Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,420 members • 66,473 posts

All posts for November 2018

Anemia

I was diagnosed 10 years ago with fibromyalgia I’m on 200mg tramadol x 2 per day also morphine patch issues 5mg per hour though I’m still in pain these do help...

I was diagnosed 10 years ago with fibromyalgia I’m on 200mg tramadol x 2 per day...

smiler66

•5 years ago

5 Replies

Vibrating leg

I have been suffering with vibrating in my left leg right down to my foot. It’s driving me mad! And keep getting pins and needles in my hands 😩 it seems worse...

I have been suffering with vibrating in my left leg right down to my foot. It’s ...

Exholrep

•5 years ago

5 Replies

Looking for community support

Hi everyone hope you’re all well As can be .I’m new to this group ,Don’t know where to start but I’m looking for some support in London and East London...

Hi everyone hope you’re all well As can be .I’m new to this group ,Don’t know...

Mystik

•5 years ago

6 Replies

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NICE medicinal cannabis guidelines

Fibromyalgia Action UK firmly believes that clinical practice must be based on good quality evidence. As a charity responsible for advocating on behalf of...

Fibromyalgia Action UK firmly believes that clinical practice must be based on g...

FMA_Reece

FMA UK Staff•5 years ago

1 Reply

In despair with head pain

anyone with long term chronic left sided unrelenting head, neck, shoulder and back pain. also nausea and upset stomach. suffering 30 years but diagnosed...

anyone with long term chronic left sided unrelenting head, neck, shoulder and b...

ShelWhitt

•5 years ago

2 Replies

D-Ribose

Update on d-ribose. I have been taking 1tspn 2 times to 3 times a day. I missed a day and realized it had improved my fatigue. So now I make sure I don't...

Update on d-ribose. I have been taking 1tspn 2 times to 3 times a day. I misse...

carmenp1

•5 years ago

3 Replies

Thyroid balance / fibromyalgia?!?

I was watching a video on fibromyalgia treatments and I came across one a specialist was saying that there's one thing that gps miss out on fibromyalgia...

I was watching a video on fibromyalgia treatments and I came across one a specia...

Hidden

•5 years ago

4 Replies

Fibromyalgia quick facts

Thought I would share an image we have put up on our facebook page. you can see it here also https://www.facebook.com/ukfibro/

Thought I would share an image we have put up on our facebook page. you can see ...

desquinn

Partner•5 years ago

6 Replies

Over 65 flu jab.

NEW OVER 65 FLU JAB CAUSING PROBLEMSHi I had my flu jab 11 days ago and am feeling really bad as if my fibromyalgia has flared up. I,m getting headaches and...

NEW OVER 65 FLU JAB CAUSING PROBLEMSHi I had my flu jab 11 days ago and am feeli...

honeydog

•5 years ago

5 Replies

Help please?

Hi can anyone give some advice please I need to take PIP to a tribunal but don’t know where to start. I am getting myself into such a fuss about it I’m now...

Hi can anyone give some advice please I need to take PIP to a tribunal but don’t...

Peppapot1

•5 years ago

6 Replies

Brain drain.

Hello everyone hope you are all managing your pain now we are into winter🙄 I'm in the middle of a dreadful flair up brain fog is almost impossible to manage a...

Hello everyone hope you are all managing your pain now we are into winter🙄 I'm ...

pinot

•5 years ago

4 Replies

When will it stop?

Hi everyone , I just recently been told that i suffer from fibromyalgia, long story short , for 5 months now I have non stop stabbing pain in both my legs...

Hi everyone , I just recently been told that i suffer from fibromyalgia, long...

Iamfromvenus

•5 years ago

9 Replies

Assessment tomorrow

Got my pip assessment tomorrow any tips greatly received x

Paulinegolightly

•5 years ago

4 Replies

Anybody out there help please

Hi I don’t post much but I’m going to try this time and hope somebody out there has similar problems to mine. I’ve got axonal and peripheral neuropathy, a...

Hi I don’t post much but I’m going to try this time and hope somebody out there ...

Pips04

•5 years ago

23 Replies

International Men's Day

🗣️ Today is #InternationalMensDay and it ties in with our campaign to increase awareness generally but specifically of men dealing with fibro as part of Men's...

🗣️ Today is #InternationalMensDay and it ties in with our campaign to increase ...

