Living hell

[Lunaloo123]

Anybody else on here feel like you are completely alone in this?

I had the Marina Coil fitted last week, the whole process made me cry, scream in pain and I’ve been the same for over a week now. Agony, upset and unable to do any of my normal tasks.

I am so fed up of feeling like this. It might be the change in hormones as well as everything else but the pain is just as awful as before trying this out.

I haven’t had my hospital appointment through yet (I know there is a waiting list) for the laparoscopy and although an operation is the last thing I want, I am begging for anything that will try and take this misery away.

I don’t know what to do, I know people who have had their prayers answered with the laparoscopy and I know others who have had a hysterectomy because nothing else worked (this has crossed my mind)

All I know is that I cannot cope with this. It’s causing issues with work, my (now non-existent) social life and just making me an unbearable pessimist which usually, I am not!

Any advice for this miserable cow to figure out what the next move is, would be really appreciated.

TIA x

[JEWM]

Hey luna,

Thanks for posting this, I’m in a v similar position and whilst I’m sorry you’re going thru this, reading your post makes me feel less alone and I’m guessing others also. I Got the merina at the start of Jan, my 1st period (last week) was horrific. Still waiting on the lap for suspected adhesions and sciatic nerve impact.

I feel like I’ve become useless at work and my usually optimistic outlook in tackling problems has turned very pessimistic. I worry for the impact on my family, future finances, the plans we’ve made for holidays, new house etc etc..

I don’t think this time of year helps much, but I think we need to make small and easily achievable changes towards a healthier approach. Tweaking diets, routines, expectations, goals, whatever helps to make you feel more comfortable and in control. It’s all trial and error so anything that doesn’t work is as much a win in the lesson learned as the instant wins.

Plan in self care and treats - hot baths, massages, evenings in with friends, whatever makes you feel good.

Speak about what you’re going through with those you trust in an informative way so they know how best they can support you.

This forum is great for feeling less alone…. Keep reaching out when you’re overwhelmed.

Hope you have an easier Feb. X

[Lunaloo123 in reply to JEWM]

Thank you so much, you have literally described everything going on in my life right now. Holiday planning has become more emotional this end too!

You’re right, I’ll try and look for some other ways to “take control” just got to get motivated again 🤦🏼‍♀️

I hope everything goes right for you xx

[1Poppy1234]

Try to stay positive, I know it's so hard. I have the mirena for over ten years now not sure it's helped a lot and it's very painful takes a couple of weeks to get over. Hot baths help I think with it. Try to keep fighting for help. Xx

[Lunaloo123 in reply to 1Poppy1234]

Thank you so much for replying. It means a lot to have others who know what it’s like xx

[kitten4687]

you are definitely not alone, i had lap back in 2016 , had marina insert at the same time, had it removed in 2021 oh my goodness the pain , since then i have been on the mini pill now the combination.

But after my lap it was confirmed i had endo, bowl endo along with uterus and overy , bit i now feel whenever i go doctors they tell me to go a&e as my symptoms are serious, go a&e. 6 hours later told you have endo what do you expect. so yes great to know what is wrong, but no aftercare no care cure. feeling fed up.

advice for you if the marina doesn’t settle ask them to remove it whilst under for lap, worst mistake i did waiting 5 years hoping it would get better.

[Lunaloo123 in reply to kitten4687]

Thanks for your reply.

The GP said it was the best way to help with pain and I’d been dubious for years about getting it but the pill wasn’t cutting it after 10 years so I thought “why not”. The pain of it going in makes me not want to have it out 🤢 so yeah, will need to get it done during op I think… if I can find out when that is.

Thank you for sharing xx

[Smiley2022]

Hi Tia, sorry your feeling so bad , the mirena sucks for me so far ( feel like I’m in permanent pmt)

Had so much time off work that I’m surprised I still have a job 😡

I did have a laparoscopy in 2018 , for me it was great , I felt 100% better for a year , unfortunately some of the symptoms starting SLOWLY coming back over the next few years but very gradually

Now 2024 my symptoms are worse than ever 😢

I definitely recommend having a laparoscopy

Infact as im saying this to you, im thinking I should ask for another one myself

I can honestly say out of everything I’ve tried the lap was the best for me

Big hugs Tina x 🤗

[Lunaloo123 in reply to Smiley2022]

Thank you so much for your message! It’s horrible what we have to go through but it is so nice that we have this platform so we can talk to each other!

I’m sorry you’re in so much pain. And thank you for the advice about the laparoscopy. I have been given a rough indication of August/September so hopefully this time will go quickly. X

[Smiley2022 in reply to Lunaloo123]

Hi Tia yeah it’s horrible that us women have to go through this ,

It’s bad enough with the physical pain and then it goes and screws up our mental health too😡😡

I’m so glad I’ve this forum 👍👍

How long have you been ok the waiting list for the laparoscopy ?

Just wondering how long I would have to wait if I have one

Tina x

[Lunaloo123 in reply to Smiley2022]

I’ve been waiting since October. I’m getting a bit desperate now but at least I have an indication of when it’ll be!

Keep strong, it’s really easy to let everything get you down but it’ll be okay. X

[Smiley2022 in reply to Lunaloo123]

Omg you’ve been waiting along time !!!!!!

I don’t know if I can wait that long 😞

I’m literally having a few days off work every month cus I feel so Ill with it

I’m glad that u don’t have too much longer to wait 🙌🙌

Fingers crossed for us both 🤞🤞🤞🤞

Tina x