Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,181 members • 52,781 posts

All posts for June 2014

Deeply Infiltrating Endometriosis - Anyone had resection resulting in a temporary stoma?

I have just had a check up only to come out with surgery booked and a new diagnosis of DI Endo, several follow up appointments with a stoma nurse and...

I have just had a check up only to come out with surgery booked and a new diagno...

Elwood

•10 years ago

2 Replies

Bladder endometriosis

So I've just had bad news that my endometriosis has returned, judging by the pain on the bladder again and possibly elsewhere in the abdomen. I had a urethral...

So I've just had bad news that my endometriosis has returned, judging by the pai...

nomibear

•10 years ago

3 Replies

Hi. I am new to this site. Does anyone know whether it is necessary to continue to have CA125 tests to monitor endometriosis?

I just wondered whether you should keep an eye on the levels of this protein in the blood to make sure that the pain is still endometriosis, whether it is...

I just wondered whether you should keep an eye on the levels of this protein in ...

phoenix3

•10 years ago

1 Reply

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Day after lap op!

So this is day one of recovery after the op -laparoscopy, drainage of ovarian cysts and diathermy to endo, feeling very fragile but okay. However yesterday the...

So this is day one of recovery after the op -laparoscopy, drainage of ovarian cy...

tammy280990

•10 years ago

5 Replies

Abnormal vaginal bleeding for 5 days

I have been on the contraceptive pill for 2 years now which had made my periods much regular/lighter/shorter. I am 15 days into my pill and am bleeding which...

I have been on the contraceptive pill for 2 years now which had made my periods ...

Milliec

•10 years ago

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Can I have kids with a scared ovary and only one??

I had my left ovary and felopian tube taken out and ive only got my right one its a bit scared but they say I will b able to have kids keep trying but nothing...

I had my left ovary and felopian tube taken out and ive only got my right one it...

maz29

•10 years ago

2 Replies

my periods are irregular having PCOS, after having intercourse found a little spotting 4 r 5 days in a month from last month is that periods

gowri

•10 years ago

1 Reply

hi i have the mirana coil in at the moment for nearly three months now and need help

ive had the coil for nealry three months now but im constantly having cramps and pains in my stomach and vagina, i stopped bleeding but have recently started...

ive had the coil for nealry three months now but im constantly having cramps and...

pricey94

•10 years ago

2 Replies

Anyone recommend an endochrinologist? Anyone think an endochrinologist could help relieve symptoms of fatigue/poor concentration from endo?

Please any tips welcome for finding an endochrinologist in London. Do you think it might help as an alternative to hormones (as I want to get pregnant soon I...

Please any tips welcome for finding an endochrinologist in London. Do you think ...

Tiger_1

•10 years ago

4 Replies

Has anyone been diagnosed with ME/CFS?

I had hyst 16 years ago and ovaries out 8 years ago. I was diagnosed with ME/CFS nearly 2 years ago. I am also waiting to see a gynaecologist because I think...

I had hyst 16 years ago and ovaries out 8 years ago. I was diagnosed with ME/CFS...

Jiver

•10 years ago

3 Replies

Due to have TPPE but my endo too small? Chronic lethargy/lack of mental focus is my only symptom right now. Shld I have radical surgery?

I was due to have total pelvic peritoneum excision for endo Last Friday. When the doc looked inside he found such as small amount of endo he wasn’t sure...

I was due to have total pelvic peritoneum excision for endo Last Friday. When t...

Tiger_1

•10 years ago

22 Replies

Really wondering what is next?

Hi everyone. Been diagnosed with stage 4 endo, also on the bowel and the uterus wall. Been put on Zoladex injections and HRT until October as consultant didn't...

Hi everyone. Been diagnosed with stage 4 endo, also on the bowel and the uterus ...

LittleJo30

•10 years ago

3 Replies

Fed up and wanting answers

So I went to gyni today for my first appointment and was really nervous. Met the consultant and had the general questions asked, told her where my pain was how...

So I went to gyni today for my first appointment and was really nervous. Met the...

cabbage12

•10 years ago

9 Replies

Laparoscopy.. And worried..

Hey ladies I have a diagnostic laparoscopy on Friday and my pre op was useless.. Does anyone know how long I cannot eat or drink for before my operation as I...

Hey ladies I have a diagnostic laparoscopy on Friday and my pre op was useless.....

Natashaoscar1

•10 years ago

1 Reply

Endo diet advice - Fruit/sugar?

Hi, I've started looking into the advice given for endo diets, and was wondering if the exclusion of sugars includes avoiding the natural sugars found in fruit...

Hi, I've started looking into the advice given for endo diets, and was wondering...

merlin19

•10 years ago

2 Replies

Sciatic Pain and Endometriosis

New here and hoping to share my experience and know if it is common. I had a laparoscopy in Feb 2011 as I was having pain in my left side. Diagnosis of...

New here and hoping to share my experience and know if it is common. I had a lap...

jennies

•10 years ago

2 Replies

Any1 take gabapentin

Iv just been prescribed gabapentin an oramorph any1 had them before does jt work

leannelouise

•10 years ago

7 Replies

Any advice for pain? Desperate!

Hi All, Not havin a good couple of weeks at all :( Since havin my lap in April and finding out I have severe adhesions it's like things have gone from bad to...

Hi All, Not havin a good couple of weeks at all :( Since havin my lap in April ...

xKatie86x

•10 years ago

3 Replies

Umbilical endometriosis surgery scheduled for August 7th

I saw my surgeon on friday and I am excited to have finally scheduled my surgery for my umbilical endometriosis! This pain is horrendous and im at my wits end...