FMA_Reece

FMA UK Staff•5 years ago

1 Reply

Restless legs

Has anyone found anything that helps with restless legs

Jessloo

•5 years ago

14 Replies

Test

anyone heard an update from this, it was first said around 2013! There have been some promising studies on a possible diagnostic blood test for fibromyalgia....

anyone heard an update from this, it was first said around 2013! There have bee...

Deni52

•5 years ago

12 Replies

I have Fibro!

Today my body is racked in pain. I feel drugged! I’m so tired and the exhaustion is like a deflated balloon. This won’t last forever. In a few days I will be...

Today my body is racked in pain. I feel drugged! I’m so tired and the exhaustion...

mcglada0

•5 years ago

12 Replies

No response from DWP re. PIP appeal. Update

So after sending all paperwork (including my copy of Assessment with all my notes written down the sides of all the discrepencies (lies), I don't know what the...

So after sending all paperwork (including my copy of Assessment with all my note...

Anita54

•5 years ago

15 Replies

Lignocaine IV-update

Morning all, I had this treatment 3 weeks ago, unfortunately I have had no benefit from it, Dr had already prescribed 2 separate doses, but on my follow up...

Morning all, I had this treatment 3 weeks ago, unfortunately I have had no bene...

Anita54

•5 years ago

2 Replies

A long long battle has been won (yes really!!)

Hi everyone, I hope this message helps any of you that have struggled with a benefit claim. The last time I received benefits was after I was medically retired...

Hi everyone, I hope this message helps any of you that have struggled with a ben...

cutebird

•5 years ago

17 Replies

Itchy head

Anyone else?? I have read somewhere that fibro can cause ‘sensitivities ‘ but it’s driving me mad!! (No I don’t have headlice I check constantly) any advice?

Anyone else?? I have read somewhere that fibro can cause ‘sensitivities ‘ but it...

JemimaJJ

•5 years ago

12 Replies

Psychology

After what seems like an eternity living with Fybro with little to no help from the GP, only having various happy pills offered which I didn’t take because of...

After what seems like an eternity living with Fybro with little to no help from ...

Angel3579

•5 years ago

14 Replies

Reflexology in fibro

Any one tried this? Has it helped?x

JemimaJJ

•5 years ago

6 Replies

Throbbing legs

It’s a throbbing painful day my legs are so sore and stiff 😖

jilly77

•5 years ago

5 Replies

Drinking on duloxotine

I drank for over a year while taking duloxotine and they had very little effect on my depression as well as pitting on 3stone I struggled to go to...

I drank for over a year while taking duloxotine and they had very little effect ...

chrismullin39

•5 years ago

4 Replies

Drinking xduloxetine

Can drinking for a whole week on dulotine before they started working.cause them not to work

Can drinking for a whole week on dulotine before they started working.cause them...

lightstar1

•5 years ago

14 Replies

Dulotine not working yet and side affects

Just want to say thank you everyone .I started dulotine . untideprsents usually work within 3 months with me there not working yet.i having veied dreams heart...

Just want to say thank you everyone .I started dulotine . untideprsents usually ...

lightstar1

•5 years ago

9 Replies

Bum wiping gadget

Hi, say if there are any mechanically inclined people out there, & I know there are, would someone PLEASE come up with a device to wipe my Butt!? It's truly...

Hi, say if there are any mechanically inclined people out there, & I know there ...

annanotherthing13

•5 years ago

17 Replies

Legs seizing up

A new development for me is my legs really seizing up after walking. I've had fibro dx for over 5 years. I'm used to morning stiffness and my ankles not...

A new development for me is my legs really seizing up after walking. I've had f...

abbymeg

•5 years ago

10 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for November 2018

Anemia

Vibrating leg

Looking for community support

NICE medicinal cannabis guidelines

In despair with head pain

D-Ribose

Thyroid balance / fibromyalgia?!?

Fibromyalgia quick facts

Over 65 flu jab.

Help please?

Brain drain.

When will it stop?

Assessment tomorrow

Anybody out there help please

International Men's Day

Restless legs

Test

I have Fibro!

No response from DWP re. PIP appeal. Update

Lignocaine IV-update

A long long battle has been won (yes really!!)

Itchy head

Psychology

Reflexology in fibro

Throbbing legs

Drinking on duloxotine

Drinking xduloxetine

Dulotine not working yet and side affects

Bum wiping gadget

Legs seizing up

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