The thing about MS is.....: Ya never know... - My MSAA Community

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The thing about MS is.....

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
β€’16 Replies

Ya never know!?!

You wake up in the morning and your stilll tired... Is it MS? Or are you just tired? Eh who cares go back to sleep.

Wake up later, still tired.. Take wake up meds... Not working. Just tired... MS? Or cold? Flu? Bug? Infection?

Hear meowing... hallucinating? MS (plz) nope Jasper demanding food! Ugh

What about stress? That makes me tired too! An Lord knows I have alot!

I am not having a relaspe πŸ™‚ but...

You see there alot of things that could mimic a relaspe. So Stop, Think and take an inventory of whats going on with you. And ALWAYS Follow Your Drs Advice!!!

Learn more about relapes here... mymsaa.org/ms-information/t...

JπŸ€—πŸ’•πŸŒ 

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Jesmcd2 profile image
Jesmcd2
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16 Replies
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EmilyG_MSAA profile image
EmilyG_MSAAPartner

Yes, the fatigue is an awful component of MS and sometimes you just never know. Thanks for the post! Sending positive energy your way! :)

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to EmilyG_MSAA

Positive energy always welcomed EmilyG_MSAA TY πŸ€—πŸ’•πŸŒ 

Morllyn profile image
Morllyn

So true!

lbenmaor profile image
lbenmaor

I agree!

Leslie

EzriDax profile image
EzriDax

I find I question everything that makes me feel off. I don't want to chalk it up to MS when it may be something very treatable. I experienced many frustrating years of my doctors questioning my diagnosis and minimizing my concerns. I stopped going to them. I still wonder if I could feel better with some treatment for non-MS issues.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to EzriDax

Hi EzriDax nice to meet you! πŸ™‚ You do see an MS dr. now tho right? πŸ€” It is so very important! Dxing MS can be very frustrating for alot of ppl... it can mimic so many things. If you have other things going on, then talk to your PCP or do what l do and talk to your Neuro, until someone hears you! Sometimes you have to be forceful and persistent with themπŸ™‚πŸ€—πŸ’•πŸŒ 

Tazmanian profile image
Tazmanian

Thank you

Hest19 profile image
Hest19

Boy that sure rings true for me. Especially the tired part! I have a deal of stress in my life too and try to only give MS the attention it deserves, or NEEDS to be more accurate. I never know for sure what is MS related and/or what is simply life as it is for a woman 64, (dealing with a few other things as well). I just go back to being grateful for all I have, and carry on as best I can to be productive and helpful to those I love. Life itself can be challenging! And unpredictable… Thanks for the post. ❀️

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Hest19

True that! πŸ€—πŸ’•πŸŒ 

Sagesewer profile image
Sagesewer

Depression plays a huge part in MS. The pandemic plays a big part (blame) in a lot of what is felt.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Sagesewer

Oh the dreaded pandemic😭 How it has changed so manyπŸ™ Depression is horrible isnt it? I hate it to... xtra πŸ€—πŸ€—πŸ’•πŸŒ 

Sagesewer profile image
Sagesewer in reply to Jesmcd2

πŸ€—πŸ€—πŸ¦‹πŸ’œ

Greentime profile image
Greentime

When I was younger, the MS fatigue was easier to spot. I didn't think I could make it up the stairs to my bed, for example. This is when it was frustrating to tell someone about it and them telling you they were exhausted too. πŸ™„Now at 68 when I am really tired I am not sure, but I am fortunate that I can take the time to rest, which may or may not include watching "The Great British Baking Show". 🀣 It usually helps and other symptoms quiet down.

Squirrel1270 profile image
Squirrel1270

Most times I don't know what to think. I spent my career in the military where when you had an issue, back in the day, you just suck it up and keep moving. So that's been my philosophy. I find it hard to go to the Dr.'s whenever I have a problem, which I seem to be having more issues by the week. The old "here's some Motrin, drink plenty of water" isn't cutting it anymore. I am getting better with seeing my doc more often but I don't put much stock in our medical system though. I still get up everyday, make my breakfast, take my magic green pill (Tecfidera) and go to work.

hairbrain4 profile image
hairbrain4

Everyday is a new adventure!πŸ˜΅β€πŸ’«πŸ₯³

kdali profile image
kdali

If I had a sleep switch, and prior notification of how much I needed each night (this varies wildly), then I could fare better. The switch would also have to provide restful sleep, which is something many of us do not experience from occasionally to frequently.

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