Hrt and heart rate

[Chartolfrey]

Ive been on the combi patch 3 weeks and in the last 5 days my heart feels faster and i can feel it beating just sat around.I cut the patch in half as a couple of months ago i was on a full patch and i had migraines or headaches everyday amd atring cramping.

Ive taken myself of the patch 24 hours ago and my heart rate doesnt feel as fast and at times i can feel it beating.

I have tried tiberlone hrt but it plays my gastritis up so im under gastro team to check the stomach issues

Does anyone else get this on hrt??

How long till hrt is out my system??

[Elaine91]

When I was on Prostap I found that without tibolone I had mild meno symptoms (including bad headaches) but with it all my endo symptoms returned.

Re HRT. Pre hysterectomy/BSO the surgeon casually told me that after the op, any menopause symptoms could be sorted with 'a bit of HRT'. However I haven't found any HRT that works well for me - various reasons - and it all aggravates the remaining endo. And when told him about this in the post op clinic, he didn't want to know and aftercare was basically non-existent. (Just sharing because if the HRT doesn't suit you now, it's unlikely to after your surgery either.)

re HRT getting our of the system - estradiol is gone within about 24 hours, norethisterone takes a little longer. But that's not to say the effects of having had HRT and then withdrawing from it will go quickly, as your body will need to adjust, but as you've only been on it 3 weeks, it shouldn't take too long.

Hope you feel better soon

[Hannah818]

Hi , I didn't feel right on tibolone, flared endo and pelvic pain, came of it and started the hrt gel , felt more 'natural' way to administer and also have started progestrone pill to counter the oestro gel. I think the oestro gel flares my endo so use it once very two days , not every day, and take the progesterone almost everyday. If the patch doesn't suit you maybe try a different way to see if this also affects your heart rate? I think my friend had similar symptoms on the patch and she switched to different hrt.

[Sunset-lady]

It sounds like you are sensitive to progestin. I'd come off synthetic progestin which many women cannot tolerate and try natural progesterone Utrogestan with estrogen gel. You'll probably be so much better on this. I took it alongside zoladex and it still shrunk everything xx hope that helps. If you want more info google the difference between progestin and progesterone xx

[Chartolfrey in reply to Sunset-lady]

Thankyou. I have asked my endo nurse so waiting till she replies. I have come of it but can take upto couple weeks to leave the system.Just waiting on surgery date now its bern a year

[Sunset-lady in reply to Chartolfrey]

That sounds great. Lots of women with endo cannot take progestin - it made me very ill. I'm great on natural HRT x What surgery are you waiting for?

[Chartolfrey in reply to Sunset-lady]

Full hysterectomy, last jan i had lap surgery and couldnt do anything as it was so bad after mri i have severe endo, adeo, 2 endemetriomas and a fibroid. Been on zoledex for 14 injections now.Just had a new mri and all good fir surgery, the zoledex has kept it stable, got rid of the fibroid, 1 endemetrioma shrunk from 5cm to 2.5cm and 1 endemetrioma grew 1cm

[Sunset-lady in reply to Chartolfrey]

Haha that's almost exactly the same as me except I had 5 fibroids - one of which was in the vaginal cavity by the time they operated. It'll be a BSGE centre then - where are you having it done? I'm 3 weeks post op and feel a lot better.

[Chartolfrey in reply to Sunset-lady]

Qah hospital portsmouth.I cant wait for a date.

Nervous but want some life back, these last 15 months bedn so hard mentaly and physicly.

How ling did you wait for op.

Glad your feeling better, how is recovery going xx

[Sunset-lady]

Well they tried to do a hysterectomy in 2023 but found stage 4 endo and abandoned it (I'd waited a year for that op) then my GP put me on synthetic progestin Provera and I was very ill. Then I saw a specialist privately who took me off Provera and said that for many women with stage 4 endo synthetic progestin is like pouring petrol on a fire. Then I was put on zoladex which ran out every 60 days and I ended up in A&E hemorrhaging. This has been the problem - unstoppable hemorrhaging rather than pain. I'd already had a 10 cm fibroid removed at the start of 2023 but by May I had 5 more. After 14 months on zoladex they did an MRI and found everything had shrunk so I was offered a hysterectomy at the BSGE centre I was under. The waiting list was around a year so I went private and had it in 6 weeks. It was robotic surgery and the team were incredible. The recovery has been good but I'm very worried about endo returning so I'm doing all I can to prevent that x

