Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

60,320 members•67,537 posts

All posts for February 2025

Review call

hi all, just finished my dreaded pip phone call. It was for review. It took one hour thirty eight minutes. Health worker sounds not that bad and my son was...

hi all, just finished my dreaded pip phone call. It was for review. It took one...

Fshak

•2 months ago

8 Replies

Do I have Lupus or Fibromyalgia???

Hey all!!!!! I was diagnosed with lupus in November 2023 in Sri Lanka after consulting three rheumatology specialists. They confirmed the diagnosis, and I was...

Hey all!!!!! I was diagnosed with lupus in November 2023 in Sri Lanka after cons...

Abarna

•2 months ago

10 Replies

Getting the point across

Hello, I often read here and respond too members like myself who find it hard getting the point across how Fibro (let alone other health conditions🤣) can...

Hello, I often read here and respond too members like myself who find it hard g...

Yassytina

FMA UK Volunteer•2 months ago

31 Replies

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Feeling useless

I was just wondering if anyone else has had problems showering? I get so dizzy in the shower so I usually have a wash instead. And every part of me that’s...

I was just wondering if anyone else has had problems showering? I get so dizzy i...

9jababe

•2 months ago

14 Replies

Electric shocks in left side from the groin to leg and foot

I often feel like if someone shocks me with an electric current, it is excruciating it starts in the groin and goes down to under my foot. It does not last...

I often feel like if someone shocks me with an electric current, it is excruciat...

Demeb4dat

•2 months ago

6 Replies

so many qu’s!!

is Fibro really classed as degenerative? can it ever get better and does it always get worse?

is Fibro really classed as degenerative? can it ever get better and does it alw...

Hidden

•2 months ago

9 Replies

Pip review review

Hi all me again. Any suggestions regarding "providing proof" for a pip review . I've had pip for 12 years and nothing has changed . Been a little worse but my...

Hi all me again. Any suggestions regarding "providing proof" for a pip review . ...

Mrdiagnosis

•2 months ago

14 Replies

The Review Team

Hi all, I've just answered a call from an 0330 428671 number . It said this is the review team but no one is available to take your call. I googled it but no...

Hi all, I've just answered a call from an 0330 428671 number . It said this is t...

Mrdiagnosis

•2 months ago

20 Replies

super sensitive skin

Hi everyone, I have fibromyalgia, had it for 5 years now, I’m wanting to know to what degree do others suffer with their skin? I have 3 little dogs , I have...

Hi everyone, I have fibromyalgia, had it for 5 years now, I’m wanting to know to...

Lovecavatese

•2 months ago

22 Replies

pip assessment and new medication

Good morning everyone , I know some of you may be asleep or awake … I’m the latter lol @ 3am Quick advice if anyone has had similar experience. So had....

Good morning everyone , I know some of you may be asleep or awake … I’m the la...

Noura1985

•2 months ago

5 Replies

Gp phone call

My gp will calll tomorrow 2-6 fingers crossed It goes well my wife will also be listening in the bute of a mobile Loud speaker stay safe all

My gp will calll tomorrow 2-6 fingers crossed It goes well my wife will also be ...

Pastafox

•2 months ago

5 Replies

Nauseous all of the time

My sister has been suffering with nausea. When the problem started she would have frequent bouts of nausea. (At least one bout a day.) But, the number of times...

My sister has been suffering with nausea. When the problem started she would hav...

Twin4Life

•2 months ago

15 Replies

Living with fibromyalgia

It's hard going

julie51

•2 months ago

10 Replies

Hi all

any 1 else feel they have hot burning needles pushed into there anywhere they have flesh sometimes it reaches the bone Am currently wearing a hot spiky zoro...

any 1 else feel they have hot burning needles pushed into there anywhere they h...

Pastafox

•2 months ago

2 Replies

Fibromyalgia hand book

Hello .I got diagnosed with fibromyalgia February last year . I still work 5 days a week . Last year some one on this group sent me the link to the...

Hello .I got diagnosed with fibromyalgia February last year . I still work 5 day...

Tommygurl

•2 months ago

16 Replies

Hi everybody

i was involved in a car accident Feb 2022 and since then have had this pain which has been always said to me oh you have chronic pain which I'm not stupid pain...

i was involved in a car accident Feb 2022 and since then have had this pain whic...

LFC4eva_

•2 months ago

8 Replies

Assessment

Hi all , I’ve received a text message that my assessment will be next week by phone. It is for renewal. Please give me some advice, I’m so confused and...

Hi all , I’ve received a text message that my assessment will be next week by ...

