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All posts for September 2019

Facial pain & numbness

I woke up a week ago with numbness in my face from cheekbones down to my chin, I started on Duloxetine two days later - recommend by neuro. The numbness then...

I woke up a week ago with numbness in my face from cheekbones down to my chin, I...

Foxy07

•5 years ago

6 Replies

Thought if the day.

I need this today 👍🙏😉 Ken 🐾🐾

Kenu

•5 years ago

7 Replies

Post 511 The one (1) rule in ms

"YOU" like me have a chronic, incurable progressive(it gets worse) medical condition. The rule is that at no point in this disease are "YOU" to inflict...

"YOU" like me have a chronic, incurable progressive(it gets worse) medical condi...

RoyceNewton

•5 years ago

5 Replies

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Post 510 Sex and sexuality 14 Sep 2019 2

I do not recall when somebody spoke on this subject so of course, I am going to. Get your minds out of the gutter this is not me bragging or anything...

I do not recall when somebody spoke on this subject so of course, I am going to....

RoyceNewton

•5 years ago

12 Replies

post 509 ms symptoms 14 Sep 2019

I know that everybody raced off to Amazon and bought a laminated copy of your Central Nervous System (CNS) chart. "YOU" are appropriately confused and amazed...

I know that everybody raced off to Amazon and bought a laminated copy of your Ce...

RoyceNewton

•5 years ago

11 Replies

Insomnia

I had my second 1/2 of ocrevus earlier this week. I was wondering from anyone who has done ocrevus if they had any side effects from the steroids they give...

I had my second 1/2 of ocrevus earlier this week. I was wondering from anyone w...

Smartcloud1981

•5 years ago

5 Replies

Summer Vacation

So, not a secret that summer is rough with MS. Just curious if anyone has a summer vacation spot that is MS Friendly?

So, not a secret that summer is rough with MS. Just curious if anyone has a summ...

Hidden

•5 years ago

6 Replies

I can not read my writing as usual

Somebody mentioned a book that I have not bought yet, what was it called please.

Somebody mentioned a book that I have not bought yet, what was it called please....

RoyceNewton

•5 years ago

9 Replies

post 508 Alone loneliness Relapsing Remitting ms 13 Sep 2019

Yes, we are often alone with this condition. Alone in the sense that how do "YOU" find the words to describe what "YOU" are going through. Be it pain,...

Yes, we are often alone with this condition. Alone in the sense that how do "Y...

RoyceNewton

•5 years ago

5 Replies

Should I

Prepare for a relapse after this stupid surgery?🤔 Or just plan on my Ocrevus relapse in Nov.? Since they are about a month apart.🙃 I need this yr to be over!...

Prepare for a relapse after this stupid surgery?🤔 Or just plan on my Ocrevus re...

Jesmcd2

CommunityAmbassador•5 years ago

10 Replies

Info of the day

Hope everyone has a wonderful weekend 👍🙏😉 Ken 🐾🐾

Kenu

•5 years ago

8 Replies

Ampyra, working or too early!

Hi everyone - hope you're all doing good. i have a question. I have been on the brand pill Ampyra for about two weeks now. Should I see an improvement by...

Hi everyone - hope you're all doing good. i have a question. I have been on th...

lindaz9

•5 years ago

47 Replies

Um, where's the bathroom?

It's right there! 🚻🚹🚺♿ Ask us, we might even have extra depends!🙄 Ok, you know we do! Especially if it's going to be a long day! TY...

It's right there! 🚻🚹🚺♿ Ask us, we might even have extra depends!🙄 Ok, you kn...

Jesmcd2

CommunityAmbassador•5 years ago

14 Replies

I Have A Question?

Today, after having one of those weeks of feeling yuck and dreadfully tired; I treated myself to a manicure/pedicure! I had acrylic applied over my fingernails...

Today, after having one of those weeks of feeling yuck and dreadfully tired; I t...

stepsforNeeC

•5 years ago

9 Replies

Has anyone ever questioned their ms diagnosis?

I know the brain lesions and facial numbness are not normal and that makes me believe it is ms. I guess its hard to believe because all of my neurological ekg...

I know the brain lesions and facial numbness are not normal and that makes me be...

mm1527mm

•5 years ago

53 Replies

What other diseases that you know of can have brain lesions and facial numbness?

Thanks!

mm1527mm

•5 years ago

5 Replies

Post 507 Your Gringots vault 12 Sep 2019 2

Gringots, I am not going to assume that everybody knows what this is. The Goblin bank in the Harry Potter series. A place where wizards and witches hide...

Gringots, I am not going to assume that everybody knows what this is. The Gobl...

