I’ve been struggling with chronic daily pain, I have severe endo which has caused one of my kidneys to fail and so I have a stent in my left kidney to help it drain. This contributes to my pain but it is mainly a deep ache in my hip, pelvis and abdomen which I’m sure is the Endometriosis.
Paracetamol and ibuprofen are not working, they don’t seem to do much. I have tried codeine but it really hurts my stomach.
Does anyone have any other pain killers they use that really help? Thank you so much
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TashaBarry
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hi ! My doctor prescribed naproxen 500mg twice a day. This helps me get on with my day and when it’s wearing off in the afternoon I take my 2 nd one. Also use anadin extra and cocodamol in between when I’m having a bad day x
I think you definitely should go to your GP and see what they can prescribe for you, rather than just rely on what you can get over the counter.
There are more powerful meds in the same category as ibuprofen for example. If you are taking these on a regular basis though you should also be prescribed something like omeprazole to protect your stomach.
If codeine doesn’t suit you you could try other meds in the opiates group though you might find the same effect. They can also make you sleepy but on a bad day you might be willing to tolerate that.
There are also other meds like Gabapentin and Pregabalin or antidepressants used for nerve pain like amitryptyline.
Most of these stronger meds will have some side effects, which depends to some extent on the individual. You have to balance that with the pain relief for your overall quality of life.
Of course I don’t know whether there are limitations on what you can take with your kidney issues.
Are there plans to give you further treatment for the endo? I presume you would be attending a specialist BSGE centre given the severity of your endo? They might also have a pain specialist you could be referred to.
If you want to avoid opiates there is Nefopam, GP might be reluctant as it’s more expensive. Just tell them you’d prefer not to try opiates. Personally I haven’t had any issues with them, including prescribed cannabis. There are clinics in the UK that run schemes to make the consultation cheaper, but it’s not on the NHS yet.
Of the nerve pain meds I’ve found Duloxitine better than Amitriptyline or Pregabalin.
I’ve also had success with Diclofenac suppositories especially when the pain is lower.
I try to vary so it’s not constantly the same thing, also used patches and morphine capsules.
Diclofenac and morphine were initiated in A&E.
GPs can be reluctant so you might have to push, but you need to be comfortable and not in constant pain.
For chronic daily pain, it is best to consult a doctor who can recommend suitable treatments and medications. Over-the-counter options like paracetamol and ibuprofen may not be effective for everyone. In some cases, prescription pain medications, such as tramadol or gabapentin, may be recommended. Additionally, non-medicinal options like physical therapy, acupuncture, or nerve blocks may also help alleviate pain.
has produced positive outcomes for you. It's always recommended to talk to your doctor about adding any new treatment options to your pain management plan.
Hi Tasha. I just read your other post about your operation - wow! It's shocking how bad this condition can get. I hope you are comfortable and heal quickly.
Regarding painkillers, did you find a successful alternative to codeine, particularly for after the operation?
thank you, I know! It’s unbelievable really. Yes I found naproxen to be helpful on really bad days but since the op I’ve just been using paracetamol and codeine if it’s really bad, Ive found that’s been just enough actually, that’s all they prescribed when I was discharged I thought they would provide something heavier to be honest. I hope you can find something that works for you!
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Sorry for the very long post xxx
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