Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for January 2020

Life expectancy essential thrombocytosis

Sorry if this upset anyone How long is life expectancy with et I read 33 year if under 60 at diagnosis am only 32

Sorry if this upset anyone How long is life expectancy with et I read 33 year i...

•4 years ago

Is there any insurance agencies in india which provides cover to MPN medicines?

Is there any insurance agencies in india which provides cover to MPN medicines?

Is there any insurance agencies in india which provides cover to MPN medicines? ...

•4 years ago

Is it possible to diagnose which MPN i have without bmb?

Hb:15.7 to 16.2 Rbc: 5.32 to 5.7 Plc: 613 to 790 WBC: 7.80 to 11.70 PCV: 48 to 50 Jak2 +ve EPO:1.6 to 5.80 LDH:189 Ferritin:206

Hb:15.7 to 16.2 Rbc: 5.32 to 5.7 Plc: 613 to 790 WBC: 7.80 to 11.70 PCV: 48 to 5...

•4 years ago

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Venesections and Mobile Chemotherapy Unit

Hello. I was diagnosed with PV some years ago and need a venesection every two months. I live in a coastal town in Somerset. There is a small hospital but it...

Hello. I was diagnosed with PV some years ago and need a venesection every two m...

•4 years ago

PV diagnosis

Hello All, I was diagnosed with PV 3 weeks ago my hematocrit was 59. After 3 phlebotomies my number is 54. I was expecting more of a drop? Anyone know if this...

Hello All, I was diagnosed with PV 3 weeks ago my hematocrit was 59. After 3 phl...

•4 years ago

Upping Hydroxycarbamide dose

Hi all and wishing everyone a healthy, happy 2020! I went for my first Heam check-up on Monday 30th Dec since starting Hydroxycarbomide on the 2nd December -...

Hi all and wishing everyone a healthy, happy 2020! I went for my first Heam chec...

•4 years ago

Prognosis predictor

I’ve posted this before but repost in case it’s been updated. You have to input your details (age, sex, MPN, mutations if all known) and then get your fortune...

I’ve posted this before but repost in case it’s been updated. You have to input ...

•4 years ago

Moving back to UK (On Peginterferon)

Hi all, I am currently on bi-weekly Pegasys Peginterferon injections here in HK. I am planning on moving back to the UK this summer. Does anyone know or have...

Hi all, I am currently on bi-weekly Pegasys Peginterferon injections here in HK....

•4 years ago

MF - good article reviewing mutations and options

https://www.nature.com/articles/s41408-019-0236-2#Tab1 Heavy going but encouraging, shows how far we have come over last 10 years. Best wishes for 2020

https://www.nature.com/articles/s41408-019-0236-2#Tab1 Heavy going but encouragi...

•4 years ago

Thrombocytosis

Hi everyone here I am glad to be a member of this MPN Voice I really like to hear others too suffering from this blood disease thrombocytosis I have high...

Hi everyone here I am glad to be a member of this MPN Voice I really like to hea...

•4 years ago

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