MSA and me

[Valpolly]

Hi there. I was diagnosed with this in March and am trying to come to terms with this horrible illness. At the moment I still feel a bit like I have been hit by a bus.

I have huge support but have a question for any other sufferers. Does anyone else have horrendous pain in their feet?

Thanks xx

[Primitivepotter]

Hi Valpolly, My husband does have a lot of pain in a couple of his toes which no one seems to be able to explain or treat though rubbing in voltoral cream has helped. It is definitely good to get the pain checked out with the doctor as it could be something treatable like gout !

I am so glad you have good support and it is good to know that you are not alone in this

[Ovx823k]

My wife pain is in her neck. Her neck leans to the right no medication she has been given doesn’t work.

[Helenhooter]

Hi Valpolly and welcome, I have freezing cold feet a lot of the time but most of my pain is cramp. My pain is in my shoulders, neck and back . But my hands hurt an awful lot, like toothache right inside. I find distraction the best cure especially grandchildren, music, TV and sleep (although fitful and restless) gives relief. It is worth checking that there isn't something else going on. Good luckHelen

😊

[brianski]

Hi valpollyIt's good to hear from you but am sorry for the circumstances.

I am a sufferer some 4 yrs but its progressing slowly. Poor gait. Fatigue. Poor bladder control and some slurring.

Would you try orthotic implants and frequent change of footwear and daily soaking in Epsom salts? I have found that you should give everything a try and see what helps

I am currently getting a fairly heavy massage most weeks. For the past 6 months I attend weekly for hyperbaric oxygen therapy in a facility in West Cork v inexpensive .as i say try everything you can access .a good Physiotherapist?

Daily physical activity is so important so you've gotta keep your feet working.

I wish you very well

Brian

[Redjune1]

Yes my husband has pain in his feet, but until reading your post I didn’t realise that it’s something else that’s related to MSA.

[Westcott]

Hi valpolly. Yes yès yes. Makes it eveñ morè difficuĺt to walk.