Overactive bladder from adenomyosis and fibroids?

[PeriMenoEndo]

hello all, and thank you for being here and sharing your stories - so helpful!

Does anyone with adenomyosis or fibroids have experience of overactive bladder and have you found anything that helped?

I’m on gnrh injections which make me feel rubbish but I think I’m still ovulating as from days 10-15 of my cycle I’m like a swollen balloon - I’m needing to wee every 20 minutes then.

HRT helps with injection side effects but makes me more swollen.

I’ve had a chronic uti in the past which means my bladder is more easily irritated but that doesn’t explain why my my urinary symptoms fluctuate over my cycle or why they vanish when I get my period.

I think I need a hysterectomy but would appreciate any advice or shared experience x

[AllthatGlitters]

yes me, I can’t stop going to urinate and it’s getting worse, I have no idea what to do about it. Hopefully someone else who answers can give us some tips x

[PeriMenoEndo in reply to AllthatGlitters]

Have you had this a long time? Do you have adenomyosis or fibroids? Check out live uti free’s website in case that helps

[AllthatGlitters in reply to PeriMenoEndo]

I have adenomyosis and endometriosis, my peeing is getting worse, probably started 5 years ago x

[PeriMenoEndo in reply to AllthatGlitters]

Sounds like you need to get a urogynaecologist involved. There is a bit of research which shows women with adenomyosis have more overactive bladder symptoms. Just one tiny study but the right doctor might be receptive.

Have you had the mirena or other hormone treatments? I couldn’t have this, the urinary symptoms were so bad!

[AllthatGlitters in reply to PeriMenoEndo]

I have had the decepeptyl injection monthly previously it was a nightmare, it stopped my flooding of blood through clothing and helped with labour like pains, been on the pill too, I refused the coil couldn’t bare any form of pain getting that in x

[Regenallotment]

yep I have both and awaiting MRI looking for more info likely endo too. I’m on HRT and it’s made little difference, the vaginal estriol cream seems to help a little but I swear my bladder shrinks to the size of a walnut before ovulation and expands camel like during a period! A colleague with adenomyosis said she had so much more bladder space after the op, couldn’t believe the difference. Is your bowel affected I’m getting painful movements during ovulation too now.

[PeriMenoEndo in reply to Regenallotment]

Thank you for replying. I have had that when on HRT without the gnrh ‘treatment’ and also rectal pain. I now wonder if that was my swollen uterus as it is retroverted I believe. I hope the MRI helps get you some answers. Keep us posted!

[JOSANDY40]

I had a over reactive bladder about ten yrs ago. I had all the tests, urine tests, emptying tests, a view into bladder. Urine sample for bacteria. I had to cut Tea, Coffee, Fruit Juice at the top of the list. Make sure though I drunk plenty of water more than normal. Take anti inflammatory painkillers. It took about 3 mths to clear. Even now if I over do Tea or Coffee I need to pee with a half full bladder. You might also look as cutting out gluten from diet, taking some good bacterial tablets from health food shop to balance what's in your bladder and bowel.As to the HRT it made me swell worse, increasing negative feelings like a pre-period. It made my Endo worse, I grew a very large cyst so you might want to get a ultrasound.

As to Hysterectomy with me it wasn't going to stop my Endo as heavily spread, the risk with my endo on bowel, general organs involved with distortion would not achieve much, risks were high to bladder damage, bowel resection or incontinence in bladder or bowel. It is also possible to endup with nerve damage and further pain.

Since I have gone through menopause now. The Endo is about half as bad. Some stomach swelling a few days in the mth. Bowel ridged issues as bedded down with adhesions/ scars so bowel emptying a struggle sometimes so I use a douche shower attachment a few times a mth not regularly so I take Fybogel Merbervine!

I still grow cysts, 2 removed last yr. Exceeded 10yrs+ the longterm use of Zoladex implant, so HSA refused to pay for it. Went onto various painkillers including Morphine to bridge into menopause. Now much less painkillers not everyday. Might use my TENs Machine a couple of days. My life has improved but walking distance with body movements does make swelling/pain. The Endo is active but slower so I still require checks, tests and told keyhole surgery is too difficult cos my scaring, bedded down, lack of flexibility so next time it may have to be open surgery.

My best x

[Chartolfrey]

I have endo, adeo, fibroid and cysts awaiting a hysterectomy. Ive been on zoledex injections for 11 months and i get tender bladder that feels like i need to wee.

If u speak to dr they just chuck antibiotics at you so my endo nurse wrote to the dr and i have my wee test every week to check for uti.

Fingers crossed its been about 30 weeks uti clear but the nurse also said flare up make everything swollen so pushes on the bladder ive also changed things to help improve.

Everyday i take a cranberry tablet, i dont drink caffiene or fizzy or pure juice as that irritates the bladder, ive not drank alcahol since the injections and i drink between 500ml and 1litre of lemon barley a day and that really helps.

I had to keep pushing as i had 8 lots of antibiotics a year a go, loat 1 stone in weight and when i went to a&e for pain there was no infection so my nurse kicked up a fuss

[Sunset-lady]

Hi my MRI came back and since going on zoladex 13 months ago my bladder is now distended which is why I need to urinate a lot. I'd also look at your HRT - if you're on progestin rather than natural progesterone it could be making you extremely bloated and this will make you constantly urinate as you have water retention which fits with the fact it's worse at certain times of the month as your hormones fluctuate. Although zoladex and prostrap put us in chemical menopause there are still some hormones being released at certain times. I was on provera before zoladex and I blew up terribly 😔. I am much better on zoladex with addback utrogestan and estrogen gel although I'm still bleeding due to the estrogen x

[Sunset-lady]

Many women thrive on progestin but lots of us cannot tolerate it x