Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

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Newly diagnosed

I was diagnosed with fibromyalgia in the autumn of last year. I was diagnosed with polymyalgia rheumatica in 2018 and have been taking prednisolone and...

I was diagnosed with fibromyalgia in the autumn of last year. I was diagnosed w...

EastMidsLass

•2 days ago

6 Replies

You gotta laugh!

Pain and tingles.Shooting, jabbing, gnawing, sharp, and travelling around each and every bone joint and muscle from head to toes. I grab my arm pain, rub it...

Pain and tingles.Shooting, jabbing, gnawing, sharp, and travelling around each a...

SeroposotiveSimon

•3 days ago

4 Replies

Working full-time and studying

Anyone else feel frustrated as a full-time employee while studying for a qualification related to work? I work in finance so both my job and the course I'm in...

Anyone else feel frustrated as a full-time employee while studying for a qualifi...

OmorfaOneira

•3 days ago

4 Replies

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Dementia adverts

Does anyone else feel upset when hearing the dementia advert that keeps saying you die again and again and again? This is how I feel physically nearly every...

Does anyone else feel upset when hearing the dementia advert that keeps saying y...

Fibrooh

•3 days ago

16 Replies

Not Thriving, Just Tired

I never usually post on anything like this, and honestly, I don't know what I am actually looking for by posting but I feel at a complete low point at the...

I never usually post on anything like this, and honestly, I don't know what I am...

LurkingWithTea

•4 days ago

13 Replies

Child like

I am asking you all if feeling like a child can be part of fibromyalgia. I have been feeling like this for a while now and just thought about looking into it

I am asking you all if feeling like a child can be part of fibromyalgia. I have ...

Africanmonkey

•4 days ago

9 Replies

ZZZZZZZZZZ

Lovely people, I fell asleep this morning at 10 am after not sleeping for 32 hrs and Hubby woke me up at 6pm, Looks like It's gonna be a rough night 🥹🥹🥹

Lovely people, I fell asleep this morning at 10 am after not sleeping for 32 hr...

Debsdelight3108

•4 days ago

5 Replies

Hypermobility

I have recently been informed that I have hypermobility in addition to fibromyalgia and osteoarthritis, should I be discussing this with my GP? Also would...

I have recently been informed that I have hypermobility in addition to fibromyal...

Survivor53

•5 days ago

3 Replies

Duloxetine experience

Having taken ten weeks to gradually come off Gabapentin - not easy but thank goodness it’s over - I’m into my second week of Duloxetine 30mg with, so far, not...

Having taken ten weeks to gradually come off Gabapentin - not easy but thank goo...

BonnieMagic

•5 days ago

7 Replies

exciting news!

Hey fellow warriors, I hope you all have had the best day possible and be the kindness and love that comes your way😊 Most of you will know I have been on a...

Hey fellow warriors, I hope you all have had the best day possible and be the k...

Debsdelight3108

•5 days ago

9 Replies

strange symptom

ive been having a few strange symptoms just wondering if anyone else has these. Dripping nostril but not having a cold. Always feeling like i have phlgem and...

ive been having a few strange symptoms just wondering if anyone else has these. ...

Paige1999

•6 days ago

7 Replies

pain down one side of your body

Hi, I wonder if anyone suffers from pain mainly on one side of their body. Although I am in constant pain all over, my right side is much worse. From my head...

Hi, I wonder if anyone suffers from pain mainly on one side of their body. Alth...

196912

•6 days ago

10 Replies

Does anyone suffer with the dreadful exaulstion with fybromylarga please

I suffer dreadfully with this problem

shazzafloyd

•6 days ago

49 Replies

new PIP terminology?

What is a therapeutic source? Can anyone explain this? Someone I know asked me this same question apparently it’s the new PIP terminology, anyone? Weird...

What is a therapeutic source? Can anyone explain this? Someone I know asked ...

Lovecavatese

•7 days ago

9 Replies

PIP adding to it

Hi does anyone know the procedure for adding more conditions to PIP ?

Sleepyhead_

•8 days ago

8 Replies

Coming to terms with having Fibro

Afternoon and hello all. Need some advice and guidance if possible on embracing the new me for what I can do. In February 2023 I was diagnosed with...

Afternoon and hello all. Need some advice and guidance if possible on embracing ...

Hidden

•8 days ago

8 Replies

has Amitriptyline ever made your pain worse?

right my fellow Fibro friends, I need some advice! so was taking Baclofen, but came off it as I didn’t see any help…. That week I was given Amitriptyline, we...

right my fellow Fibro friends, I need some advice! so was taking Baclofen, but ...

