Hi all. I had a cystoscopy due to some bad infections that wouldn't clear up. There was a large bulge in my bladder which he stated was my womb pushing into my bladder making my bladder smaller and causing the issue.
He said he can't help and this will need to be resolved with my gynecologist.
Has anyone had anything like this?
Sorry, just to add I have DIE of the rectosigmoid but never had anything mentioned about the bladder. I've been using zoladex for almost a year now (which 100% works for me) but is this should endo/leisions are still growing and affecting my organs. My consultant does want to do a hysterectomy rather than keeping me on zoladex but my concern is everything seems to be completely stuck together atm ( previously had my fallopian tubs out which where burried into my abdomen wall
After an 8hr Bowel/Stage 5 Endo with a twisted Ovary, multiple adhesions, my stomach attached to my bowel, rectum stuck to something else and a massive left side adnexal massive, growing from remaining fallopian tube tissue - shouldn't have been there as had hysterectomy 12 years ago, only had one Ovary left duets an Ectopic, kept it due to only being 37 and not wanting early menopause . Now my bladder is distended and I can't pee & when I do I can't empty properly, I've had Klebsiella pneumonia Infection since Sep last year, it will not go away and Diveculitis of the bowel too. Get your GP to refer you to a local Bowel & Bladder Clinic, they'll Triage you and then refer you to a urogynacologist. If you don't have local B&B Clinic, just get GP to refer you to one. Your Urologist should mention it on the discharge report he will send to your GP & that will be your proof for the GP. You may have to wait until that report comes in to the GP, but if you have a nice GP, he should trust you and do it before, he can always double check by picking up the phone to th Urologist anyway.
Hi. It's the urology team who have said there's nothing they can do - this was at my local hospital, they said it needs passed to my gyne team (which is a specialist hospital 100 miles away from me)
My guess is to discuss with my consultant and have a specialist brought in from the same hospital? I have an appointment in June and will discuss it there.
I know my consultant was keep to do a hysterectomy anyways but I've been happy on zoladex. Maybe now time to weigh up the damage that's inside but no ones had a look (lap wise) for 10yrs probably look like a bombs gone off 😬
Hi Lorna, I always had bladder problems from the start at 14. When they found Endo on my bladder, the assumed the Endo was In my bladder for years, no ref to Urology and I kept saying that the Endo was better on 60mg of progesterone but my bladder symptoms wasn't (Pain,spasms, incontinence and some passing of clots/bleeding) I just lived with it until I went onto GT Hormone injections, and changed Gp's to a woman. Only then she referred me to Urology and a Urologist and he arranged my 1st cystoscopy. Now they found the bladder was small and had adhesions and bleeding points, so it was enlarged (no difference as it went smaller again) cleared of adhesions and bleeding points diathermy. Biopsy was inconclusive. It wasn't till my 3rd cystoscopy that the Biopsies showed it was IC, and the only treatment was Botox injections to the bladder 26 of them (they mark the points with a blue die, which stays forever so I can say I have a Dotty bladder!!) And the suprapubic catheter. So my 4th cystoscopy was the turning point, no pain, spasms, incontinence or bleeding, for 9 months and the botox wears off and you go in and have it done again. I was in my 40's when that happened. Now my Gynecologists/specialists kept saying, no point in taking everything out, it's seeded everywhere, but I saw no logic in that. I always had middle pain, ovulation but not since 24 (I did when on the progesterone collapse at work, became a patient and taken to Ultrasound at 2am, found to have a functional cyst that had ruptured with bleeding (small amount-ish) and I was in my 30's then and afterwards it didn't happen again) it sounds like you Uterus tilts forward, mine tilts back again the intestines, which by op9 had Endo on areas, adhesions to the Peritoneum and to each other (small intestines) Don't get pressured into anything until you have found out (Google can be good, books in my day then dial up!! But talk to your Gp, try to get a Specialist Nurse at your surgery to talk to, or on the phone to Endo UK...arm yourself with knowledge and I know having a specialist Endo Gynecologist lots of miles away, they were like gold dust in my time, but I know it's worse now...but knowledge is power!!) If you are happy with Zolodex, stick with it!! I don't know how old you are but if you are in your 30's or 40's you have to weigh up the pros and cons of having everything gone early, I knew I couldn't have children and I wanted it all gone, they stopped the progesterone for 4 or 5 months before surgery, because they wanted everything "blooming" and I usually replied I haven't got daffodils in their, can't you say cysts and patches of Endo?!! But life was hell without progesterone, I would be off work for 9 or 10 days each month, sometimes twice a month (I could start having another 10 days after the end of the Previous, wonderful 2 days of pain, 5 to 6 days of bleeding, with flooding, pain and 2 days of pain after. Including the bladder, bowel and vomiting. I am a bit sarcastic!) I saw no point still having everything, but early menopause has its own problems, and Endo is one of the factors in post menopause Ovarian cancer (and having a maternal side relative die from this, I lucked out) Also you have better drug therapies than I had! But No Gynecologist should bully you into something, without you knowing All about what it could mean. Yes we do get sick and tired of it all, after a number of years, Surgery's and treatments, Endo wears you down, mentally and physically. But keep fighting, have the knowledge of what's Right for You, and not the One size fits all approach from Gynecologists, Urologists etc!! Good luck Lorna, And May the Knowledge Be With You!!
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