Caretaker MSA wife india

[youcanwin]

My wife aged 54 intially detected with atypical Parkinsons in 2018 allopathic medicines did not intially worked so switched to alternative medication ie Ayurveda,homeopathic, neuro acupuncture • Her condition kept going down inspite of her best efforts, she has to be switched over to allopathic medication Syndopa plus 125mg thrice a day clozopalm 5mg no major changes in her MRI from 2018 todate all vital organs ok cocern are she is on bed very stiff body neck is a major issue cannot chew properly passing motion is an issue looking support from you all for better management diet support physiotherapy exercise suggestions : I also pray for good health happiness and blissful life for all the members!

-Harry Cheema

[binnyrox]

Hello Harry

I’m very sorry to hear about your wife

I was diagnosed last year with MSA and found resources here very useful.

multiplesystematrophy.org/m...

I will compile the various links I found useful for my symptoms and post it up soon for you

Take care

[binnyrox in reply to binnyrox]

Here they are Harry - hope it helps

BALANCE TRAINING

Dr. Cecilia Raccagni, a researcher at Innsbruck Medical University, Austria, and colleagues there recently published the paper “Physiotherapy improves motor function in patients with the Parkinson variant of multiple system atrophy: A prospective trial“. I find “exercise is medicine’ for me and it reduces the disease progression. I follow the concept of ‘exercise snacks’ – about 15 minutes of exercise 4 times a day

multiplesystematrophy.org/w...

CONSTIPATION

For my sluggish bowels, I do this massage daily. I also take prune juice with a tablespoon of olive oil – the constipation usually resolves itself well.

covidphysicaltherapy.org/vi...

ORTHOSTATIC HYPOTENSION

This paper is very useful with many suggestions for low BP. Apart from the medication, I found drinking a 500ml of very cold water increases the BP for about 90mins

ncbi.nlm.nih.gov/pmc/articl...

SWALLOWING REHABILITATION

I have already been admitted twice for aspiration pneumonia. So I had a PEG inserted as I was drowning in my saliva and was not getting enough nutrition. That was a game changer - I now eat only suitable foods for pleasure and my meals and fluids are via the tube

southtees.nhs.uk/content/up...

My best regards

[youcanwin in reply to binnyrox]

Thank you very kind of you . With support from fellow friends I hope to provide care support to my wife. Very informative information.

[Hidden]

Hi Harry welcome to the forum. The MSA Trust charity in the UK can give you free nursing support by email for the different symptoms. Here's the link:msatrust.org.uk/support-for...

They have some very good information sheets too.

Apparently there is a Parkinsons society of India that can also give some limited information, although I guess they won't be specialists in MSA:

msatrust.org.uk/support-for...

I hope these will be helpful and that everything goes as well as possible for you and your wife.

K🌈

[youcanwin in reply to Hidden]

Thank you very kind of you. Looking forward for more inputs from you. Regards