Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

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PIP application any advice

I have reduced my hours at work due to my Fibromyalgia. A friend suggested I should apply for PIP but I am still working. Has anyone successfully managed to...

I have reduced my hours at work due to my Fibromyalgia. A friend suggested I sho...

nellie_deany

•6 hours ago

2 Replies

Medication

Does anyone know if there is a different medication rather than codeine as I am on a high level now and I am really very tired. Unable to do anything.

Does anyone know if there is a different medication rather than codeine as I am ...

Africanmonkey

•1 day ago

9 Replies

Struggling to manage fibro flare ups

Had alot of stress and upset in my life recently and it's caused a massive flare up of my fibro to the point i had to purchase a walking aid as my left leg has...

Had alot of stress and upset in my life recently and it's caused a massive flare...

Pinklover89

•2 days ago

6 Replies

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Getting nervous

I’ve had a text message this morning from DWP. They’ve arranged a telephone assessment for my PIP application at 11am on 2nd August. It’s good that things...

I’ve had a text message this morning from DWP. They’ve arranged a telephone asse...

Gulfstream_Maggie

•3 days ago

9 Replies

Happy Friday to everyone🤗

I want to wish everyone a good weekend. I'm in a lot of pain but my Fibro friend's have been cheering me up..Love to you all, Hugs Dawn 🤗

I want to wish everyone a good weekend. I'm in a lot of pain but my Fibro friend...

Smilesalot

•3 days ago

7 Replies

Back from hospital

hello everyone, I hope you are all as well as you can be. I would like some advice please if anyone can help. My medical history is fibromyalgia,...

hello everyone, I hope you are all as well as you can be. I would like some adv...

Wumm

•4 days ago

11 Replies

Occupational health

hi I have just had occupational health assessment and the advised I am not fit for work for the foreseeable future due to Fibro lupus long covid I have...

hi I have just had occupational health assessment and the advised I am not fit...

Geeforce99

•6 days ago

1 Reply

Heat Wave

I’m learning that not only can I not handle cold but, can’t handle heat either! So happy we have AC. I’ve not been outside today except to water some plants...

I’m learning that not only can I not handle cold but, can’t handle heat either! ...

ratoncita

•6 days ago

12 Replies

UC and Fibromyalgia

Hi All, I am in the process of moving to UC from tax credits. I get enhanced PIP, I've been unable to work for many years, and this was OK whilst on tax...

Hi All, I am in the process of moving to UC from tax credits. I get enhanced PIP...

Vixen65

•6 days ago

1 Reply

Worn out

I am a carer for a man who is bed ridden 24 7 unless I get him out of bed for his exercise . He was supposed to be going to a care home for a rest for 2 weeks...

I am a carer for a man who is bed ridden 24 7 unless I get him out of bed for hi...

Africanmonkey

•6 days ago

20 Replies

What you can do.

HI 1 make a tool box to hold your information. Buy a big book called Fibromyalgia & Chronic Myofascial Pain Syndrome a survival manual Devin Starlanyl...

HI 1 make a tool box to hold your information. Buy a big book called Fibromyal...

dellydog

•7 days ago

3 Replies

Carbamazapine help!

Hello peeps, I’m in terrific pain in my mouth and face, doc thinks could be Trigeminal neuralgia. Honestly feels like Jaw is splitting at hinge. Anyone else on...

Hello peeps, I’m in terrific pain in my mouth and face, doc thinks could be Trig...

Lovecavatese

•7 days ago

21 Replies

Can anyone help

hi had fibro now for about 6 years used to be on smitryptylene but came of that. I’ve been getting constant headaches and fuzzy feeling on my head. Any advice...

hi had fibro now for about 6 years used to be on smitryptylene but came of that....

Bar123ney

•7 days ago

14 Replies

Pleased to say and also an easy way to explain Fibro

hey all I think this is my first post on here, but for a couple of years I have taken great comfort from you all that post. It’s made me feel less alone and...

hey all I think this is my first post on here, but for a couple of years I hav...

Winnie123xxx

•9 days ago

10 Replies

Social prescribing

Hi has anyone had help from a social prescriber, and how can they help me with fibro and other things because my doctors at the moment arent very good and...

Hi has anyone had help from a social prescriber, and how can they help me with f...

fibrogirl41

•9 days ago

11 Replies

How long can flare ups last?

Hi,I was diagnosed with Fibromyagia in 2015. I have had afew flare ups which lasted afew days but have had a flare up 2wks ago. Visited Gp who suggested...

Hi,I was diagnosed with Fibromyagia in 2015. I have had afew flare ups which las...

Nanna2023

•9 days ago

11 Replies

Just wondering if anyone else is experiencing this too?

Hello everyone, I hope you are having a better day. I’m not sure if this is a fibro thing or something else? I’ve had fibro and CFS/ME for over 30+yrs but this...

Hello everyone, I hope you are having a better day. I’m not sure if this is a fi...

