Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for September 2018

1st visit to Nurse specialist after starting Hydrea

Hi All, I hope this post finds you all as well, as can be. Its not yet 2 months since I was diagnosed with PV Jak 2 Pos, platelets had jumped to in the...

Hi All, I hope this post finds you all as well, as can be. Its not yet 2 months...

•6 years ago

Evening all 👋

Hi everyone! Bit of an up and down week for me, my part time job quite literally went up in flames last week, when Primark Belfast caught fire and the...

Hi everyone! Bit of an up and down week for me, my part time job quite literal...

•6 years ago

Anyone with Post ET/MF & Budd Chiari?

I'm 50 and was diagnosed with ET at 22. I took Hydroxyurea and Agreline (sp?) early on but after several DVT's, embolism and PE's I was put on Warafin and...

I'm 50 and was diagnosed with ET at 22. I took Hydroxyurea and Agreline (sp?) e...

•6 years ago

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How many on the forum in the west midlands?

Hi,all mpn'ers,just came across an old post about how a support group was set up,i was wondering if anyone knows if their is one close to me? I live in west...

Hi,all mpn'ers,just came across an old post about how a support group was set up...

•6 years ago

Dry Mouth

Hi Friends. Just a follow up regarding waking up in the night with a dry mouth, I’ve found if you apply lip balm or something similar to your lips before...

Hi Friends. Just a follow up regarding waking up in the night with a dry mout...

•6 years ago

Travelled 1000miles to see a good hemato-oncologist

Finally anxiety got me and made me travel around 1050 mile to see a good hemato-oncologist.He did some tests like abg and etc etc....only to tell that you...

Finally anxiety got me and made me travel around 1050 mile to see a good hemato-...

•6 years ago

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