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All posts for September 2019

Post 515 hello family members

It has been one helluva week let me tell "YOU" Not me, it is normally not me or she who must be obeyed, but her Uncle. Heart attack and quadruple bypass...

It has been one helluva week let me tell "YOU" Not me, it is normally not me o...

RoyceNewton

•5 years ago

7 Replies

For Newly Diagnosed, an online program from Can Do MS

This looks interesting A Virtual Program for Families Newly Diagnosed with MS DATE: Saturday, November 2, 2019 TIME: 9am to 3pm EST LOCATION: Online...

This looks interesting A Virtual Program for Families Newly Diagnosed with MS DA...

Lilith08

•5 years ago

1 Reply

Rodeo Clown?

I was going through some pictures looking for a quilt pattern I had saved and ran across this one. How many of you can say that you have been a rodeo clown?...

I was going through some pictures looking for a quilt pattern I had saved and ra...

hairbrain4

•5 years ago

8 Replies

Want to take advantage of all our features? Just log in!

new information for me from dr today

I went to my neuro today,and we were discussing how I felt terrible at 5 months after infusion of Ocrevus and I thought I needed it at every 5 months not 6...

I went to my neuro today,and we were discussing how I felt terrible at 5 months ...

pamgarner

•5 years ago

6 Replies

Dancing and MS

I got an email from healthline.com about dancing and MS. I can’t post the link, but if you can find it under that site, be sure to watch the video.

I got an email from healthline.com about dancing and MS. I can’t post the link, ...

greaterexp

•5 years ago

7 Replies

Is it just me

Or does anyone else get excited when you're about to start a new treatment? Maybe hopeful is a better word.

Or does anyone else get excited when you're about to start a new treatment? Mayb...

Shorty25

•5 years ago

10 Replies

Ocrevus recipients

Hello. I want to share with those receiving Ocrevus treatments that I have benefited from the Ocrevus co-pay program offered by Genentech to Ocrevus patients....

Hello. I want to share with those receiving Ocrevus treatments that I have bene...

88Dodgee

•5 years ago

7 Replies

drop foot and brace

I have had drop foot and problems walking for many years. It wasn't till a pain management doctor gave me a slip for the brace for foot drop. Walking better...

I have had drop foot and problems walking for many years. It wasn't till a pain ...

Hidden

•5 years ago

12 Replies

Ocrevus

I have had 4 infusions of Ocrevus and haven't found any positive results from it. I did, however, have 2 side effects. My head would start itching within a...

I have had 4 infusions of Ocrevus and haven't found any positive results from it...

sushimylove

•5 years ago

12 Replies

Intro Post

Intro post I was diagnosed last week and I am thankful. I am a professor of education at montclair state in nj and i live in nyc.

Intro post I was diagnosed last week and I am thankful. I am a professor of ed...

dksegues

•5 years ago

22 Replies

All MS sessions (ECTRIMS) now accessible online

If you're up for it, you can access all the sessions from the recent European Committee for Treatment and Research of MS. It's a medical and scientific...

If you're up for it, you can access all the sessions from the recent European Co...

anaishunter

•5 years ago

5 Replies

New look out!

Cut a hole and framed it in the side fence so the furbabies could see out 👀

Kenu

•5 years ago

10 Replies

Women and MS Webinar!

This is today!!! Hope you can join in. The link to register is at the bottom of this post. a day ago•7 Replies TODAY!!! 9/17 - Women and MS Webinar Just a...

This is today!!! Hope you can join in. The link to register is at the bottom of ...

CalfeeChick

CommunityAmbassador•5 years ago

5 Replies

J.K. Rowling Donates $18.8 Million to Research Into the Treatment of Multiple Sclerosis

This is great! This was in Scotland....

bxrmom

•5 years ago

16 Replies

Anyone have a day where they just think about life before diagnosis and wish they were healthy again?

I have been much more positive the last few weeks but am Just having one of those sad, down in the dumps kind of days.

I have been much more positive the last few weeks but am Just having one of thos...

mm1527mm

•5 years ago

29 Replies

post 514 Paint yourself a picture

When I write for "YOU" I try to paint a picture. Not all the colours but the scene. It is up to "YOU" to put in the colours. At times all "YOU" can see...

When I write for "YOU" I try to paint a picture. Not all the colours but the s...

RoyceNewton

•5 years ago

3 Replies

Post 513 Relapsing Remitting ms is not my enemy 17 Sep 2019

Relapsing-Remitting ms(RRms) is not ever my enemy. It is not a curse that I was given. It is not a burden that I carry. Well, perhaps a weight but not an...

