LIVING WITH FIBROMYALGIA

[Anthonyh7]

A cake walk it is not. A walk in the park it is not. A cinch it is not.

SO to give you an insight into what it really is like ........

Please do check out this excellent video from Dale Rockell in which he gives us two main takeaways

... youtube.com/watch?v=2IppbaE...(Not working as expected?)

1. People like us who live with chronic conditions like my ITP and Fibromyalgia DO HAVE hobbies, interests, passions, talent and creativity.

2. With Fibromyalgia you just never know when it is going to give you a random reminder of its' impact on just about every part of your body and system(s).

Despite it all we keep on keeping on and living a positive, creative and interesting life.

Please do LIKE the Video and SUBSCRIBE to the channel as it all helps to spread awareness for our enigmatic, riddle of a syndrome.

[desquinn Partner Volunteer FMAUK Trustee]

It is is good to see Dale still following his passion and advocating for men with fibro.

[Anthonyh7 in reply to desquinn]

Yes desquinn we have to keep following and participating in the things that are important to us and also take up new things. We can't let FMS rule everything we do , we can't be FMS, we are more than that. Best wishes Anthony

[KimiJay]

Thanks so much for posting this viewing. A7. Hubs tried to get the eclipse on white paper via two negatives I think it was, but it was too hazy and no kind of image at all showed through... Unwisely I could not stop myself taking a couple of squints at the sun through my Eucalyptus tree but too much passing cloud/haze so now at least I know much more what the eclipse was like. - Too much cloud for the moon at dawn partial one too. Cat kindly got me up to look at that but nothing to see! -

Re: Eclipse of sun ... Good to see the lovely images of people enjoying the canal and I enjoyed seeing the mysterious runner in the trees in one of the shots! - The second treat I've had today being able to view a nice walk as have also this morning been driven out to see acupuncturist - also over some lovely countryside with trees now in bud and coming alive... Fairly housebound now at 78 but risked going out on a decent walk last week in the sun and slept quite well that night, but I so understand where Dale Rockell was coming from as my own diagnosis came after pushing myself to get out for a walk at the end of winter in 2011. Was shocked to find I unbelievably had no strength at all left to climb a simple stile to continue on the footpath. Was saved from potential hypothermia by the fact that the field I was in was unfenced and although all I wanted to do was lie down and rest, I managed to drag myself to the road for hubs to rescue me in the car because it was only a couple of hundred yards. - That memory of total inertia is always there in the back of my mind and the loss of freedom is not easy to deal with emotionally, so I wish to heap much gratitude to those who can give voice and demonstrate what it is like to lose your legs. Personally, I can't wait for a cure!

[Anthonyh7 in reply to KimiJay]

Yes for me KimiJay it is just encouraging and refreshing to know that we can still be productive, positive about our passions and develop (no pun intended) new interest too despite this horrid syndrome. We have to be more than our condition.

[KimiJay in reply to Anthonyh7]

Thanks for your reply. We certainly do have to be more than something and there are always challenges that need some creativity in an unexpected direction. The world needs even the bit that we can offer and people on this site do do some interesting stuff, plus it's also a good cat lovers space!!! Have a good summer whatever you do next.

[fibo]

Well I went out for dinner on Saturday 4.30 to 7ish 4 days later still trying to recover I'm in a wheelchair out of the house to save energy doesn't work 🙃 but can't walk, sat in bed on Wednesday morning at 10ish trying to get up and failing 😱

[Yassytina FMA UK Volunteer]

Thankyou Anthonyh7 for posting this video , , we try and get as much as we can out of our hobbies I love gardening and growing in my greenhouse , it is becoming more and more difficult now , 15minutes maybe each day ,abit more on some days with gap days in between , seems only small amounts can trigger widespread pain and pay back the next day 🤣but I refuse too give in as the Winter months seem too drag on and being indoors for 6 months as I cannot tolerate the cold it seems these days . People will never realise how hard physically it is for a man suffering with fibro and putting on a brave face too the outside world . Take care and keep fighting for what you love too do in life .

[KimiJay in reply to Yassytina]

Oh yes!Hasn't it been a long, dark and gloomy winter this year and yes, it's still a vile and horrible cold at night especially, in spite of the mostly continuous warm smiles of the sun this week. I have also thought that this year the cold has had a nasty, persistent, stinging sort of edge to it. - Also our 'dear' boiler packed up again so I've sometimes been sleeping downstairs where the fireplace is, much to the approval of the cat. - (Think the central heating will be fixed this week now our heating eng friend has the new part for it.) - Surprisingly though, I have also, suddenly, felt moved try to do little bits in the garden now. Am backed up by a lovely lady gardener who puts in two hours for me on it on a Monday. (She's a Demon Weeder too!)

I wonder if primroses and snowdrops have been amazing for you too this year, Yassytina? - More insects too and yesterday, I rescued a bee who must have flown in and was half dead on the floor. Got it on to some paper and tipped it into a handy daffodil opposite the sliding door. From half dead, it started scrambling up the stamen inside it and began nibbling around and when I looked later it had buzzed off. Very satisfying! - Hope your Greenhouse thrives this year. Mine is falling apart. May WE ... 'not' fall apart from negative weather from now on and nice Nature give us it's cure. Have a good spring and summer. KJ 🏵️🌹🥀🌺🌻🌼🌷

[Sarahvit]

Thank you for sharing this video Anthony. He described some symptoms I have been experiencing but didn’t know what was causing them. Maybe it is just a fibro thing causing the brain “short circuit”. He mentioned balance issues and legs giving out.