Prostrap bleeding : Hi all , about 9 years... - Endometriosis UK

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Prostrap bleeding

EndoPolly profile image
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Hi all , about 9 years ago had sugery for bladder endo , over the years had more surgery to remove it from other places , tried all the tablets /coil u name it ive tried it ... last year was offered prostrap , had my last 3 month dose end of december which will take me to march when back with consultant , im also taking norithestrone 3 a day (without these pills i cant leave the house due to bleeding so bad ) all through treatment ive had bleeding not bad just off days as i call them , past week it just doesnt want to stop , i can go to 6 tablets a day but am reluctant to keep upping dose as my ankles swell so much on the higher dose ... has anyone else had a similar situation , The only thing the prostrap seems to have helped with is the pain , which after all these years is a blessing x

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EndoPolly
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Sunset-lady profile image
Sunset-lady

I am on zoladex and bleed almost daily. I can't take progestin but I take progesterone and estrogen gel as addback. It's really tough. Some days are better than others but it's so unpredictable and I find it hard as I flood 2 to 3 times a week. Sometimes I just feel like I'm having a period that sits behind the mask of the zoladex. Mentally I'm pretty good but physically I need a hysterectomy which isn't straight forward due to endometriosis. Xxx

Rainbow2468 profile image
Rainbow2468

Hi I'm on the fiur weekly prostrap ones and they are working thankfully. But i have heard ladies here say the twelve week ones do wear off after ten weeks, perhaps yiu could ask for the four weekly ones instead. Sending you a safe hug too 🤗❤️

Loki1980 profile image
Loki1980

Hi

I had terrible bleeding on the prostap since November when I first started. After lots of emails back and forth to endo nurse she agreed to put me on the tablets too and not to have any more injections. They also changed the HRT too from patches to tibolone. This made a massive difference to the bleeding and no need to take the pills 3 times a day. I have now gone 5 weeks with no bleeding and I’m due my third prostap injection in a couple of weeks. Not sure if you’re on the HRT but finding one that suits you may help the bleeding! It worked for me after I lost all hope! I am awaiting a hysterectomy due to stage 4 endo and adeno. Lots of good advice on here too. Good luck!

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