Help MSA query!: If a persons suffers... - Multiple System A...

Multiple System Atrophy Trust

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Help MSA query!

RhiMallorca profile image
5 Replies

If a persons suffers from msa started to choke already has syringe driver for secretions, but oral swabs and suction machine doesn’t do the trick, how can I help them ?

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RhiMallorca profile image
RhiMallorca
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5 Replies
TK-67 profile image
TK-67

I really think you need some medical support with your patient? It is such a complicated disease, is this set up for you?

RhiMallorca profile image
RhiMallorca in reply to TK-67

I do have a hospice that he can go to but declines and also a palliative care team. He has 24/7 care and partner lives within. I just want to know what else I can do and pass on to my team of staff

SamanthaMSAT profile image
SamanthaMSATModeratorStaff in reply to RhiMallorca

Hi RhiMalloca,

My advice would be to ask a physiotherapist to assess as they will be best placed to advise the hospice team on other ways of managing this.

Kind regards,

Samantha, MSA Trust nurse

Hellebelle profile image
Hellebelle

Hi, swallowing difficulties are a very unpleasant occurrence of MSA for some people. Do you have access to help from a speech and language therapist? Dad had an assessment from one and the therapust suggested having thickened fluids which helped. We eventually had to give him softer food so that he could swallow without choking.

There are various medications that also help with saliva as this can cause choking even without eating food.

I hope you manage to get some help.

Hellebelle profile image
Hellebelle

Oh sorry, I didn't realise. It is a very complicated condition and I hope you manage to find the right help.

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