Relapsing-Remitting ms(RRms) is not ever my enemy. It is not a curse that I wa...

RoyceNewton

•5 years ago

8 Replies

Thought for the day

👍🙏😉. Ken 🐾🐾

Kenu

•5 years ago

7 Replies

TOMORROW NIGHT 9/17 - Women and MS Webinar

Just a reminder of an online educational event we are hosting with Dr. Annette Howard, who some of you may remember as our Ask The Expert guest last month here...

Just a reminder of an online educational event we are hosting with Dr. Annette H...

johnMSAA

Partner•5 years ago

7 Replies

Work 16 Sep 2019

No, I am sorry not your 9 to 5 or your endless chores at home. I am referring to your day to day existence and the management of our mutual problem. Yes,...

No, I am sorry not your 9 to 5 or your endless chores at home. I am referring ...

RoyceNewton

•5 years ago

3 Replies

This happen to you?

Seriously? Maybe it's the not smoking. 18days. No nicotine! It stinks. Cold Turkey! The patches came off after a week. No time. 😭 Blood work today. If they...

Seriously? Maybe it's the not smoking. 18days. No nicotine! It stinks. Cold Turk...

Jesmcd2

CommunityAmbassador•5 years ago

23 Replies

Not new to MS but new to this site

Just introducing myself....I was diagnosed with RR MS 22 years ago this month. I was 30 at the time...over the years I've been on a roller coaster of meds and...

Just introducing myself....I was diagnosed with RR MS 22 years ago this month. ...

Hidden

•5 years ago

17 Replies

Tec...

Does anyone ever wonder about how to get this stuff cheaper?? Geez!

Kj9681

•5 years ago

10 Replies

Slept in till 7::30 this morning 👍

Then the quite woof woof urrrrr time for breakfast 🍳🥴😂😉 Ken 🐾🐾

Kenu

•5 years ago

5 Replies

Test results- please help

I had lumbar puncture and MRI before Christmas- I got the results today. (I'm in the UK-so it was done on the NHS) The LP results are incomplete, because the...

I had lumbar puncture and MRI before Christmas- I got the results today. (I'm in...

stripybutterfly

•5 years ago

24 Replies

Does everyone who has rrms get spms? How do you know if it is spms?

Trying to learn more about ms since the recent diagnosis. Thank you 😊

mm1527mm

•5 years ago

16 Replies

..........😐😑me

We are the sum of our natural state, of our natural actions, of an unnatural way. From an unnatural sway, to maybe it's unnatural say. From our inability to...

We are the sum of our natural state, of our natural actions, of an unnatural way...

Fattius

•5 years ago

9 Replies

Today

Todays infusion day. God bless everyone in Bahamas

Jackjosh

•5 years ago

9 Replies

New data on Ocrevus

this is out of the recent MS congress in Sweden. It's from the pharma company. Hopefully, the full paper will soon be available....

this is out of the recent MS congress in Sweden. It's from the pharma company. H...

anaishunter

•5 years ago

5 Replies

Tips for dealing with vertigo

I’m sure we’ve shared about this before, but would you mind sharing what, if anything, has helped you deal with vertigo? Dramamine has helped a bit with the...

I’m sure we’ve shared about this before, but would you mind sharing what, if any...

greaterexp

•5 years ago

7 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for September 2019

Post 515 hello family members

For Newly Diagnosed, an online program from Can Do MS

Rodeo Clown?

new information for me from dr today

Dancing and MS

Is it just me

Ocrevus recipients

drop foot and brace

Ocrevus

Intro Post

All MS sessions (ECTRIMS) now accessible online

New look out!

Women and MS Webinar!

J.K. Rowling Donates $18.8 Million to Research Into the Treatment of Multiple Sclerosis

Anyone have a day where they just think about life before diagnosis and wish they were healthy again?

post 514 Paint yourself a picture

Post 513 Relapsing Remitting ms is not my enemy 17 Sep 2019

Thought for the day

TOMORROW NIGHT 9/17 - Women and MS Webinar

Work 16 Sep 2019

This happen to you?

Not new to MS but new to this site

Tec...

Slept in till 7::30 this morning 👍

Test results- please help

Does everyone who has rrms get spms? How do you know if it is spms?

..........😐😑me

Today

New data on Ocrevus

Tips for dealing with vertigo

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