still feel bloated slightly when eating so trying to monitor to ensure there isn’t another issue here. Thank you so much in advance for your insight x

[Escapologygirl in reply to Purplerain23]

Omg that's exactly what I experienced last month with period and I'm still not really fully back to myself so I'm glad I'm not the only one and it's really awful and sending you lots of love

[Purplerain23 in reply to Escapologygirl]

Yes I feel every time I eat I’ve got indigestion, so these are definitely carry over symptoms from my flare up a week ago Tues. Thinking of you and sending my best wishes as know how difficult it is. I’m just starting to feel anxious more than I used to as wondering what’s going on in my body and think I owe myself another GP visit. x

[Escapologygirl in reply to Purplerain23]

Gp visit couldn't hurt and sadly anxiety is not a friend of endometriosis

[Ps-endo in reply to Purplerain23]

hey so originally I thought it was the flu, I didn’t have a cold as such but I had a fever, headaches, vomiting and nausea and then stomach pains started but it was a constant pain in one area that gradually got worse, so I called 111 who sent me to an OOH Gp and he suspected appendicitis and sent me to the hospital for tests etc where I had ultrasounds and blood tests to look for inflammation etc. If I didn’t have the fever and flu like symptoms etc I probably would have assumed the pain was endo too. It may be worth getting checked out by the gp anyway for peace of mind! Hope you feel better soon x

[Purplerain23 in reply to Ps-endo]

You have certainly been through it. I’m trusting the op was successful, and hope you recover well and have people supporting you. Yes I am considering a trip to the GP, trying to monitor changes in my symptoms, and from reading on line, it could be adenomyosis. Thank you again for sharing you experience xx