You gotta laugh!

[SeroposotiveSimon]

Pain and tingles.Shooting, jabbing, gnawing, sharp, and travelling around each and every bone joint and muscle from head to toes.

I grab my arm pain, rub it for as long as I can but the pain runs to somewhere else. Sometimes I can't rub because the RA has damaged that joint and its tooooo painful. Then the transient pain jumps to a foot, then a knee and across to the back or the shoulder. Then into my jaw, oh no...my eyes are hurting, the tinnitis volume has passed normal interference level into screaming. The constant headache at the base of my skull just races over the whole head as if a tight swimming cap has just been put on. It THROBS, low intensity to high intensity.

Oh! the pretty flashing lights are too much now, even woth my eyes closed. My mouth starts to over salivate, breakfast is rising to my mouth..

I stumble to the toilet to eject breakfast, and my morning RA meds....

(Mental note to self..breakfast makes me sick so avoid it).

I really can't understand what your asking me darling, the lights are so bright and I'm cold and shivering and now everything is tight its really painful just standing here.

Double darn it, these jelly legs are starting with the sharp jabbing electro back tingles followed downward to hip, buttock and down the front and back of the leg muscles. Wobbly legs like I've not eaten for days. My right groin aches like nothing on earth. Ex hernia pain, deep in abdo. I feel sick and have to sit with my head between my knees.

I don't feel right.

Whoops, breakfast and this time number 2's.

Was anyone else always told by loving family members (conditioned), it just a flesh wound? No matter what the specialist quacks may say.

So. I scarified my garden, for 3 days doing all the reccomend things like aerating etc with the modest tools available.

Pretty hard physical work for someone who is fit.

On the fourth day I spread the soil and seeded the garden. Geezzz I needed a beer but none in stock.

It was this point I discovered my jelly legs.

On the fifth day I was in A+E telling them that my instability/inability to walk and all the pains are after all just a flesh wound.

I realise there not superficial flesh wounds and that I cant 'work through' the pain now.

Seroposotive RA seems to have gifted me a tough challenge along with all the Co morbidities. I have heard it is the worst most annoying one to have.

Anyway.

A+E gave antibiotics with instructions to immediately stop Dmards until the course finishes, and in my forgetfulness no Dmards for the last 3 weeks. No Paracetamol as my kidneys hurt. I guess I'm detoxed of RA drugs apart from Rituximab. Brain scan on Friday but cannot remember why. I was awfully confused!

Question is ...what pain relief for me for Fibro when I go back to dmards, which I assume I need to do ASAP.

I have been on Naproxen for 10+ years, worried!

Next Doctors appointment is 14 th May and no one else can prescribe. How to get around this causes stress, stress for me equals PAIN!!!

Anyhow, it's Spring, the grass I planted is looking great AND we have a kitten arriving Friday.

So much to be thankful for including my wonderful wife wh regularly ventures to the shops to keep me supplied with Earl Grey tea.

Bit of a ramble, thoughts don't flow easily, in a logical or lucid manner and I can't type fast.

[Fibrooh]

I think you express very well what we live with. When we tell a doctor we have pain(s) for instance its probably impossible for them to imagine what that is like when its wrapped up with 5 other pains, brain fog, anxiety, fear, dizziness, migraine, lack of sleep and extreme fatigue to name a few.

[SeroposotiveSimon in reply to Fibrooh]

It is just so hard sometimes to verbalise everything, especially when we are in pain or foggy or both.It really doesn't help if the GP hasn't experienced pain.

Maybe doctors should spend a week undergoing 'Klingon Pain Sticks'. (Star Trek).

[Gooddaysagain]

I used to describe it to friends (who asked me to "point to where it hurts"!?!) as feeling light a Christmas Tree with its led lights switched to 'Roving flashes'.

Ho hum...

Another of those exciting little gifts that FM brings.

I send gentle hugs and warm wishes,

dee

[SeroposotiveSimon in reply to Gooddaysagain]

Dee.Perfectly clear and concise explanation.

Can I use that with some of my super fit testosterone techie friends?

Thank you for the gentle hugs and warm wishes.

May I reciprocate with some good vibes to you and yours.

[Applespearspeaches]

your really are trying to get on with life and endure the pain , I’ve realised although on minimum meds now at the moment!! That when we’re in pain we tense up more and this I think increases the pain !! So I do take 1 naproxen at night with 1 amitriptyline & 1 paracetamol & cocodamol , if I can completely relax and get a good nights sleep that helps me through the next day , I’m also on my feet all day , I think you just have to find your own little remedy that works for you good luck 🤞🏼

[SeroposotiveSimon]

You know, I have been lucky enough to be medically retired with a modest pension.So that means that I had the opportunity to remove myself from the 'rat race'.

It was this 'rat race' that caused a lot of the issues I have, and see others struggling with. (25 yrs C.Service as EO).

Covid lock down was the most peaceful time for me.

A lot of people also retired from the rat race realising their world was running on burnout all day every day. What's the point of living like that? some things have to change.

I suspect all the fibro peeps would like opt out as I did but there not in a position to do so. That's why it is so cruel that our Govt are making it so much harder to live with the fear of cash cuts.

All this stress is not good, it won't get people back I to work but just make thi gs and people worse .

The media do not help either.

I have no soloutions, but advice to those in power.

Stand back from that knee jerk reaction to cut benefits, consider the FULL implications of your action and go bully non taxpayers and tax evaders for the cash you need.

Bullying and threatening the disabled is not a good look for a government.

It smacks of eugenics.....

Stay calm out there, put the kettle on.

Time for tea