Why? Just why?

[Jesmcd2]

Dont Drs just believe me when l say, lm a freak of nature? 😞 And that they seem to always know more about me than l do...

Talking to the neuro pallitive dude... about the agony l go thru after O. He asks what it feels like.,, HE** no hesitation pain scale? 100 like l cant friggen move without wanting to scream pain! Like someone kicked the cra* outta me from the inside out!

He goes we can try Lyrca or Gabapenten😐😢 l burst into 😭😭 and proceeded to go off on him😐 that is candy to me!

I want an answer to WHY this happening, covering up the pain isnt the solution, its a patch for it to get worse...

We are supposed to talk again ina month🤣😂🤣

🤗💕🌠

[kdali]

🤣 how about some Tylenol and a heating pad? Gee, thanks!

No, it's not funny at all, it's infuriating 😓

[Jesmcd2 CommunityAmbassador in reply to kdali]

Talk about false hope 😞 then starts blowing smoke up my a** sry😂 but he was using the Ekman Atlas of Emotions on me... and he wasnt very good at it🙁 🤔 oh an meditate😢🤗💕🌠

[twooldcrows]

yes instead of finding the reason for the pain ,just take a pill ...yes have heard it ....sorry don't have a solution ...how about a different doctor that does just pain...go girl till you get some answers ...love and some much needed pain relief ...happiness...

[Jesmcd2 CommunityAmbassador in reply to twooldcrows]

I wont go to a pain clinic, l refuse. They lie. This is why neuro said neuro pallitive to see if they can help l guess. And if not, then to help with adjusting when l progress. 🤗💕🌠

[bxrmom]

So very sorry that your Neuro doesn't want to work with you to find the source of your pain. Are you able to look for a new Neuro who will take you seriously? I am so sory you are going through this Jesmcd2 . Virtual hugs to you.

[Jesmcd2 CommunityAmbassador in reply to bxrmom]

Its the ocruvus and l do want to know why? My neuro wants me to stay on it, l just cant do it anymore, he** l want to stay on it! 😭🤗💕🌠

[bxrmom in reply to Jesmcd2]

Is he an MS specialist? Maybe the place you get the infusion would know why? Just throwing out ideas. Maybe they have had other patients that have felt the same way?

[lbenmaor]

I am so sorry you are going through this. You can try Ibuprofen and hemp creme.

Leslie

[Jesmcd2 CommunityAmbassador in reply to lbenmaor]

I wish that would work🙂🤗💕🌠

[lbenmaor in reply to Jesmcd2]

I see a Chiropractor. Maybe that would help you.

Leslie

[RoyceNewton]

You have not remember they are human as well and are only doing their best to help. sad we have to suffer it but that is our lot in life. To grin and bear it a such up the pain. Hope you get some sort of relief.

[Jesmcd2 CommunityAmbassador in reply to RoyceNewton]

Oh l know they are human, and dont understand the agony of a month getting almost back to were l was. An have no fear, been told to suck it up my whole life... Dont plan on stopping! But lm tired🤗💕🌠

[Fancy59 CommunityAmbassador]

I think many of us go through similiar stuff on different levels! YUCK! As I've saìd many a time no matter how many years you spend in school, no one truly comprehends MS until you live with MS. 😮‍💨😤☹️ Fancy59.

[Jesmcd2 CommunityAmbassador in reply to Fancy59]

Right? 🤗💕🌠

[Morllyn]

I took pain meds for many, many years, which never really worked but sometimes made me not care. Then some years ago my doctor said that our state made new laws which said that he had to do a urine test on me every 6 months (which I was expected to pay for) and every year I had to sign a paper that said I wasn’t doctor shopping (getting pain meds from multiple doctors). I could refuse to do these things but then he wouldn’t be able to be my doctor any more.

I said, “ I have no problem taking a urine test nor signing the paper saying I wasn’t getting pain meds from other doctors, but I have never abused my pain medication, so why should I have to pay for the test? My insurance wasn’t going to pay for it.

The first time I paid for the test, the second time said that I would take it but refused to pay for it. My doctor said that his nurse had a patition that I could sign that said that it wasn’t fair to have to pay for the test when we had done nothing wrong. I never got a bill for the second test.

After that I told my doctor that I was no longer going to take the pain meds, they never did much anyway. Don’t get me wrong, I still hurts like heck (like the last few days) but I just didn’t want to go through that anymore.

I feel for you  jimeka !

[Jesmcd2 CommunityAmbassador in reply to Morllyn]

I take tramadol, but lm allergic to so many things its unreal! My dr had me sign one of those papers also. But l went to my neuro before my last O infuse for the pain. I figure he caused it, he needs to stop it🙂 He gave me daluded, it didnt touch it😭🤗💕🌠

[Morllyn in reply to Jesmcd2]

Sorry, I know chronic pain can be difficult.

Take care.❤️

[AquaZumbaFan]

Maybe you could speak to a gyno-urologist.. I have heard tell that they can compound some vaginal Valium..this can relax things and be able to enjoy " pain free"

[Jesmcd2 CommunityAmbassador in reply to AquaZumbaFan]

Im gonna have to look into it thanks! 🤗💕🌠

[Goldilockssearching]

i’m so sorry. I have experienced this as well. Luckily, my PCP is 100% in my corner right now and if I have any trouble she will intervene.

[hairbrain4]

I hear your pain. I had pain problems from O too si quit taking it. I think there was something in it I was allergic to that caused the pain. I was ok for the first month, my symptoms disappeared & I felt great. The next couple of infusions were a different story. Then a few days after the infusion the pain set in. So I quit taking it. I'm now on Vumarity & love it, My MS has gone into remission (or disappeared all together - I wish) Absolutely no symptoms, even the heat hasn't bothered me for the first time in 20 years. But I suggest you get off Ocrevus & on something else. It wasn't worth feeling that bad for me. Prayers you can find a solution🙏♥️