Diagnosis Confirmed

[CanAmK]

So the neurologist confirmed the MSA-C diagnosis for my husband, Bart, yesterday. Even though she was leaning in that direction, everything else seems to have been ruled out and now the stark reality it’s facing us. I went to that last everyone in this group for all the help you give everyone because I see you all as the experts because of the life experiences. I will be calling on you all.

[FredaE]

We are all here for you to give whatever help we can

[CanAmK in reply to FredaE]

Thank you so much. I think trying to establish a plan of action is the nest step.

[Yanno]

Feel free to call on us as often as you want.

[CanAmK in reply to Yanno]

Thanks so much. I will.

[TK-67]

We're all here for any questions or help you need. There will always be someone here.

[CanAmK in reply to TK-67]

Thanks so much.

[FredaE]

I think I saw a question from you about low blood pressure - if not you thensomeone else! I can't find it .

I would like to say two things. One is that MSA is a failure of body Control all the things a body normally does on its own without conscious action like blood pressure, peristalsis, widening of the pupils, temperature control are likely to go wrong not because there is anything wrong with the eye for instance but because the brain is either giving the wrong instructions or no instructions. This can be progressive or quite erratic .

also blood pressure is typically too low in the day and too high at night. Allowing that everyone is different of course. I feel that the remark about blood pressure being under control is a bit worrying.

It is standard advice not to sit in the sun or go to hot climates for holidays. Janno has it just right - as usual.the MSA Trust downloads are very useful for this information. it pays tobe well informed as with the best will in the world your medical advisers may not have come across MSA before or realise what a very perverse disease it is.

[CanAmK in reply to FredaE]

No it wasn't me but good information. Thanks.

[weemaisie in reply to FredaE]

Hi there have been really sleepy all day and have a weird feeling in my head, can’t explain it, my blood pressure has dropped. Was wondering if anyone else gets this??my mobility has got worse too, very slow pace.

[vis1]

The expertise-through-experience is second to none in this group. It was invaluable to me and like the others, I hope that we will be able to help with your questions as they arise.

[CanAmK in reply to vis1]

Thanks I plan on being involved much more in this group. My husband has not got on the bandwagon yet but I can appreciate the wealth of knowledge here.

[LaCrosse87]

This is a a remarkable group. Everyone is very supportive.

[CanAmK in reply to LaCrosse87]

I already appreciate everyone's experiential knowledge!