Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,733 members•53,171 posts

All posts for January 2024

Cyclical pain

Morning all I’m new to the forum so not sure what to expect. Brief summary; Took 13 years to diagnose my Endo from the age of 17, had laparoscopy and then...

Morning all I’m new to the forum so not sure what to expect. Brief summary; T...

Hulahoops339

•10 months ago

1 Reply

Change in pain pattern after csection? Little pain on period but worse pain throughout the month

I’m looking for a bit of advice really. I’ve had 5 surgeries for endo (my history is recurrent stage 4 endo, left ovary stuck to rectum, bladder nodules and...

I’m looking for a bit of advice really. I’ve had 5 surgeries for endo (my histor...

ElizaEliza

•10 months ago

1 Reply

Advice for chronic constipation

My symptoms are so much better since my laparoscopy 9 months ago but I’m still constipated all. the. time. My surgeon has told me repeatedly that he’s very...

My symptoms are so much better since my laparoscopy 9 months ago but I’m still c...

Sunflower117

•10 months ago

18 Replies

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Link between adhesions and ongoing abdominal pain.

Happy New year to everyone. I wonder if anyone has had a similar experience? .20 years ago after several years of abdominal pain I had a total hysterectomy....

Happy New year to everyone. I wonder if anyone has had a similar experience? .20...

Mrsmr

•10 months ago

4 Replies

Advice please

Hi, I am 53 and had an open myomectomy 13 weeks ago for fibroids. The deep pelvic pain, bladder issues have returned. I had a follow up a few weeks ago with my...

Hi, I am 53 and had an open myomectomy 13 weeks ago for fibroids. The deep pelvi...

Nature71

•10 months ago

Be the first to reply

does having endo mean I am at high risk for ovarian cancer?

hi! I an 26 and I have recently been diagnosed with moderate endometriosis. I am having a hard time coming to terms with it all and I consulted dr Google. I...

hi! I an 26 and I have recently been diagnosed with moderate endometriosis. I a...

JS1001

•10 months ago

5 Replies

Waiting for first appointment with gynaecologist, should I get the coil in the meantime?

Hello! I have finally been referred to a gynaecologist after 10 years of extreme pain, vomiting etc since I started my periods. Unfortunately the gynaecologist...

Hello! I have finally been referred to a gynaecologist after 10 years of extreme...

Pesto36

•10 months ago

9 Replies

Maternity clothes?

I'm having my next lap next Saturday, and was thinking about what loose clothes I have to wear post surgery. I don't really like loose clothes, but I have so...

I'm having my next lap next Saturday, and was thinking about what loose clothes ...

GreenViolin

•10 months ago

12 Replies

Surgery in 3 weeks. Any post op tips?

I finally have a surgery date after first being referred to gynae August 2022. I had an MRI between this time which confirmed endometriosis so hoping this...

I finally have a surgery date after first being referred to gynae August 2022. I...

Emmaja_ne

•10 months ago

1 Reply

Zoladex experience

Hey there 👋 I'm just wondering if anyone has had a negative experience with zoladex? I am due to have my 4th injection next week, was supposed to be yesterday...

Hey there 👋 I'm just wondering if anyone has had a negative experience with zol...

x_b_x

•10 months ago

4 Replies

pain 2 years after laparoscopy

hi I had laparoscopy 2 years ago now and I feel in terrible pain in my stomache like I just left the operating table yesterday… I also became incontinent, I...

hi I had laparoscopy 2 years ago now and I feel in terrible pain in my stomac...

Maggieeeeeeeeeeeeee

•10 months ago

6 Replies

Endometriosis/gurgling sound

Hello, I have endometriosis & bowel endometriosis, I also have chronic rumbling and gurgling sounds in my stomach when I lie down, every day, it does not stop,...

Hello, I have endometriosis & bowel endometriosis, I also have chronic rumbling ...

Sirinae

•10 months ago

3 Replies

Colonoscopy next week

Hello everyone, I am 40 years of age, living in Scotland, on waiting list for Hysterectomy (88 weeks so far) I have suspected endometriosis - symptoms of pain...

Hello everyone, I am 40 years of age, living in Scotland, on waiting list for Hy...

Kittie5117

•10 months ago

13 Replies

Help..

i got an ultrasound for pcos, came back clear.. could it be endometriosis?? i get a burning sensation in my left side of my stomach constantly, back pain...

i got an ultrasound for pcos, came back clear.. could it be endometriosis?? i ...

hred0911

•10 months ago

1 Reply

advice after surgery/ any advice on natural remedies or how to slow the regrowth of endo?

I had my surgery on Wednesday to investigate my bladder pain. Turns out my bladder is clear but I had a chocolate cyst inside my ovary, and my ovary was stuck...

I had my surgery on Wednesday to investigate my bladder pain. Turns out my bladd...

merlin-mimi

•10 months ago

7 Replies

How long should you really be on decapeptyl?

I'm seeing so much conflicting information on how long is the maximum time you can be on it? My gynecology said indefinitely however I am reading so much...

I'm seeing so much conflicting information on how long is the maximum time you c...

