Chest pains

[Saf1Saf1]

Anyone with endo experience severe chest pains? Had x-rays and scans multiple times, all come back clear. Is it to do with the endo?

[Moon_maiden]

Hi

I’m investigating similar, waiting for heart scans. I had a CPET last year which showed heart failure. One scan hasn’t shown anything. I suspect adhesions, whether Endo or not, which don’t show on scans. Be prepared to be persistent, symptoms don’t show for nothing. I’ve found the spray they use for angina really good for the pain when it’s high up in the sternum area. That was from calling out a paramedic in the early hours, one of the nicer med side effects. Cardiac nurse asked GP to prescribe.

🤞 you get some answers soon 🙂

[Saf1Saf1 in reply to Moon_maiden]

Thanks for that!

I don’t really know what else to do now…called ambulance once, a&e so many times and all scans show nothing but the pain is still there.

[Moon_maiden in reply to Saf1Saf1]

I hate scans, they really show so little for us. Adhesions don’t show, so if they are round the diaphragm only an op would show them. MRI might. Have you spoken to Gynae?

Have you tried the spray?

[Saf1Saf1 in reply to Moon_maiden]

I know, and my gynae just said they did the laparoscopy and any pain now is not because of endo😞when I know it is. No i haven’t i’ll ask for the spray thank you x

[Moon_maiden in reply to Saf1Saf1]

I had the echocardiogram this week and it showed small pericardial effusion, the cardiologist put down this can be associated with connective tissue disease, potentially I’m wondering if this could be Endo/adhesions as I keep mentioning to drs.

How are you?

[Saf1Saf1 in reply to Moon_maiden]

thanks! what is it you asked for to get this scan?

my doctor keeps fobbing me off and saying the chest pains are due to weakness

im still in the same place. tired of it

[Moon_maiden in reply to Saf1Saf1]

I did a private CPET test as a pre op ecg came up borderline. I’d never have got a referral for one, my heart was only working at 53%. I did pay a cardiologist to review as initially it was ignored by GP. Luckily he didn’t charge a huge amount, think it peaked his interest as I found him online. He works at a hospital in Exeter, pity, he’s really nice, I’m in Surrey, too far. Then GP referred locally. Drs underestimate heart issues in women as symptoms can be very subtle. The British Heart foundation site has lots of info. Yet again we have to be persistent. There is some research about heart and Endo these days, but not much in the way of real facts. It’s about peaking interest with a consultant if they want to do more. As far as current local cardiologist goes I’ve hit a brick wall now.

I’ve found the angina spray helps with some pain when it gets to the chest, it relaxes the muscles and improves flow.

If you can get some research together for your GP, link your symptoms with the research and go from there. If you can afford to see someone privately and they want to investigate they can add you to their NHS list.

Do your chest pains become worse at any particular time?

[Moon_maiden]

I had a scan earlier this month for Amyloidosis, it was a DPD nuclear scan. Came back negative. I’ve got an echo scan coming up, no doubt be ok as well.

Have you requested your hospital records, always useful in digging deeper. I asked again if surgeon who took out gallbladder last July (missed by colorectal and Gynae in Feb) if they checked and removed all adhesions round small bowel. They replied with, no substantial adhesions, which means in my book they didn’t check all through the small bowel at all. I’ve asked for a definitive answer.

There is a reason for your pain, it doesn’t just happen. Pain isn’t in anyones head, especially if certain things set it off.

Unless Gynae checked chest at op, which obviously didn’t happen if no incision there, they wouldn’t know for sure. Gynae wouldn’t be able to do those areas anyway unless multi discipline.

[Saf1Saf1 in reply to Moon_maiden]

Ah okay thank you! xx