Sleep and Fluid on the lungs

[Kaye31]

Hi, my partner has recently been diagnosed. Started with a minor tremor and a feeling of dizziness last October. Diagnosed with Parkinson’s in December but the change in motor skills meant more tests and MSA diagnosis a couple of weeks ago.

We seem to have huge sleeping problems with fluid on the lungs resulting in coughing and choking fits and we cannot shift it. Puffy feet and legs too.

Water retention tablets aren’t working.

Any experience or advice greatly welcomed.

We have a selection of pillows in all shapes and sizes to!

[Hidden]

Hello I would recommend phoning the nurses from the MSA trust. They could speak with you today. Dad hasn't experienced this much but he was issued an electric profiling bed early on through his district nurses. The idea being that the head part is raised at all times when lying down to help fluids drain downward. Appreciating it can be quite an adjustment if you're used to sharing a bed.Maybe an urgent chat with the GP and they can refer to speech therapy also - who assess swallowing and advise when people choke on their own fluids.

Sorry to hear about these experiences. Probably others on this forum will be able to make better suggestions than me good luck!

Kx

[writerinlimbo]

My husband had the same diagnosis - Parkinson's followed by MSA after very rapid deterioration. During his Parkinson's phase he started taking Ropinirole and feet and legs became very swollen. Diuretics didn't help. Moved to Levadopa and swelling reduced a fraction. No apparent benefits from Levadopa (with 1-3 falls/day) so stopped taking it and swelling reduced a little more. However he swiftly became totally immobile and it was only in his last few weeks when he was spending more time in bed that the swelling really went.

[Kaye31 in reply to writerinlimbo]

That’s interesting. He has tried about 6 different Parkinson drugs now Ropinerole being the latest one which is doing nothing. He’s very fuzzy in the head and feet very swollen. It’s actually worse with the meds than without.Did you find anything that gave any relief?

[writerinlimbo]

Yes, we found he was worse with Parkinson's meds than without. Only thing that helped was getting his feet up more. He hated being in bed but eventually persuaded him to lie down for an hour on his bed around 4pm. Didn't eradicate the swelling but it helped with the extreme puffiness.

[writerinlimbo]

Btw, believe a common side effect of Ropinirole is swollen legs. If it's not helping, worth discussing side effects vs benefits with whoever prescribed it.