Posts - MPN Voice | HealthUnlocked

MPN Voice

10,531 members • 14,550 posts

All posts for May 2022

What Next?

Bloods okay, joints always sore, Used to that, so accept more. Pain under left ribs, nothing to worry, When, to my GP, I do scurry. Ultrasound is the best way...

Bloods okay, joints always sore, Used to that, so accept more. Pain under left r...

•2 years ago

Effect of stress on PV

I was diagnosed with PV (jak2) in December 2018. I’m on daily Hydroxy and aspirin with the odd venesection and generally my condition is stable. The last...

I was diagnosed with PV (jak2) in December 2018. I’m on daily Hydroxy and aspir...

•2 years ago

Oxygen therapy

Hi guys, I was trying to find in older posts something about oxygen therapy but didn't find anything. My friend recommends me home oxygen therapy, she is using...

Hi guys, I was trying to find in older posts something about oxygen therapy but ...

•2 years ago

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Lower dose versus lower frequency of Peg Interferon

On the Facebook MPN Interferon forum today, a member posted that he had been on Peg Interferon 45 every two weeks for two years but was having some problems,...

On the Facebook MPN Interferon forum today, a member posted that he had been on ...

•2 years ago

ET and raynaud’s symptoms

Does anyone else find they get raynaud type symptoms. I’m newly diagnosed and still trying to separate and work out what is a symptom and what is just my body....

Does anyone else find they get raynaud type symptoms. I’m newly diagnosed and st...

•2 years ago

Meralgia paraesthetica?

Hi my GP thinks I have this and I am waiting results of an MRI. Does anyone else on interferon also suffer with this? Mine only comes on when I’m out walking...

Hi my GP thinks I have this and I am waiting results of an MRI. Does anyone else...

•2 years ago

Thank you

I have been really touched by the number of supportive responses to my update on my chemotherapy/hospital experience a couple of days ago. I can't reply to...

I have been really touched by the number of supportive responses to my update on...

•2 years ago

Do you recognise these symptoms

I have recently found this forum and it is wonderful to hear back from others who have ET and their experiences. I have symptoms periodically that I am not...

I have recently found this forum and it is wonderful to hear back from others wh...

•2 years ago

What’s next!

Hi Guys, sorry I need a moan and I know I should be grateful it’s not the big C but I had a CT, following ultrasounds and pain under my left ribs. It turns...

Hi Guys, sorry I need a moan and I know I should be grateful it’s not the big C ...

•2 years ago

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