School MSA Survey

[LaCrosse87]

Hi Everyone, we have been very busy navigating the changes to my husbands MSA and also raising our children. Some days are more challenging than others, but I think everyone on this site can relate. It breaks my heart that he cannot go outside and toss the football or run at the park with the kids. Even so, we live our lives as normally as we can and enjoy the moments.

My dear sweet son wants to eventually go to med school so he can find a cure for his Dad, but I know it would be too late even if a miracle happened (this is where I cry every time). He understands the world and how it works but he is going to try. To that end, he is doing a school research project about MSA. He has asked if I would post a survey to you with 7 questions. Will you or a caregiver please answer the simple survey questions? Alternatively, you can also message me for the questions if the link does not work.

Cut and paste this link:

docs.google.com/forms/d/e/1...

Thank you and bless you.

[Yanno]

Done!

[LaCrosse87 in reply to Yanno]

Thank you very much. There is still so much goodwill in the world.

[FredaE]

Done

[LaCrosse87 in reply to FredaE]

Thank you FredaE.

[IvyRose64]

Have done this for you on Alan's behalf, hope this is OK.

[LaCrosse87 in reply to IvyRose64]

Yes, it is more than OK. Thank you IvyRose64.

[novagayfox]

Done on behalf of husband; well done and good luck with your research

[LaCrosse87 in reply to novagayfox]

Thank you Novagayfox. It's very kind of you.

[Derkie54]

Done

"Find a cure for his Dad" what a nice thing to say.

As you say some days are a challenge, but we all try and smile and carry on......what else can we do !!

All our best wishes to you and your family

Derek

[LaCrosse87]

Thank you, Derek. You are very kind.

All our best to you and your family too.

[Hidden]

Done. What a sweetie pie. Well, breakthroughs and interesting discoveries can occur when somebody has personal reasons to work hard on something.🙏💝

[LaCrosse87 in reply to Hidden]

I sure hope that happens. Thank you Kay.

[Annietutt]

Done. hope it helps.

[LaCrosse87 in reply to Annietutt]

Yes, it does help. Thank you Annietutt.

[vis1]

HiI completed the survey on behalf of my sister who sadly died last month. However I was able to complete the questionnaire accurately as I was one of her carers. Take care all of you.

[LaCrosse87 in reply to vis1]

I am so sorry for your loss. Thank you for taking the time to fill the survey out.

[CanAmK]

I completed this for Bart. Good luck.

[LaCrosse87 in reply to CanAmK]

Thank you CanAm. All my best to you and Bart.

[Andrashko]

done, for my husband who has MSA-C

[LaCrosse87 in reply to Andrashko]

Thank you for taking the time for the survey Andrashko.

[brianski]

Done ,gladly. Best wishes, stay strong for yourself and family, brian

[LaCrosse87 in reply to brianski]

Thank you Brian. I appreciate the kind words.

[Hellebelle]

Completed. What a thoughtful and caring son you have.

[LaCrosse87 in reply to Hellebelle]

Thank you Hellebelle. You and all the people on this site are incredible. I am grateful for the generosity.

[Hellebelle in reply to LaCrosse87]

You are very welcome. I have answered on behalf of my father.

[TK-67]

completed on behalf of my mum. Let's hope your son fulfils his ambitions

[LaCrosse87 in reply to TK-67]

Thank you TK. I hope he does.

I told my son he might get 2 or 3 people to respond but he was blown away that so many people were kind enough to respond and complete the survey. Again, thank you.

[Tusker1953]

Done on behalf of my husband xxx

[LaCrosse87 in reply to Tusker1953]

Thank you Tusker.

[matie1]

Done on behalf of my husband.

[LaCrosse87 in reply to matie1]

Thank you Matie.

[Gardener10]

Completed. Wishing your son the very best in his determination to find a cure.

[LaCrosse87 in reply to Gardener10]

Thank you Gardener for completing the survey and your kind words.