My wife aged 54 intially detected with atypical Parkinsons in 2018 allopathic medicines did not intially worked so switched to alternative medication ie Ayurveda,homeopathic, neuro acupuncture • Her condition kept going down inspite of her best efforts, she has to be switched over to allopathic medication Syndopa plus 125mg thrice a day clozopalm 5mg no major changes in her MRI from 2018 todate all vital organs ok cocern are she is on bed very stiff body neck is a major issue cannot chew properly passing motion is an issue looking support from you all for better management diet support physiotherapy exercise suggestions : I also pray for good health happiness and blissful life for all the members!
-Harry Cheema
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youcanwin
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Dr. Cecilia Raccagni, a researcher at Innsbruck Medical University, Austria, and colleagues there recently published the paper “Physiotherapy improves motor function in patients with the Parkinson variant of multiple system atrophy: A prospective trial“. I find “exercise is medicine’ for me and it reduces the disease progression. I follow the concept of ‘exercise snacks’ – about 15 minutes of exercise 4 times a day
For my sluggish bowels, I do this massage daily. I also take prune juice with a tablespoon of olive oil – the constipation usually resolves itself well.
This paper is very useful with many suggestions for low BP. Apart from the medication, I found drinking a 500ml of very cold water increases the BP for about 90mins
I have already been admitted twice for aspiration pneumonia. So I had a PEG inserted as I was drowning in my saliva and was not getting enough nutrition. That was a game changer - I now eat only suitable foods for pleasure and my meals and fluids are via the tube
Thank you very kind of you . With support from fellow friends I hope to provide care support to my wife. Very informative information.
Hi Harry welcome to the forum. The MSA Trust charity in the UK can give you free nursing support by email for the different symptoms. Here's the link:msatrust.org.uk/support-for...
They have some very good information sheets too.
Apparently there is a Parkinsons society of India that can also give some limited information, although I guess they won't be specialists in MSA:
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