Hi everyone - hope you're all doing good. i have a question. I have been on the brand pill Ampyra for about two weeks now. Should I see an improvement by now, or is it too early yet. Before this, I was on the generic for a month and it didn't work; that's why I switched to the brand name. How long before I see some improvement? Thanks.
Ampyra, working or too early!: Hi everyone... - My MSAA Community
Ampyra, working or too early!
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I am no longer on Ampyra, but when I was I saw results within a few days.
Thank you for your response. Can I ask you why you stopped taking it and what symptoms did it help?
It helped with lifting my foot instead of dragging it. I now take a compounded version as I was getting financial assistance from the manufacturer and as of 12-31-17, if you were on Medicare they would no longer give assistance. The cost was prohibitive, so I now have a compounder make it for me.
Hey mrsmike9 what is that and how would i get the compound?
Pharmacists will tell you that it takes two weeks to get into your system. I tried Ampyra and it made me walk like I was drunk. Everybody is different, so maybe it is not for you.
I take it works but I'm slow.
I think the stronger I get the faster I walk because of pt.
When I stop pt I tend to slow down. Crazy I know, when I start to improve insurance pulls the plug saying I have MS and I'll never get better
That is terrible. Insurance companies suck. I wish you all the best. I tried physical therapy, but it didn't work for me. I am trying to get stronger with the weights first. I am going to give the medicine a little more time to see if it works.
Although some people will get results very quickly, for others it can take up to eight weeks to see if it is going to work, . If it hasn't done so in that time then it's probably not going to work for you - there is a significant number of people who don't get any benefit from it (I think it could be as high as 30 to 40% that it doesn't help). I was one of them and stuck it out for seven weeks, but the side-effect of massive constipation was too much for me to persevere even for that extra week to see if I got any benefits. You also need to remain vigilant about the seizures risk that goes with taking it.
Thanks. I understand the side effects, which I don't like, but I am going to give it a little more time. I try to keep a little bit of hope going.
Yes, I got results from Ampyra within an hour and a half, literally. I think I have had MS longer than most people who try Ampyra and I also think the results are extremely variable. I was not able to walk period. I do have episodes similar to that now but they may be due to adrenal insufficiency. I don't know. It is very hard to make some deliniations when talking about MS and other autoimmune problems.
My guess is that you should see some slight changes at least this far into the treatment. When I attempted Ampyra, I had an adverse effect within the first hour, so I would assume positive effects might begin that quickly as well (and yet be imperceptible to walking improvement which might occur more gradually.)
Thanks. I am going to give it a little more time. Some improvements might not be the ones that I am looking for so therefore I would not think it's working. I am waiting for my balance to improve as well as my walking.
I took it for 90 days did not see or feel any any difference
Thanks. I'm sorry aqbout no improvement. I am going to give it a little longer, as I hate taking medicine anyway.
I’m on the generic. I’ve been on a version for like 3 years. I noticed a difference after a few days. I missed a dose the other day and I felt awful.
Thank you. What kind of changes did you see? I would like to see some improvement in my balance and with my walking.
Sorry it took me so long to respond. It helps my walking speed and stops my legs from feeling so weak and wobbly. It might do more but I am on 3 meds for walking so it's hard to tell them apart.
I tried it twice and it just made my legs ache horribly.
I began the brand name around 5-6 weeks ago. Bits of improvement took about 4-5 weeks to notice. I was feeling a little discouraged but remembered it could take 6-8 weeks & I tend to be impatient 🤨 so started the 2nd bottle. This past week has shown MUCH improvement. I will need to switch to generic next month due to “supplier” issues and am hoping it continues to work as well 😬
Generic may or may not work (mostly not). My neuro gave me a walking test after 30 days which showed speed improvement. I cannot live without Ampyra - not because of this perceived speed improvement, but because I cannot function at all without it. My knee wouldn't bend for certain Pilates and yoga poses without it. I couldn't get off the couch. I have been on brand since December 2018.
The generic definitely did not work. I have only been on the brand name for about two weeks, si I am going to give it a little more time.
Yes, the best of all alternatives for you and do keep us posted.
I was on it for about 3 months. I had to get off of it because it really messed with my emotional / mental state. During the time I was on it I didn't think it was helping either. But when I stopped taking it my legs became cumbersome and uncoordinated once again.
What I'm trying to say is that the positive effects from the med was a slow and steady progression. So much so that I didn't really notice it at all.....until i stopped it and ended up back where I started!
I have been on amparya too for about 2 weeks. I still don’t see any difference.