MSA

[Jiempies]

My wife has been diagnosed work MSA...what now?

[Yanno]

Hello, sorry and welcome albeit we realise no one wants to be here.I notice you are in South Africa and know little of the facilities there. However, one of the first things I would do is look at the MSA Trust web site here in the UK (msatrust.org.uk). There's also much information on the MSA Coalition web site in the USA (multiplesystematrophy.org).

Whilst you will read on these sites much about the effects of MSA, take heart that everyone doesn't have every symptom; your wife's journey will be her own and different to everyone else.

I know it's easier to say than to do...but please try and remain positive. There will be difficult months and years ahead however, you can still have fun, enjoy life and make some great memories. Don't think too much about what you can't do, concentrate on what you can do.

Finally, there's so many people in this forum who are there to help and support you should you have questions, need advice or just want to have a rant.

Take care, Ian

[Diane831]

Hi there. How you approach this new journey will depend so much on your personalities and your outlook on life. Ian has said some really helpful things. The MSA Trust website in the UK has lots of helpful advice

msatrust.org.uk/

But you need to get information in a way that helps and doesn’t overwhelm you both.

Your wife’s symptoms will be some of the ones which can be a part of the disease, but the actual combination will be unique to her. But if you have questions about something she is experiencing then someone on here will know what you are talking about.

Life ahead will certainly be different and challenging, but again as Ian has said, look at what you want to do and do things while you can and then learn to do what you want to do adapting to any new symptoms as they come along - live the lives you have.

You have our concern and support

Diane

[Crumpetthecat]

Hello, this is the platform you should find support through others that can relate to you and your wife. You can ask questions about most things relating to MSA. Sending our prayers to you both. We’re all in this boat together so your not alone. You are amongst friends here 😊

[yo8008]

Hi, I understand your feelings, my husband was diagnosed with MSA C and I am still in shock