Is there an alternative treatment to Sinemet ?

[Redjune1]

My husband has been on Sinemet since July and there hasn’t been any improvement whatsoever. He’s constantly dizzy and his consultant told him in a phone appointment that dizziness is always caused by low blood pressure, but last week he went to his gp because it was so bad. He had his BP checked sitting and standing and he had an ecg, all of them were absolutely normal. So his dizziness isn’t caused by low blood pressure. So my question is, is there any other medication if Sinemet doesn’t work?

[FredaE]

Sinemet is most effective for the parkinsonian symptoms and not much goodfor msa c. medication is on a suck it and see basis and what suits me may not suit thee

all

[Hidden]

Hello it's maybe worth a chat with the MSA nurses. my dad has msap and he was on madopar for quite a while, but it didn't really do a lot in the end (which apparently often happens with MSA). It eventually actually started to cause shaking and stiffness ( Parkinson's patients can get this side effect too apparently) so the neurologist phased him off it. He's better without. His spacial awareness was bad on it and I still don't know if it was MSA or the meds, as we can't tell, now he's advanced. Kx

[Redjune1 in reply to Hidden]

Thanks Kay, yes that’s a good idea contacting the MSA nurse. From what I’ve read so far medication doesn’t seem to have much of a success rate, in fact I’ve not read of anyone who it worked for.

[FredaE in reply to Redjune1]

it worked very well for my husband who ended up on a very high dose but only for some symtoms others were either not helped or made worse.

timing was essential

it was a balancing act.

when he could not swallow any more and could not take them he went down hill very fast