Sarahvit

•10 days ago

12 Replies

Exercise anyone?

Hi, I have just turned 29 (In June). I was diagnosed with Fibromyalgia in November 2021. I have today thought I would start 20min light exercise for mobility...

Hi, I have just turned 29 (In June). I was diagnosed with Fibromyalgia in Novemb...

JessFM

•10 days ago

12 Replies

prednisolone and fibro

Hi all , I have been put on prednisolone for a flare of my polymyalgia rheumatica recently and it’s really helping with my Fibro . Now I know it’s not really...

Hi all , I have been put on prednisolone for a flare of my polymyalgia rheumatic...

Molliesmamma

•13 days ago

16 Replies

Crying sometimes and worrying about jobs...

Hello no need to reply im just ranting, i dont know why i keep crying sometimes and worrying about getting a job i am trying the hospital and places near me...

Hello no need to reply im just ranting, i dont know why i keep crying sometimes ...

fibrogirl41

•13 days ago

14 Replies

What the chuff

Arrrggghhh, What the chuff, I have been trying to go to the hairdressers for some time now, I really need a trim and colour, What with the silvers poking...

Arrrggghhh, What the chuff, I have been trying to go to the hairdressers for s...

Debsdelight72

•13 days ago

15 Replies

Looking for Physio or Personal Trainer in Edinburgh Area with Training or Experience Working with Clients Who Have Fibromyalgia

Greetings all, I am in the Edinburgh area, have fibromyalgia and am looking for a physio or personal trainer who has experience working successfully with...

Greetings all, I am in the Edinburgh area, have fibromyalgia and am looking for ...

MommaK75

•13 days ago

4 Replies

Flare after tooth out. No tooth fairy!!!

I had a tooth out in bits and pieces on Friday. Then Saturday a bad flare kicked off🤔How are all my Fibro friend's doing in this v changeable weather ? I feel...

I had a tooth out in bits and pieces on Friday. Then Saturday a bad flare kicked...

Smilesalot

•14 days ago

5 Replies

Medication.

After going to the doctor's yesterday I was told that if you are on amitriptyline it can cause dementia, has anyone else been told this. I'm quite concerned as...

After going to the doctor's yesterday I was told that if you are on amitriptylin...

Chancechance

•14 days ago

24 Replies

Blue badge

Hi all, Just posting as i am nervous about having my blue badge assessment tomorrow. My main anxiety over this......... that i will have a reasonable day and...

Hi all, Just posting as i am nervous about having my blue badge assessment tomor...

Sal87

•14 days ago

9 Replies

Sorry can't spell.

Has anyone become naff at something they were good at before Fibro? I used to be really good at spelling, And now??? 💩💩💩💩💩 I'm actually very...

Has anyone become naff at something they were good at before Fibro? I used to b...

Debsdelight72

•15 days ago

44 Replies

feeling down

A months ago my mobility was not very good struggling to walk far ,so after a chat with physiotherapist and watching a new treatment ideas for fibromyalgia.i...

A months ago my mobility was not very good struggling to walk far ,so after a ch...

Thornthorpe

•17 days ago

10 Replies

Just wondering ……

For years I’ve noticed that I bruise easily. I’ve found bruises on myself for no reason or that I can’t remember hurting myself in that place. So I was...

For years I’ve noticed that I bruise easily. I’ve found bruises on myself for no...

Gulfstream_Maggie

•18 days ago

10 Replies

Tips for Managing/Improving Symptoms/Working Full-Time?

Hi everyone! So I might be starting a new full-time job and I would really love if you could send me all of your tips for anything and everything that has...

Hi everyone! So I might be starting a new full-time job and I would really love ...

ExploringPanda

•18 days ago

7 Replies

leg pain

hi I’ve been suffering with really bad calf cramp and spasms for around a year now doctors put me on pramapexole for restless legs. I used to feel it on and...

hi I’ve been suffering with really bad calf cramp and spasms for around a year n...

Paula1jj

•20 days ago

25 Replies

Write a post or ask a question

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

PIP application any advice

Medication

Struggling to manage fibro flare ups

Getting nervous

Happy Friday to everyone🤗

Back from hospital

Occupational health

Heat Wave

UC and Fibromyalgia

Worn out

What you can do.

Carbamazapine help!

Can anyone help

Pleased to say and also an easy way to explain Fibro

Social prescribing

How long can flare ups last?

Just wondering if anyone else is experiencing this too?

Exercise anyone?

prednisolone and fibro

Crying sometimes and worrying about jobs...

What the chuff

Looking for Physio or Personal Trainer in Edinburgh Area with Training or Experience Working with Clients Who Have Fibromyalgia

Flare after tooth out. No tooth fairy!!!

Medication.

Blue badge

Sorry can't spell.

feeling down

Just wondering ……

Tips for Managing/Improving Symptoms/Working Full-Time?

leg pain

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