My nearly 18 y/o has a 4 year plus history of endo. Confirmed with lap. A year ago mirena coil fitted, no improvement , constant bleeding - tried desogesterol, provera and now noriday. We have been repeatedly told she should persevere with the coil, it’s the “ holy grail” of endo treatment and we should give it a year. My daughter patiently agreed to this. Last Saturday her coil was expelled. We ended up in an and e then admitted to a gynae ward. Her noriday was doubled and she will get reviewed again by the pelvic pain/ adolescent gynae team in 3 weeks.
My daughter is depressed and traumatised, previously disbelieved, told she was making things up and having as a young person, to get used to adult procedures when not yet sexually active. She’s on anti depressants and we have eventually accessed psychological support.
After this most recent admission ( previously attended an and e 4 times, twice resulting in admission to paeds ward) we are no further forward. We waited 8 hours to see a gynaecologist, my daughter waited in adult a in an and e, not paeds an and e. She was offered an internal exam and for the coil to be put back in without anaesthetic: this has only previously happened under general anaesthetic.
The Consultant gynae we saw the next day told us she didn’t have endo, she wasn’t bleeding as reported , endo wasn’t causing her bleeding or pain; she told us a and e should have checked her bleeding/ pads , and our GP and my daughter had exaggerated the bleeding . A pregnancy test was completed ( which we absolutely accept is needed) without my daughters knowledge or consent.
She was admitted to a gynae ward, waiting with others who had hysterectomy’s, were bleeding into their lungs, refusing ever to have coils fitted . She sat quietly.
Her pelvic pain team have disagreed with the idea she doesn’t have endometriosis and clarified she has bleeding and pain for gynae reasons.
Now back home we are hoping her pain will settle and the noriday will help. She remains in a lot of pain and is very low. I am at a loss at how she can continue to be treated so badly. I have previously complained and feel I am now labelled as an overprotective difficult parent, however I don’t feel this most recent experience should be accepted. What would others do? I have previously contacted PALS and our MP due to poor communication, delayed/ cancelled appointments, lack of clear care plan or care pathway including what we do if urgent concerns.
Thank you for any advice!
I am thinking to try Noriday, how did your daughter do on this one? 
