Currently writing this from a hospital bed ( missing an endometresiosis support group I said I'd go to today!) just to see if anyone else has had anything simular. 3 days ago started to get reduced limb sensation ( both limbs), numbness, tingling and some shooting pain. When walking legs feel heavy and feel like will fall over. I've had right sciatic before accounted to maybe a disc issue but never both sides.
111 has led me to orthopedic admission. One mri scan, bloods later. Ruled out a disc lesion ( mild dehydrated disc but not severe enough to cause signs) and thankfully not cauda equina. Thus since I have severe endometresiosis ( already have altered sensation urinary and fecal since last year's surgery) I am waiting on gynae to see me .
Long story short I started zoladex about 6 weeks ago. I managed to speak to the private endometresiosis specialist just now. He says he has never came across endo patients with bilateral limb deficits?!!! Hence why I am here anyone else had this ... I feel like I've seen messages from people on here re sciatic, back etc?He says zoladex has extremely rare cases of disc compression but only in men using it for prostate cancer plus my mri doesn't show this. He has said see a neurologist!
Anyone's stories or ideas welcome. Hope you're all having a lovely pain free day.
I have this 😢 I just posted about it. I don’t have any advice I’m sorry. I’m really scared. I’m losing more and more function. I have to use crutches all the time.
I'm so sorry my love. Will look at your post too. Yes it's terrifying isn't it not knowing if it's permanent or if it will be worse. I will keep you updated on what happens to me too incase anything may be relevant to you hun x
Just read your post. You poor thing. So the endo specialist I asked him about nerve surgery he says doesn't touch them. Says one surgeon in London who does nerve surgery I will Google now as my primary concern was general neurology for now and he mentioned alot of other stuff ( didn't have a pen as in hospital). I will see if I can try and find a name for you or if not email his secretary to ask. Also have you seen a neurologist? The endo specialist I see says worth ruling out other nuero issues before we say endo x