Hi all and wishing everyone a healthy, happy 2020!
I went for my first Heam check-up on Monday 30th Dec since starting Hydroxycarbomide on the 2nd December - as a recap I'm PRV Jak2+ since 2012, a stroke survivor and venesection is no longer an available option.
Sadly taking HU hasn't worked on lowering my Hct... so they've upped the dose from .5mg daily to .5 five days a week and 1mg for the remaining two.
It's so frustrating! There was no change in the Hb/Hct my hemotcrit is still sticking at a stubborn .48 - I make sure to drink 2+ litres of water every day, I only eat fresh healthy food - lots of veg & fruit, and I'm a non-smoker!... However WBC and Plt have lowered a bit. My Platelets are now 231 from Nov 389, WBC 5.8 from Nov 8.7.
So, I have two questions - as I take my first 1mg of Hydroxycarbamide this evening!
* Is it normal to have to take a higher dose Hydroxycarbamide after only being on it for a few weeks?
* How low can my WBC & Platelets go before I start to feel REALLY ill?
I trust my Consultants decision, but it doesn't stop the worry, so I'll keep at the meds in the meantime.