Has anyone been diagnosed with ME/CFS? - Endometriosis UK

Endometriosis UK

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Has anyone been diagnosed with ME/CFS?

Jiver profile image
3 Replies

I had hyst 16 years ago and ovaries out 8 years ago. I was diagnosed with ME/CFS nearly 2 years ago. I am also waiting to see a gynaecologist because I think my endo has returned.

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Jiver profile image
Jiver
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3 Replies
Tinkerjack1912 profile image
Tinkerjack1912

Hi I have endo and a

Have been diagnosed with fibromyalgia which in short terms is the opposite to cfs. With Fibro we suffer with chronic pain and fatigue. The pain being the more prominent. Reading about it there is a link between all these conditions. It was reading up about them that helped me get a diagnosis after 12 years of suffering. X

Jiver profile image
Jiver

Hi,

Thanks for your reply.

I have also read that there is a link between all these conditions. I feel really fed up with the thought of now having to cope with endo as well as the ME/CFS. I am still waiting for an appointment to see the gynae.

Hi, I did have stage 4 endo and adenomyosis, but had total hysterectomy in January 2014 so not sure if any of it is left as of yet. Was also diagnosed with CFS/ME in 2012, still awaiting treatment for this though!!!

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