Cyclical pain

[Hulahoops339]

Morning all

I’m new to the forum so not sure what to expect. Brief summary;

Took 13 years to diagnose my Endo from the age of 17, had laparoscopy and then surgery to laser. Suffered 5 miscarriages after having my son in 2014. Period symptoms were worsening to the point where in my 40s I can barely function each month. Had surgery again in June after a 2y waiting list. My period symptoms are still horrific, not as bad through the lead up and shorter in length but day 2 makes me bed ridden due to the pain in my pelvis and groin being so severe I struggle to move legs. Bleeding is as heavy as before, nausea, diarrhoea, awful cramping sensation in the back of my right knee every first day. Has anyone had success after surgery? Easing symptoms. I’m struggling to work on these days. Thank you.

[charlatan]

Hi,

Took 17 years (and several trips to A & E) for them to finally diagnose my endo. In September 2022, I had surgery to remove all the endometrial tissue and it changed everything for me. Minimal pain and minimal nauseas although the fatigues is still around. Periods aren't my favourite time but now completely tolerable - I don't even have to take painkillers and sometimes they're incredibly light and only last a day or two. That being said, although it worked for me, it's a sad fact that sometimes surgery doesn't make any difference to symptoms. It was something that was discussed with me but decided it was worth a shot since it was no way to live so I'd advise the same. I can't begin to explain the massive difference it's made to my quality of life. I actually have a life now.

Anyway, give it some thought. In the meantime, I'd really suggest asking your doctor for amitriptyline if you aren't already on it. I've been on here countless times singing it's praises but it really is brilliant. It's not a painkiller - it doesn't just mask the pain but changes how pain signals are interpreted by the brain (or something like that - not really my area).

Hope this helps and best of luck to you x