[Chartolfrey in reply to Sunset-lady]

Zoledex has been brilliant for me. The 1st 3 months was bleeding and so painful but aftwr jab 3 pain was mild cramps and ive not had a period yet. I get alot of lower back pain as so many adhesions stuck to my back walls and i get some menopause symptoms but ive tried tiberlone and after 9 months got gastritis so ive been trying the combi patches so think need something else now.We been told on nhs its 12-15 months and my endo nurse who does my monthly zoledex has been pushing and now its anytime i will get a date so fingers crossed.

Hows the pain since surgery

[Sunset-lady in reply to Chartolfrey]

I didn't really have any. I took painkillers round the clock week 1 then on a night week 2 for 3 days then nothing. Robotic surgery is non invasive compared to open surgery. Everything was glued together like you. I had years of pelvic pain in my early 40s. My ovaries were destroyed and she took ages excising all the endometriosis. My biggest issue post surgery was my bowel. They had to move my organs to find my ovaries and my bowels were awful the first week. A good laxative is a must and start taking it straight away so you can go easily. That first bowel movement was awful. I'm just resting and walking now. Scars are completely healed but I have 300 stitches inside which need to heal. Not bleeding is fabulous x

[Chartolfrey in reply to Sunset-lady]

Ive been told take laxative straight after as with my lap surgery i never had a bowel movement for 5 days. Ended up in a&e in pain to be told constipated. 2 days later went and was relief.The bowels is what im worried about as ive gotta have a bowel shave coz my ovaries are stuck to them but ive been told keyhole surgery and open surgery last resort.

Just the waiting game now. Im getting prepared like hospital bag, sorting stuff at home so i can just rest.

How long did you stay in after surgery

[Sunset-lady in reply to Chartolfrey]

I was in for one night. I was desperate to leave as I knew I wouldn't be getting well there. I paid private but it was an NHS hospital so I was on a ward with 6 others and it was noisy. I was back home for 12 the next day. I don't eat the food they give you in hospital and I wanted to be off morphine as soon as I could x

[Sunset-lady]

I was back on HRT four days after my op.

[Earthmother1]

Hi! HRT is a nightmare for ladies with endo and the medical support for us ladies is non existent! I was with the menopause clinic and the male consultant was useless and unable to help me as he didn't understand endometriosis. I'm now on a waiting list for a specialist endo centre. I'm finding that I'm having to experiment myself with HRT to see what works for me. So.... I'm on decapeptyl to put me into chemical menopause, hopefully this has stopped my estrogen from going crazy as it does during perimenopause. So now my estrogen is being removed from my ovaries I need to add a small amount back to stop bone thinning but not too much that it causes my endo to flare! I was on evorel 25 and I too was suffering palpitations and headaches, so a quick Google has led me to believe that this could be low estrogen, so I upped my evorel 25 by adding an extra half a patch. Now the utrogestan, I suffered what looked like a gallbladder flare and gastritis flare, so looked into other ways to take utrogestan and I came across the newson clinic you tube video on utrogestan, and they say it's completely safe to take utrogestan vaginally and for those sensitive to it, every other day. So I take utrogestan vaginally every other day. My stomach issues seem to have calmed down by doing this. I've been doing this for the past 2 weeks and my heart palpitations are significantly lessened/ less noticeable, my mood seems to be more balanced as I was suffering rage. And my mental health seems to be improving. I still have low motivation, and fatigue, but hopefully this will resolve. I don't advocate for others to follow what I'm doing, but sadly for me, I've had to explore and experiment with HRT as there's no help out there and I feel that looking at what others are doing and their stories as well as looking at the newson clinic for guidance is the best I can do for myself. I wish you well and hope you find something that works for you xxx

[Sunset-lady in reply to Earthmother1]

Testosterone might help motivation and fatigue xxx

[Earthmother1 in reply to Sunset-lady]

If only I could get it, NHS won't prescribe it. I asked my dr and she said that it's not licensed in UK. Yet if I went private I could get it. It would probably increase my libido too! Xxx

[Sunset-lady]

You can get male testosterone quite easily on NHS. female is not licensed yet but you can get it private.

[Sunset-lady]

You only need a tiny amount