Fshak

•2 months ago

1 Reply

NHS Weight loss Injections

Hello,I would like to know has anyone taken NHS weight loss injections ? Any side effects or helpful in terms of losing weights? Thanks

Hello,I would like to know has anyone taken NHS weight loss injections ? Any sid...

Sarah106

•2 months ago

8 Replies

Sometimes there are no words.

Its been a cold and dreary weather pattern here In New Jersey, and I feel like I've been run through the trash compactor and left for dead. I hope whoever...

Its been a cold and dreary weather pattern here In New Jersey, and I feel like I...

Marktime

•2 months ago

8 Replies

worse in hot or cold?

I think I need to move to the Sahara, I really suffer terribly when it’s cold. 🥶 But I have heard people who suffer more when it’s hot. I don’t think I...

I think I need to move to the Sahara, I really suffer terribly when it’s cold. �...

Hidden

•2 months ago

44 Replies

New friends

I know not everyone would have the courage for this, but I put a small advert in the local free newspaper, if any people in the area with Fibro would like to...

I know not everyone would have the courage for this, but I put a small advert in...

veggiefan70

•2 months ago

16 Replies

Gp text

Hi all my wife wrote a letter to the Gp got I text if I want to discuss pain management she will call me I want her to call me just nervous as that's not all...

Hi all my wife wrote a letter to the Gp got I text if I want to discuss pain man...

Pastafox

•2 months ago

4 Replies

How to cope with CFS Fibromyalgia with Singles

Have had severe cfs for 30 years, fibro for 7 now have shingles due to stress. Just not much hope, have been in care homes for several years. Any comments...

Have had severe cfs for 30 years, fibro for 7 now have shingles due to stress. ...

Boardercolly

•2 months ago

5 Replies

how do you explain

Hi all, how do you explain Fibro to someone who simply doesn’t ever seem to understand how this condition affects you? How it makes you feel. I know it’s...

Hi all, how do you explain Fibro to someone who simply doesn’t ever seem to unde...

Legsandmore

•2 months ago

24 Replies

Hi, I’m new here

Hi I just thought I’d introduce myself. I am new to this forum and to Health Unlocked. I have had ME/CFS for approx 25 years and I was diagnosed with...

Hi I just thought I’d introduce myself. I am new to this forum and to Health Un...

SleepyBabySloth

•2 months ago

5 Replies

Random call

Hi all, I have received a called this afternoon randomly from no caller id, I thought its my doctor but it was someone saying will you be ok for pip phone...

Hi all, I have received a called this afternoon randomly from no caller id, I th...

Fshak

•2 months ago

12 Replies

Medication Help!

Hi again! This morning I posted regarding a medication I found on google which isn’t prescribed in UK! Good old Google 🤣 So I’m currently taking 2700mg of...

Hi again! This morning I posted regarding a medication I found on google which i...

JoLouise88

•2 months ago

33 Replies

Milnacipran in UK

Hi everyone, hoping everyone’s feeling well, although this weather is driving my body into the dumps 🤣! Not fun. So I need a little advice, I’m currently...

Hi everyone, hoping everyone’s feeling well, although this weather is driving my...

JoLouise88

•2 months ago

11 Replies

Change of circumstances

Hi can anyone advise me please? Living in Scotland was on HR mobility and HR care... but the benefits for pip/dla have now migrated over to ADP jan25. In...

Hi can anyone advise me please? Living in Scotland was on HR mobility and HR car...

pinot

•2 months ago

13 Replies

amitriptyline side effects after stopping them

I was on 10mg of amitriptyline for 6 weeks for sciatica. As it’s a low dose I didn’t really ween myself off them for long enough I don’t think. Just over a...

I was on 10mg of amitriptyline for 6 weeks for sciatica. As it’s a low dose I di...

Black16

•2 months ago

11 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for February 2025

Review call

Do I have Lupus or Fibromyalgia???

Getting the point across

Feeling useless

Electric shocks in left side from the groin to leg and foot

so many qu’s!!

Pip review review

The Review Team

super sensitive skin

pip assessment and new medication

Gp phone call

Nauseous all of the time

Living with fibromyalgia

Hi all

Fibromyalgia hand book

Hi everybody

Assessment

NHS Weight loss Injections

Sometimes there are no words.

worse in hot or cold?

New friends

Gp text

How to cope with CFS Fibromyalgia with Singles

how do you explain

Hi, I’m new here

Random call

Medication Help!

Milnacipran in UK

Change of circumstances

amitriptyline side effects after stopping them

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