JoLouise88

•8 days ago

19 Replies

burning mouth syndrome related to fibromyalgia

I’m just wondering if anyone else has had burning mouth syndrome ? (roof of mouth looks like a bruise but it burns and stings continuously) I have had it for...

I’m just wondering if anyone else has had burning mouth syndrome ? (roof of mou...

Lh1979

•8 days ago

11 Replies

GP letter

Hi, Does anyone know how you go about getting a letter about your diagnosis of fibromyalgia and how it affects you from your gp?

Hi, Does anyone know how you go about getting a letter about your diagnosis of f...

CookieMunch22

•8 days ago

2 Replies

What are we supposed to do?

So given our condition is lifelong and incurable it is pointless going to see the GP but DWP apparently now ask in a pointed fashion how many times have you...

So given our condition is lifelong and incurable it is pointless going to see th...

Fibrooh

•9 days ago

15 Replies

Physiotherapy

Did anyone else find seeing a physiotherapist for the pain a bit useless? I had an appointment with one recently and he pretty much talked over me the whole...

Did anyone else find seeing a physiotherapist for the pain a bit useless? I had...

OmorfaOneira

•10 days ago

20 Replies

help with Memory

can anyone help I’ve had fibro for past 4 years. I work full time and recently my memory is getting really bad. It’s making me feel incompetent and terrible....

can anyone help I’ve had fibro for past 4 years. I work full time and recently m...

Bar123ney

•10 days ago

12 Replies

LIVING WITH FIBROMYALGIA

A cake walk it is not. A walk in the park it is not. A cinch it is not. SO to give you an insight into what it really is like ........ Please do check out...

A cake walk it is not. A walk in the park it is not. A cinch it is not. SO to g...

Anthonyh7

•11 days ago

9 Replies

TD off

Oh Boy! Just when you think it's going well! The people who are doing our wet room have come for little tweaks and more measuring, They are asking for a...

Oh Boy! Just when you think it's going well! The people who are doing our wet ...

Debsdelight3108

•11 days ago

14 Replies

New member intro

Hi thanks for signing me up. I've had fibromyalgia since 2010, currently taking Tramadol but looking to change to something non-opioid. Considering Nefopam as...

Hi thanks for signing me up. I've had fibromyalgia since 2010, currently taking ...

BlueHippopotomus

•11 days ago

13 Replies

Not fit to work "X"

Hi everyone, I’m new here and really need some advice. I’ve been signed off as “Not fit to work” by my doctor since Nov 2024 due to ongoing health issues. On...

Hi everyone, I’m new here and really need some advice. I’ve been signed off as ...

TommyShemik

•12 days ago

18 Replies

Sweating?

Hi, I do have fibromyalgia... although not as bad as some peoples, What I find very difficult is the amount of hot sweats... day in day out. Has anybody...

Hi, I do have fibromyalgia... although not as bad as some peoples, What I find v...

saj01

•13 days ago

12 Replies

Newbie

I’m new to this form and hope for some views. I am under rheumatology for severe reynaulds and digital ulcers. Had ileprost which did not work and now on...

I’m new to this form and hope for some views. I am under rheumatology for severe...

Spook257

•13 days ago

4 Replies

zopiclone

For those who take zopiclone, I have taken it for 15 years and tried coming off very slowly and had awful rebound/side effects. I was advised it’s easy to come...

For those who take zopiclone, I have taken it for 15 years and tried coming off ...

Choccilover

•14 days ago

15 Replies

Liquid morphine

I have Fibro and other problems, but, following a fall in the garden, it was established that as well as Osteoarthritis, I had damaged my knee. Six weeks ago I...

I have Fibro and other problems, but, following a fall in the garden, it was est...

GillieGG

•15 days ago

13 Replies

Write a post or ask a question

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

Newly diagnosed

You gotta laugh!

Working full-time and studying

Dementia adverts

Not Thriving, Just Tired

Child like

ZZZZZZZZZZ

Hypermobility

Duloxetine experience

exciting news!

strange symptom

pain down one side of your body

Does anyone suffer with the dreadful exaulstion with fybromylarga please

new PIP terminology?

PIP adding to it

Coming to terms with having Fibro

has Amitriptyline ever made your pain worse?

burning mouth syndrome related to fibromyalgia

GP letter

What are we supposed to do?

Physiotherapy

help with Memory

LIVING WITH FIBROMYALGIA

TD off

New member intro

Not fit to work "X"

Sweating?

Newbie

zopiclone

Liquid morphine

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