Living with MS

[Kenu]

New to site, was diagnosed with RRMS in 1996. Have had numerous bad and good things they the years with ms. Hard to believe it’s been 22years and still going. Will be nice to meet everyone 👋

[erash]

Kenu

Welcome. Glad to meet you and look forward to chatting 😊

[Amore55]

Kenu It is so nice to meet you. I am Kelly, I have been on this site about two years now I think. It is the most wonderful group of people you will ever meet. They truly become family as you get to know them all and love them. I would just be lost without their advice and caring. I hope you post often so that we can get to know you better. Love, Kelly

[Morllyn]

Nice to meet you Kenu !👋

[Jesmcd2 CommunityAmbassador]

Good Morning Kenu How are you today? Welcome to the MSAA Community 😊 and the Family! Sry bout the monster tho!😠

Please feel free to jump in at anytime! We love getting to know new friends and sharing stories and advice just to make it through the day sometimes!💕

Jes 🌠👻

[Kenu in reply to Jesmcd2]

I am so happy that everyone is replying. I moved to Boise Idaho from Pocatello year ago for cancer treatment and had to leave good friends behind. Now I need new friends 😊

[CalfeeChick CommunityAmbassador in reply to Kenu]

I don't know anyone in Boise except you. Pray you are doing good with the cancer treatment. Hopefully, some of us will fill in your need of friends. Very nice people here.

[mrsmike]

Welcome to the group!

[Kitsey]

Welcome and we all look forward to hearing from you!

[greaterexp]

Kenu , we are thrilled you found us, but wish it were under different circumstances. This is a wonderful group of people. We all share such different stories, yet have so much in common and truly understand one another.

[melack01]

Welcome!

[Fancy1959]

Hello right back at you Kenu, it's Fancy1959. I'm glad you found us and understand that you have found a chat room full of some of the most caring and compassionate people I have ever met. Here it is safe to ask questions, voiced concerns, or simply speak to someone who truly understands what you are going through.

I love your positive attitude and understand you are not alone that there are many of us here who have lived with MS for 20-plus years and are still kicking! After all what choice do we have as I personally am not ready to roll over and give up so I find new ways to be able to compensate for my MS and get out and about and do everything I have always done. Just a lot slower! I look forward to talking to you soon and remember until then that together we are stronger! Take care until we speak again.

[Kenu in reply to Fancy1959]

Thanks, I know what you mean by moving slower, with fatigue and stroke I move slow, but seem to get things ✅ when diagnosed 22 years ago i was also told had a growth in my right lung? Stopped treatment for MS and had right lung removed. Then to top it off had a surgericle stroke. Was told I would not walk again. Six months later I was using a cane and limping along. Sold my Autobody business and went to work as adjuster for 21 years. Great job.🤗

[Kenu]

Thanks 🙏 everyone for responding. 👀 forward to getting to know you all 😎

[CalfeeChick CommunityAmbassador]

Hello and welcome to the best forum there is.. feel free to just observe, comment, ask questions. Allot of wonderful people here and we all share MS or are Caregivers of someone with MS..Kinda like family we get to pick and choose!

[Qt314grl]

Hi, I'm new here too! Any advice for me? Lol. Going to MS clinic for first time on Thursday.

Have you been taking disease modifying drugs since they became available?

[Kenu in reply to Qt314grl]

Yes, I started on copaxen 21years ago. Was on it for ten years then started to have problems. Went on avonex and did not agree. Did betazoren for year and half, then rebid for year. Still haven problems and started tysabri for seven years, worked great. Then I got cancer and had to stop ms meds. My white t-cells were off after chemo so we went to techedera, to many side effects. I am on aubigo for the last ten months and doing good. Everyone is different with what works, but so far tysabri was the best. Hopefully aubigo continue to work 😎 feel free to ask any questions 😊

[bxrmom]

Kenu Welcome to the group! Look forward to 'meeting you' and chatting.

Jessie

[Doubled51 in reply to bxrmom]

Kenu welcome. Glad you found us. I was diagnosed with rrms in April 2017. At 65 years it was a total surprise but it is what it is. You found the best group of people there is. Good luck and God bless.

Donnie

[Kenu in reply to Doubled51]

Thanks

[Lisacpa]

Hey there Kenu. I don’t visit this site a lot, but it’s nice to see someone who’s almost as much a “lifer” as I am. I was Dx in 1991. Welcome!

[Kenu in reply to Lisacpa]

I was diagnosed with rrms. One of best friends was diagnosed in 1990 with rrms and had never told me. In 2000 she had a major acerbation and had not been on any meds.....she has now graduated to ppms and in wheelchair . She started meds in 2000 after lots of herasment. Mine is still rrms with relapses and decline in health due to ms. Just keep plugging along to changes and try to stay positive.👍😎

[kdali]

Welcome! 🎉

[Nom_De_Plume]

@kenu Welcome 👋🏼, as you’ve heard, this is a wonderful group of folks. I joined about 4 months ago and am so glad I did. I’m so sorry to hear of the many ordeals you’ve experienced in addition to the MS. Namely, cancer and one lung removed, stroke, etc. So much to deal with. I’m sorry. Love your 4-legged baby. Lots of healing medicine there. 😉 Hoping you’ll be a regular contributor! Welcome again and please don’t be a stranger!

😀 Lisa

[Kenu in reply to Nom_De_Plume]

Lisa, thanks. I can’t believe that I never found this site. Of course I had to quit working and have more time now. Tough to adjust to just having SSDI and Obama care for insurance, but at least that gets us by. I just try to stay positive and live one day at a time👍🐩🐕🐶

[Nom_De_Plume in reply to Kenu]

@Kenu Yes, I hear you. It IS tough adjusting to having SSDI and Obamacare. (I’m in the process of applying for SSDI, myself, and I’m not looking forward to what I hear is a very adversarial system.) it is depressing after working so hard in school and building a career—only to have all of that taken away along with your regular salary... and then made to hope to qualify for an insurance that you’ve paid into faithfully for so many years ... boy I sound bitter already and I’ve barely begun the process! 😝