Heartbroken: My Alan mr perfect lost... - Multiple System A...

Multiple System Atrophy Trust

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Heartbroken

Ruthi15 profile image
22 Replies

My Alan mr perfect lost his battle with msa on the 24th sept I was fortunate to be holding his hand such a cruel disease rest in peace my darling till we meet again x❤️

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Ruthi15 profile image
Ruthi15
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22 Replies
Lemons1 profile image
Lemons1

So sorry for your loss. Such a cruel disease, I’m going through the same with my husband. It’s scary to see how quick it can progress x

Ruthi15 profile image
Ruthi15 in reply to Lemons1

Yes it is he went down hill so fast caught an infection had antibiotics and a drip at home but passed within 2 weeks still hasn’t sunk in x

Madauntie profile image
Madauntie

So very sorry for your loss x

chester2107 profile image
chester2107

so sorry ruth , so heartbreaking for you sending love and hugs xx

beautiful photo❤️

RuthiOur hearts go out to you as you've lost you're Alan. It's something we all dread and know will happen on to us.

Be strong and do as Alan would want you to do.

Peace be with you.

Paul & Sue

Ruthi15 profile image
Ruthi15 in reply to Paul_and_Sue_Wood

Thankyou I am now so angry with the illness but will try and raise monies so that maybe we can find something that prevents or helps others x

We all know what you're going through. The only consolation in this awful situation is, you got to spend time doing what's important. You know you did everything possible. My condolences to you and your family. Big hugs Sharon

Ruthi15 profile image
Ruthi15 in reply to

I was lucky I went part time 8years ago and gave up completely over 5 years ago but it was so hard to watch the man I married change and loss interest in the things he loved god only knows how I will rebuild my life feel I have been struck by a massive lorry just trying to give him the best send off I can xx

MinasGerais profile image
MinasGerais

Simply want to say that we share your sadness with Alan's passing.Early days but we hope you'll be able to look back, fondly, on the good times and also know that your faithfulness through the tough times was everything to him.

Sending love, Michael and Sonia.

Kaye31 profile image
Kaye31

I’m so sorry to read of your loss, lots of love xxx

SDSDYew profile image
SDSDYew

I am so very sorry to read this sad news Ruth. Sending you strength and love xx

Courgettegrower profile image
Courgettegrower

So sorry, horrible disease. Jenny

Precious68 profile image
Precious68

So sorry to hear this Ruthi. No words can help with such a cruel and vicious disease.

🧡🧡🧡🧡🧡

That photo looks to me like he had a bit of fun and mischief about him if he wanted.🙂 The forum will be here if you'd like to reflect further, as the pieces of your life fall back down into a new shape. Wishing you power and strength for that jolly good send off. Kx

Helenhooter profile image
Helenhooter

Ruth

I'm so sorry for your loss, so young too. You must be devastated. Remember all the good times you've had together, some people don't get that. Be kind to yourself. Thinking of you and your family, love and hugs

Helen

Kilmain profile image
Kilmain

So sorry to hear of your sad loss, please accept my sincere condolences. X

Annietutt profile image
Annietutt

Hi Ruthi,Having lost my own husband, Tony, to this awful disease just a week or so before you lost Alan, and under similar circumstances, I can understand the shock you are feeling at such a rapid deterioration. We weren’t prepared for that and really thought we would have him for much longer. It is particularly cruel that Alan was still relatively young. I hope you have all the support you need and are able to remember all the good times. Wishing you strength in the coming weeks and months.

Anne.

Ruthi15 profile image
Ruthi15 in reply to Annietutt

Thankyou and I hope also that you find the strength I would love to talk to people on the phone or face to face that have went through similar circumstances as I feel it would really benefit them x

heysunshine profile image
heysunshine

Hi Ruth, So sorry to hear of your sudden loss of Alan. Having gone through the same loss in January from this horrid disease, I know how painful & lonely it is for you.May you find comfort in the coming weeks & months in knowing that you cared for him as best you could and that he would have known the strength of your love in your actions.

Reflect often on the memories you created and the strength he had to endure his condition.

One thing I did for myself and my kids is to have individual blown glass momentos made that included ashes of my dear husband, Carl and their Dad. I chose a votive candle holder (so I could light it at family occasions and he would be with us in memory) and selected an angel for my daughter, a heart for one son and a paperweight which looks like a galaxy for the other. This way we all will always have a piece of him with us, in a physical sense. I chose to give these to the kids on their Dad's birthday, as a last gift from him to them. It was really quite memorable and appreciated. I also found that the poem/song by Ray Walker called "When Tomorrow Starts Without Me" was a great comfort and played that at his birthday memorial dinner when giving the kids their gifts from him.

This year of 'firsts' is most difficult, but we try to comfort one another by turning each occasion into a celebration of living memories which make us smile when we think of Carl.

So, after all of that, just be kind to yourself and do whatever you feel works for yourself and your family.

Blessings,

Celeste

🖤💔🙏

Ruthi15 profile image
Ruthi15 in reply to heysunshine

Thankyou so much for your reply I will look in to making things and also do a charity thing every year to keep his memory alive I know their will not be a day goes by that I don’t think of him thanks again xx

Hellebelle profile image
Hellebelle

Dear Ruthi, I offer you my sincere condolences. What a cruel disease. I hope you can get some comfort from knowing that Alan is now at peace.

The picture of you both is beautiful and you can see how much love there is between you. I hope in time you will be able to appreciate all the good times.

Sending a big hug 🫂 to you. xxx

Niknak74 profile image
Niknak74

I'm so sorry Ruthi, it's such a hideous condition and I'm so sad it's taken your lovely husband. I hope in time you can celebrate your life together and remember the wonderful times you both had.

Know you replied to me with the loss of my husband Paul on the 20th September so thank you so much. My heart is with you at this time and sending you hugs xx

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