Total hysterectomy advice

[Selfel]

I was wondering if anyone could give their experiences of having a total hysterectomy due to endometriosis. I have been told after MRI that at the least I need to have one tube and ovary removed along with an endometrioma. It has been suggested, however that a total hysterectomy alongside would be best as it would decrease the likelihood of having to be operated on again. I have had an endometrioma drained in another endoscopy and am currently on prostap and livial. Were the side effects worse after total hysterectomy than from prostap? I am 46 and don't plan on having children so would just like others experiences of going for this operation

[Moon_maiden]

Hi

I had a total hysterectomy in 2020, I would say the pelvic pain is much better, the feeling like an alien was ready to burst out went 🤣🤦‍♀️

I also had gallbladder and appendix out in later ops. I am still left with abdominal pain, some pelvic but that’s manageable. I was very late diagnosis at 51 so potentially I’ve been told there might be nerve damage. I am also pursuing more surgery to have clips removed that they used in taking out gallbladder so might be that.

If you do have op, make sure they plan on removing all Endo to reduce the risk of occurrence. I’ve been told I don’t have any since hysterectomy but I did make sure it was on the form to remove it all and he was a good surgeon.

I used Zoladex before hysterectomy and that didn’t work at all. There is no guarantee that Endo just fades away at menopause either. They just don’t know enough yet.

[Selfel in reply to Moon_maiden]

Thank you for giving me your experience and I really hope you get the abdominal pain sorted. I have to have an op either way as I've been told my endometrioma is too close to my urethra and my tube is blocked and swollen. It is difficult to make a choice because there are no guarantees. Ideally, I would want the hysterectomy to mean I need no further ops but I know there is a possibility that may not be the case.

[Rainbow2468]

My friend had a hysterectomy and still suffers badly with her endometriosis sadly. Sending you a safe hug 🤗❤️

[Selfel in reply to Rainbow2468]

That is terrible for your friend, did she also have her ovaries removed? Did she try prostap? Just trying to get all the info. Thank you for your response.

[Rainbow2468]

Hi i believe she's kept her ovaries, but i don't know if she tried prostrap. But I'm on prostrap injections and they are working for me, i didn't want a hysterectomy for quite a few reasons.

[Selfel]

Yes I at the moment really understand how big of a decision it is to make to have a hysterectomy. The prostap is working and I think if I didn't need an operation anyway I wouldn't bother. I think the thought of having to have another operation in the future is making me lean towards this decision. I know there are no guarantees, but if prostap is working that is a good sign that removing your ovaries will also work. Also, I was in perimenopause anyway. If I was younger I also don't think I'd consider it.