En89

•10 months ago

5 Replies

So down today 🥺 Why does everything take so long and nothing helps

I'm in my late 40s and have a provisional diagnosis of Adenomyosis I don't think I've ever felt so low, as today. I'm waiting for urgent mri scan results, that...

I'm in my late 40s and have a provisional diagnosis of Adenomyosis I don't think...

Mindfullness4791

•10 months ago

18 Replies

extremely intense pain due to stage 4 Endrometriosis

Hi, An ambulance has just left our house. Today is the first day of my period and I had to call 999 due to extreme pain that I never experienced before. They...

Hi, An ambulance has just left our house. Today is the first day of my period a...

Bubble-z

•10 months ago

14 Replies

Sciatic endo symptoms & waiting for surgery

Bit of a niche one for you... long story short, I am all signed up for my first laparoscopy surgery (NHS Birmingham women's) and am awaiting a pre-op...

Bit of a niche one for you... long story short, I am all signed up for my first ...

endo_the_stigma

•10 months ago

9 Replies

Do TENS machines help with endo pain?

Hi, I’ve been diagnosed with stage 4 Endrometriosis and have terrible symptoms before and during my periods. I’m trying different products to manage my pain,...

Hi, I’ve been diagnosed with stage 4 Endrometriosis and have terrible symptoms ...

Bubble-z

•10 months ago

8 Replies

Doctor dismissal

Hello, i'm after some advice as I know so many other women have been in the same situation I've been to the doctors regarding my periods as I am concerned I...

Hello, i'm after some advice as I know so many other women have been in the same...

GilleyTea97

•10 months ago

3 Replies

large clots and really bad pain

hi ladies. I had my nexplanon implant out two days ago and my bleeding has gotten so heavy. It’s stopping me in my tracks as it’s so painful: lost a huge clot...

hi ladies. I had my nexplanon implant out two days ago and my bleeding has gotte...

Kieraface

•10 months ago

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Looking for advice

At age 14 I took my daughter to the GP after her having seriously bad periods since she started at age 12.In her bed for days, off her food , feeling sick...

At age 14 I took my daughter to the GP after her having seriously bad periods si...

Future-friend

•10 months ago

5 Replies

awaiting full hysterectomy

hi everyone, I am now waiting a full hysterectomy (at 30) due to no other treatment for my stage 4 endometriosis. I have had 2 surgery’s but it keeps coming...

hi everyone, I am now waiting a full hysterectomy (at 30) due to no other tre...

Bethalex

•10 months ago

4 Replies

laparoscopy

I am on a list for a laparoscopy either on the nhs or private. What are the essentials to pack?

I am on a list for a laparoscopy either on the nhs or private. What are the esse...

Moll2309

•10 months ago

1 Reply

Lap due 30th Jan but now to scared to have it.

Hi all and happy new year. I have got a date for my first lap that i have waited 15 months for on 30th Jan but the issue i have now is i am absolutely terrifed...

Hi all and happy new year. I have got a date for my first lap that i have waited...

CLD30

•10 months ago

3 Replies

Dimetrum (Dienogest) experience

Hi all, just sharing my experience to see if anyone has had anything similar. I was diagnosed with Endo a few years ago and am finally booked in for surgery on...

Hi all, just sharing my experience to see if anyone has had anything similar. I ...

LeeLee000

•10 months ago

2 Replies

Cold water therapy

Hi everyone, Generally painkillers don't cut through my pain and they give me many side effects, so I am looking into alternatives. I was reading some research...

Hi everyone, Generally painkillers don't cut through my pain and they give me ma...

OlgaSz

•10 months ago

14 Replies

Zoladex -please tell me it gets better!

Hello, I have just had my fifth Zoladex injection, which I am being given alongside Tibolone, whilst I await hysterectomy (I have about another five months...

Hello, I have just had my fifth Zoladex injection, which I am being given along...

Neenz1

•10 months ago

7 Replies

Ryeqo help!

I’ve been put on Ryeqo which apparently is quite new in the UK. My GP is concerned that my consultant has been me on this due to increased blood clot risk,...

I’ve been put on Ryeqo which apparently is quite new in the UK. My GP is concern...

BluePanda77

•10 months ago

1 Reply

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for January 2024

Cyclical pain

Change in pain pattern after csection? Little pain on period but worse pain throughout the month

Advice for chronic constipation

Link between adhesions and ongoing abdominal pain.

Advice please

does having endo mean I am at high risk for ovarian cancer?

Waiting for first appointment with gynaecologist, should I get the coil in the meantime?

Maternity clothes?

Surgery in 3 weeks. Any post op tips?

Zoladex experience

pain 2 years after laparoscopy

Endometriosis/gurgling sound

Colonoscopy next week

Help..

advice after surgery/ any advice on natural remedies or how to slow the regrowth of endo?

How long should you really be on decapeptyl?

So down today 🥺 Why does everything take so long and nothing helps

extremely intense pain due to stage 4 Endrometriosis

Sciatic endo symptoms & waiting for surgery

Do TENS machines help with endo pain?

Doctor dismissal

large clots and really bad pain

Looking for advice

awaiting full hysterectomy

laparoscopy

Lap due 30th Jan but now to scared to have it.

Dimetrum (Dienogest) experience

Cold water therapy

Zoladex -please tell me it gets better!

Ryeqo help!

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