Hello: Hi my name is Lisa I was diagnosed... - My MSAA Community

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Lisajp1018 profile image
Lisajp1018
โ€ข35 Replies

Hi my name is Lisa I was diagnosed in 2014 with MS my doctor wasn't sure which one I have I'm still learning about things and still trying to accept it

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Lisajp1018
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35 Replies
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Royjr profile image
Royjr

Hello Lisa!!!!

Lisajp1018 profile image
Lisajp1018โ€ข in reply toRoyjr

Hello

greaterexp profile image
greaterexp

Lisajp1018 , welcome to the group! I hope you find as much information and support here as I have.

Itโ€™s a roller coaster of symptoms and emotions at times with MS, as well as in terms of acceptance. Youโ€™re here with a group who understand!

Lisajp1018 profile image
Lisajp1018โ€ข in reply togreaterexp

Thank you so much its nice to be able to talk to someone who knows how I feel

Welcome to the group Lisa.

Lisajp1018 profile image
Lisajp1018โ€ข in reply to

Thank you

Raingrrl profile image
Raingrrl

Hi Lisajp1018 ! Its a tough diagnosis to accept for most of us. I was able to accept it quickly only because I had myself convinced I had something worse like an inoperable tumor. I was a single mom at the time and was worried about who would raise my daughter if I wasn't around. I have quite the imagination! So...MS was the lesser of evils.

Its a little odd that your doctor doesn't know which form of MS you have. If you aren't seeing a neurologist that specializes in MS, you might consider finding one to be part of your medical team. They typically keep up with the latest info related to MS...much more so than a non-MS neurologist or regular doctor. Just a suggestion.

Lisajp1018 profile image
Lisajp1018โ€ข in reply toRaingrrl

Thank you

Sggmcswain profile image
Sggmcswain

Welcome to the group (not that you have MS).

Lisajp1018 profile image
Lisajp1018โ€ข in reply toSggmcswain

Thank you

erash profile image
erash

Lisajp1018

Hi! Welcome and I look forward to chatting with you ๐Ÿ˜Š

Lisajp1018 profile image
Lisajp1018โ€ข in reply toerash

Thank you

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi Lisajp1018 Welcome to Our MSAA Community ๐Ÿ˜Š If you want to learn, this the place!๐Ÿ˜„ As far as accepting this monster? Well, everyone is different with that. Some days I accept it, some days I fight it tooth and nail! ๐Ÿ’• I wonder where that saying came from? ๐Ÿ˜’ Anyway! ๐Ÿ˜„

Welcome to the family!

~Hugs n Luvs ~

J ๐ŸŒ ๐Ÿ‘ป

Lisajp1018 profile image
Lisajp1018โ€ข in reply toJesmcd2

Thank you

Morllyn profile image
Morllyn

Hi Lisajp1018 , sorry about the diagnosis but welcome to the group.

Lisajp1018 profile image
Lisajp1018โ€ข in reply toMorllyn

Thank you

mrsmike profile image
mrsmike

Hi Lisa,

Welcome to our group of MS warriors. It's a great place to vent, feel sad, feel happy, find out how others cope, ask questions....whatever!

Lisajp1018 profile image
Lisajp1018โ€ข in reply tomrsmike

Thank you

Eleyne92 profile image
Eleyne92

Hi, Lisajp1018 , and welcome.

Lisajp1018 profile image
Lisajp1018โ€ข in reply toEleyne92

Thank you

Kitsey profile image
Kitsey

Lisajp1018 Welcome to the group! It is amazing how much you can learn from other warriors who understand what each is facing.

Lisajp1018 profile image
Lisajp1018

Thank you

cljones profile image
cljones

@lisajp1018 Welcome I was diagnosed 2014 also but I had it for a lot longer. You will find this a very supportive group and a great source of information.

cljones profile image
cljones

@lisajp1018 I forgot to tell you my doctor told me it doesn't matter which MS I have. Then I learned that if they tell you that it's other than RRMS that the insurance company may not want to pay for your meds.

Lisajp1018 profile image
Lisajp1018โ€ข in reply tocljones

Okay well thank you for the info but I'm not seeing a doctor anymore and I don't take meds just God and essential oils I don't work I have no insurance my husband is the only one working and the government can't help us cuz he makes too much money I'd like to know where the money is I have been to there doctor and he said I was disabled but he only put it for three years but they still can't help because of my husband making too much money but I'm doing fine with God and my oils

Kenu profile image
Kenuโ€ข in reply toLisajp1018

Canโ€™t you be on husbands insurance? What about SSDI, did you work prior? I know itโ€™s tough to go thru money issues.

Lisajp1018 profile image
Lisajp1018โ€ข in reply toKenu

No he doesn't have insurance either cause we can't afford it and yes I did work but they said I'm missing 2 quarters

Kenu profile image
Kenuโ€ข in reply toLisajp1018

Sorry to hear that. My wife lacks one quarter also. She had stayed home to raise our son. Canโ€™t get SSDI and has chrons and arthritis, both chronic. She is 59. I have been on SSDI for two years due to stage four throat cancer and unable to work. We are on Obamaโ€™s health plan. What about it?

Lisajp1018 profile image
Lisajp1018โ€ข in reply toKenu

I'm sorry I will put y'all in my prayers no we haven't tried that but I will look it up

mrsmike9 profile image
mrsmike9

2014...Me too! Just keep going. I keep going until I just start to tire and then I stop. If I push past that I WILL pay for it! Life does not stop with this stupid disease.

Lisajp1018 profile image
Lisajp1018โ€ข in reply tomrsmike9

I will I like to think of myself as a fighter and a worrier but some days I'm not so sure but you hang in there to

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorโ€ข in reply toLisajp1018

Hi again Lisajp1018 Having MS and being a fighter come hand in hand I think! Cause all you can do is fight it!

Let's see if I can help you on the road for insurance๐Ÿ˜‰ mymsaa.org has an 800 532-7667 ext. 154 give them a call.

They might be able to get things going for you.๐Ÿ˜Š

Jes ๐ŸŒ ๐Ÿ‘ป

Lisajp1018 profile image
Lisajp1018โ€ข in reply toJesmcd2

Thank you I'll give them a call

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorโ€ข in reply toLisajp1018

Your very welcome! Let me know how you make out.๐Ÿ˜Š I have more numbers for to call also!๐Ÿ˜€

J ๐ŸŒ ๐Ÿ‘ป

Lisajp1018 profile image
Lisajp1018โ€ข in reply toJesmcd2

I sure will thank you again๐Ÿ˜Š

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