I saw my surgeon on friday and I am excited to have finally scheduled my surgery...

janaenaebonita

•10 years ago

2 Replies

Are there stronger NSAIDs than Diclofenac? Does anyone give me good pain relief advice, please?

Hi I am getting pain which can't get rid of Diclofenac. I have been taking Naproxen regularly and still getting pain so I level up to Diclofenac but still...

Hi I am getting pain which can't get rid of Diclofenac. I have been taking Napr...

shukudai

•10 years ago

22 Replies

Gynecology tomorrow

I have my first gynecology appointment tomorrow afternoon and the nerves are starting to come on.Plus I am having to go alone. Ekk Just hope that I get some...

I have my first gynecology appointment tomorrow afternoon and the nerves are sta...

cabbage12

•10 years ago

4 Replies

Nocturia...Waking up more than once at night to urinate

I can hardly sleep at a stretch...i have to wake up more than once ...sum tyms three-four times to urinate....I have endometriosis found on lap ...on zoladex...

I can hardly sleep at a stretch...i have to wake up more than once ...sum tyms t...

rokks

•10 years ago

5 Replies

Hi ladies, I will keep it short. My lower back is absolutely hurting me. I feel paralysed from the pain.

My consultant has put me on microgynon for 3 months nonstop. Can anyone help me ease this horrible lower back pain. I have work tomorrow and I feel like crying...

My consultant has put me on microgynon for 3 months nonstop. Can anyone help me ...

trip21

•10 years ago

7 Replies

Burning pain

Help..... Ladies I was admitted into hospital in February with severe burning pain over my right ovary. The hospital thought a chocolate cyst was leaking....

Help..... Ladies I was admitted into hospital in February with severe burning pa...

Hidden

•10 years ago

3 Replies

My daughter of 14 had her lap 4 weeks ago and removed a small piece of endometrosis and scar tissue but still has the pain she has had for 2

Years she is so upset as thought the pain would of gone and she could get back to normal. Is anyone else still have the pain .

Years she is so upset as thought the pain would of gone and she could get back t...

kelseygrindley

•10 years ago

6 Replies

Trouble weeing after Lap

Hi all. Has anyone else had problems weeing after having a Lap? I had mine Thursday morning and since then I can't do a full wee; it starts then stops for...

Hi all. Has anyone else had problems weeing after having a Lap? I had mine Thurs...

MrsRothers

•10 years ago

7 Replies

Think my endo is spreading please help :(

Having a really rubbish day today :( I am 19 & have severe endometriosis on my uterus, bowels & general abdominal area (stage 4)- had a laparoscopy on the 18th...

Having a really rubbish day today :( I am 19 & have severe endometriosis on my u...

dollypop1994

•10 years ago

2 Replies

Newly diagnosed with Endometriosis and Adenomyosis.....so worried what lies ahead :(

After years of pain, prodding and poking by doctors I have eventually got a diagnosis and proves that I'm NOT losing my mind and the pain isn't all in my head....

After years of pain, prodding and poking by doctors I have eventually got a diag...

gr8kids

•10 years ago

10 Replies

Peritoneal excision and lap?? Advice please

Hi I have had endo some years my last laparoscopy was sept 13 last few weeks I have been really struggling with different pain on right side gp did bloods ca...

Hi I have had endo some years my last laparoscopy was sept 13 last few weeks I h...

emma422

•10 years ago

1 Reply

GnRH analogues - please help, I'm only 24!

The combined pill and progesterone only pill haven't seemed to work and the consultant has recommended GnRH analogue injections - basically a 3 month...

The combined pill and progesterone only pill haven't seemed to work and the cons...

jdys

•10 years ago

9 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for June 2014

Deeply Infiltrating Endometriosis - Anyone had resection resulting in a temporary stoma?

Bladder endometriosis

Hi. I am new to this site. Does anyone know whether it is necessary to continue to have CA125 tests to monitor endometriosis?

Day after lap op!

Abnormal vaginal bleeding for 5 days

Can I have kids with a scared ovary and only one??

my periods are irregular having PCOS, after having intercourse found a little spotting 4 r 5 days in a month from last month is that periods

hi i have the mirana coil in at the moment for nearly three months now and need help

Anyone recommend an endochrinologist? Anyone think an endochrinologist could help relieve symptoms of fatigue/poor concentration from endo?

Has anyone been diagnosed with ME/CFS?

Due to have TPPE but my endo too small? Chronic lethargy/lack of mental focus is my only symptom right now. Shld I have radical surgery?

Really wondering what is next?

Fed up and wanting answers

Laparoscopy.. And worried..

Endo diet advice - Fruit/sugar?

Sciatic Pain and Endometriosis

Any1 take gabapentin

Any advice for pain? Desperate!

Umbilical endometriosis surgery scheduled for August 7th

Are there stronger NSAIDs than Diclofenac? Does anyone give me good pain relief advice, please?

Gynecology tomorrow

Nocturia...Waking up more than once at night to urinate

Hi ladies, I will keep it short. My lower back is absolutely hurting me. I feel paralysed from the pain.

Burning pain

My daughter of 14 had her lap 4 weeks ago and removed a small piece of endometrosis and scar tissue but still has the pain she has had for 2

Trouble weeing after Lap

Think my endo is spreading please help :(

Newly diagnosed with Endometriosis and Adenomyosis.....so worried what lies ahead :(

Peritoneal excision and lap?? Advice please

GnRH analogues - please help, I'm only 24!

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