Oxygen therapy: Hi guys, I was trying to find in... - MPN Voice

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Oxygen therapy

DariBee profile image
9 Replies

Hi guys,

I was trying to find in older posts something about oxygen therapy but didn't find anything. My friend recommends me home oxygen therapy, she is using home oxygen concentrator. It was recommended for her 2 years old son by a doctor from hospital. Her son's physical and mental development is a little bit delayed and she said the oxygen therapy is making miracles for her son. The therapy should be also very good for people who suffer from fatigue, shortness of breath... it is also good for immunity and mental health. I was wondering if this treatment is recommended for PV patients. Have you ever heard about this in connection with our disease?

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DariBee
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9 Replies
Barbiebreath profile image
Barbiebreath

I have not heard of this but it sounds very interesting. I’d love to know too!

katiewalsh profile image
katiewalsh

I have to use oxygen because my lungs were damaged from blood clots. Adding supplemental oxygen without a doctor overseeing it is very risky & foolish. You need a doctor who can help you test the levels of oxygen in your blood (oxygen saturation) at different times to decide if it will be helpful or harmful. The air we breath is not all oxygen but what you breath through a concentrator is all oxygen. Very dangerous to play around with this. Completely understand your desire for a solution to fatigue. I no longer drink caffeine except when needed to fight my 5pm fatigue (or my migraines). You might try that instead. Good luck

DariBee profile image
DariBee in reply to katiewalsh

Hello. Thank you for your advice. I will consult with my doctor for sure.

Mazcd profile image
MazcdPartnerMPNVoice

hi DariBee, you should speak to your haematologist about this for her/his advice. Best wishes, Maz

SoledadBarcelona profile image
SoledadBarcelona

Yes, I know it but it is not for us. We need to have a CO2 and O2 level balanced. If you can read a book, tell me because if we breath properly, it is the best for us.

SoledadBarcelona profile image
SoledadBarcelona

And you fatigue is due to anither conditions such as thyroiditis, cromosomes, etc Check.

DariBee profile image
DariBee in reply to SoledadBarcelona

hello, yes, you are right fatigue can have many reasons

SoledadBarcelona profile image
SoledadBarcelona in reply to DariBee

This is NO for us. Did you find any papers about this interesting issue?

DariBee profile image
DariBee

Hi Maz, thank you. Yes I will ask my haematologist.

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