Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,019 members • 20,711 posts

All posts for August 2023

How do you get around?

I use a variety of canes, a cart, the dog, my husband's hand and a wheelchair for long excursions or nothing if I'm feeling lucky.😜

I use a variety of canes, a cart, the dog, my husband's hand and a wheelchair...

•9 months ago

Can the 3tesla mr device cause a permanent feeling of warmth in my body?

I had 3tesla mr in a private hospital in turkey (penile mr), they said the process would take 20-25 minutes, but I stayed inside for almost 40 minutes. I was...

I had 3tesla mr in a private hospital in turkey (penile mr), they said the proce...

•9 months ago

Helpful advice:

Do not wear ratty old slippers in a ratty old house with crooked floors and rough doorways. Do not wear ratty old slippers with crooked floors and a pee pad...

Do not wear ratty old slippers in a ratty old house with crooked floors and roug...

•9 months ago

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19 Aug 2023 Good Morning

G'day Relapsing-remitting ms (RRms) family. I hope YOU are having a good day, learning to cope with your newfound illness, especially if YOU are a newbie...

G'day Relapsing-remitting ms (RRms) family. I hope YOU are having a good day, ...

•9 months ago

Good Saturday Morning ☀️

Well we had some thunderstorms ⛈️ and cooled down to 95 yesterday 🤪 Supposed to get some rain starting tomorrow and be in the 80’s , will see. Hope everyone...

Well we had some thunderstorms ⛈️ and cooled down to 95 yesterday 🤪 Supposed to...

•9 months ago

Any tips for dealing with Covid?

Any tips for dealing with Covid. Supplements? Or OTC? I am day 6 and miserable. My PCP didn't want to prescribe Pax.

Any tips for dealing with Covid. Supplements? Or OTC? I am day 6 and miserable. ...

•9 months ago

Back pain, sciatica, knee pain, hip bone pain

Hi all.. I m 46 years old male, suffering from severe back pain and knee..Sorry for this long story.. These all started on June 2022 and got severe on...

Hi all.. I m 46 years old male, suffering from severe back pain and knee..Sorry ...

Ramesh-Krishnan

•9 months ago

My Rescue Cat

Hi All, The picture is of my rescue cat, Alice, or Ali Cat. She is my very first cat. I rescued her as a kitten in July 2022, at only three months old....

Hi All, The picture is of my rescue cat, Alice, or Ali Cat. She is my very fi...

•9 months ago

Claiming victory!

Just sharing some good news. For the past several years, I've had leg/hip pain which forced me to slow down on many activities - hiking, biking, horseback...

Just sharing some good news. For the past several years, I've had leg/hip pain w...

•9 months ago

Yeah! It's finished!

I got in early through cancelations. Then it took the nurses over an hour to find a vein that they could use for the IV. 5 sticks later and 2 blown out veins...

I got in early through cancelations. Then it took the nurses over an hour to fin...

CommunityAmbassador•9 months ago

Autoject for Copaxone discontinued—ARGH!!

I'm now 67 and have been on Copaxone for nearly 21 years. Initially, I chose it because it was the only non-interferon medication available, which I thought...

I'm now 67 and have been on Copaxone for nearly 21 years. Initially, I chose it ...

•9 months ago

How did you arrive at your screen name?

Just wondering how everyone arrived at the screen name you chose. It says not to use your real name when you create an account. Bet there are some good tales!...

Just wondering how everyone arrived at the screen name you chose. It says not to...

•9 months ago

Sleep Apnea and MS

Morning Fam, Just curious, anyone out there been diagnosed with sleep apnea due to their MS? I have an appointment with a pulminologist/sleep doc today to...

Morning Fam, Just curious, anyone out there been diagnosed with sleep apnea d...

•9 months ago

Good Morning ☀️

Prayers are with those in Hawaii who are dealing with the fires 🔥 aftermath 🙏 I seen 106 deaths and over a thousand people still missing 😢. Looks like years...

Prayers are with those in Hawaii who are dealing with the fires 🔥 aftermath 🙏 ...

•9 months ago

Dreading tonight.....

Anyone who has ever had this dreaded test understands exactly what i'm saying. Tomorrow I have my third colonoscopy! Yuck. I'm in the middle of drinking that...

Anyone who has ever had this dreaded test understands exactly what i'm saying. T...