RoyceNewton

•5 years ago

12 Replies

What the Heck do those codes Mean?

This is for all Newcomers & those of us that tend to forget some🤔🤔. Enjoy and if you know any new "Codes" please add them in the comment section....

This is for all Newcomers & those of us that tend to forget some🤔🤔. Enjoy and...

CalfeeChick

CommunityAmbassador•5 years ago

15 Replies

greater exp

Thank you for the info. Leslie

lbenmaor

•5 years ago

2 Replies

Post 506 RRms be in it for the long haul 12 Sep 2019

I am and so are "YOU" A very long journey. I anticipate another twenty or thirty years. That will mean fifty or so years with Relapsing-Remitting ms...

I am and so are "YOU" A very long journey. I anticipate another twenty or ...

RoyceNewton

•5 years ago

6 Replies

Did anyone have a spinal tap done which showed no bands just high igg?

Thanks!

mm1527mm

•5 years ago

6 Replies

Staying in Touch with Double 51.

Donnie, I've been thinking and praying for you. I hope you're feeling better. Warmly, Leslie

Donnie, I've been thinking and praying for you. I hope you're feeling better. W...

lbenmaor

•5 years ago

5 Replies

MS life with normal things...like the life

I enjoy each peaceful non pain moment...now I go to bed whem "I" need to..not according to others whims of what I should or should not.I agree with my retired...

I enjoy each peaceful non pain moment...now I go to bed whem "I" need to..not ac...

jackiesj

•5 years ago

10 Replies

Has anyone gotten a flu shot after being on ocrevus?

How long do you have to wait after your infusion before you can get it? Will ask my doctor when i go for my second infusion in two weeks but curious if anyone...

How long do you have to wait after your infusion before you can get it? Will ask...

mm1527mm

•5 years ago

18 Replies

Happened Today!

Fall is ok, but not winter 🥶. Ken 🐾🐾😉

Kenu

•5 years ago

14 Replies

Knee replacement surgey for an MS patient

Hi everyone, I had my knee replacement and it wasn’t so bad except the 2nd day when the pain medication was wearing off. I told my husband I was dying. I...

Hi everyone, I had my knee replacement and it wasn’t so bad except the 2nd day ...

TonyiaR7

•5 years ago

18 Replies

Post # 50? 10 Sep 2019

I want the facts and nothing but the facts, I will go home and cry later. I want to know what this diagnosis means to me, what may be in my future?. Real...

I want the facts and nothing but the facts, I will go home and cry later. I wa...

RoyceNewton

•5 years ago

2 Replies

So I get a letter,

From the Dr office. And let me tell you what? Their quit nicotine date and mine do not match up!🤔 Not to mention it's all dyslexic to me anyway. 🙄 I'm...

From the Dr office. And let me tell you what? Their quit nicotine date and mine ...

Jesmcd2

CommunityAmbassador•5 years ago

11 Replies

Has anyone felt leg or thigh pain or soreness after first dose of ocrevus?

Had slight flushing and tickle in throat very short while during infusion which lasted only a brief time. At night feeling leg and thigh pain/soreness. Has...

Had slight flushing and tickle in throat very short while during infusion which ...

mm1527mm

•5 years ago

17 Replies

Do you exercise daily? Has it helped your ms?

What kind of exercise? I used to enjoy walking although often the fatigue and heat make me not want to and when I do I prefer walking indoors. Thinking about...

What kind of exercise? I used to enjoy walking although often the fatigue and he...

mm1527mm

•5 years ago

26 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for September 2019

Facial pain & numbness

Thought if the day.

Post 511 The one (1) rule in ms

Post 510 Sex and sexuality 14 Sep 2019 2

post 509 ms symptoms 14 Sep 2019

Insomnia

Summer Vacation

I can not read my writing as usual

post 508 Alone loneliness Relapsing Remitting ms 13 Sep 2019

Should I

Info of the day

Ampyra, working or too early!

Um, where's the bathroom?

I Have A Question?

Has anyone ever questioned their ms diagnosis?

What other diseases that you know of can have brain lesions and facial numbness?

Post 507 Your Gringots vault 12 Sep 2019 2

What the Heck do those codes Mean?

greater exp

Post 506 RRms be in it for the long haul 12 Sep 2019

Did anyone have a spinal tap done which showed no bands just high igg?

Staying in Touch with Double 51.

MS life with normal things...like the life

Has anyone gotten a flu shot after being on ocrevus?

Happened Today!

Knee replacement surgey for an MS patient

Post # 50? 10 Sep 2019

So I get a letter,

Has anyone felt leg or thigh pain or soreness after first dose of ocrevus?

Do you exercise daily? Has it helped your ms?

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