CommunityAmbassador•9 months ago

Calling All Vets

Are you an honorably discharged Veteran w/ Multiple Sclerosis? Are you a member of the Paralyzed Veterans of America (PVA)? You should be! The PVA was founded...

Are you an honorably discharged Veteran w/ Multiple Sclerosis? Are you a member ...

PVA_MS_Committee

•9 months ago

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15 Aug 2023 Doctors are only human

Dear ms friends and Family, YOU and I have an INCURABLE progressive disease. We can slow it by taking our Disease-Modifying Therapy (DMT) as prescribed and...

Dear ms friends and Family, YOU and I have an INCURABLE progressive disease. W...

•9 months ago

Why? Just why?

Dont Drs just believe me when l say, lm a freak of nature? 😞 And that they seem to always know more about me than l do... Talking to the neuro pallitive...

Dont Drs just believe me when l say, lm a freak of nature? 😞 And that they se...

CommunityAmbassador•9 months ago

Brain Health Webinar

Please join MSAA for our latest webinar: “Let’s Talk about MS and Brain Health” on Tuesday, August 22, at 8:00 PM Eastern. Dr. Diana Andino will discuss the...

Please join MSAA for our latest webinar: “Let’s Talk about MS and Brain Health” ...

Partner•9 months ago

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Limitations, but not enough limitations to be disabled.

Does anyone know how to convince your state government you truly are struggling to work? I am not faking illness. I'm faking being well! Guess I am faking it...

Does anyone know how to convince your state government you truly are struggling ...

•9 months ago

Minocycline

Friends, Does anyone take Mincocycline to help MS? If yes, does it help? Leslie \\

Friends, Does anyone take Mincocycline to help MS? If yes, does it help? Lesl...

•9 months ago

The thing about MS is.....

Ya never know!?! You wake up in the morning and your stilll tired... Is it MS? Or are you just tired? Eh who cares go back to sleep. Wake up later, still...

Ya never know!?! You wake up in the morning and your stilll tired... Is it MS? ...

CommunityAmbassador•9 months ago

Shin Splints

Hi. I've been having pain in my shins for a year or so, when I wake up, if I try getting out of bed by leaning on my feet, they hurt. Walking hurts. Standing,...

Hi. I've been having pain in my shins for a year or so, when I wake up, if I try...

•9 months ago

Medicare Advantage

I never have understood insurances and always just went with whatever my employer provided. That said, I've been on Medicare for a couple years now and just...

I never have understood insurances and always just went with whatever my employe...

•9 months ago

Beautiful Sunday Morning ☀️

Not a cloud in the sky but it’s going to be in the 90’s 🥵 Hope everyone has a wonderful day, enjoy 😉 👍🏼 🙏

Not a cloud in the sky but it’s going to be in the 90’s 🥵 Hope everyone has a w...

•9 months ago

Shingles Vaccine, MS & DMT's

Hi All, How many of you have had the Shingles Vaccine? My PCP encouraged me to get it (the newer, double dose vaccine) because he told me that I was at...

Hi All, How many of you have had the Shingles Vaccine? My PCP encouraged me to...

•9 months ago

12 Aug 2023 For information De Aaron Boster MD on Youtube

G'day Relapsing-Remitting friends and family. A great day so far for everybody I hope. A good restful rejuvenating sleep last night. My road is batting...

G'day Relapsing-Remitting friends and family. A great day so far for everybody...

•9 months ago

OAB Fluid intake important

Hi. Thanks for sharing your story. I’d like to add or expand here about fluid intake. I’ve just stopped the solifenacin after only a few weeks as I’ve...

Hi. Thanks for sharing your story. I’d like to add or expand here about fluid ...

•9 months ago

Hip hip hooray! Our chat room is celebrating its seventh anniversary!

7 years ago, this was simply an idea that was started on HealthUnlocked by some "Geniuses" that saw the need for a chat room about MS. As the early members of...

7 years ago, this was simply an idea that was started on HealthUnlocked by some ...

CommunityAmbassador•9 months ago

Gluten: Links Between Celiac Disease and Multiple Sclerosis

Interesting read. It's harder and harder to ignore diet as part of the MS path. But there are still so many unanswered questions. The bottom line, eat healthy,...

Interesting read. It's harder and harder to ignore diet as part of the MS path. ...

•9 months ago

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