Fear of finding nothing

[310717]

After over a year on the waiting list, I finally signed my consent forms for surgery last week and I’m just awaiting a date now! I’m SO excited to finally take this next step, but I’m also really worried that they won’t find anything!

it seems really common that we get gaslit into thinking our pain isn’t bad enough, ironically mainly by doctors, and it’s frustrating when you don’t have anything to compare it to. My worry is that, if they don’t find anything, I won’t have that validation and it’ll be back to square one☹️

Did anyone else have this concern? That maybe it’s all in their head and they’re 99% sure the doctors won’t find anything?

[Rocket14]

Yes I did even as they wheeled me into theatre. People ways saw me with a fake smile on my face even when I was in horrendous pain. Its so hard for people to understand unless they have endometriosis. Well my consultant found endometriosis all over my organs, which were also stuck together, in the womb lining and a tumour in my bladder. I was so happy that he found all this, I knew something was wrong, but some others around made me think it was in ny head. Always asking why it was taking so long to get answers, why areny you just having a hysterectomy, blah, blah, blah. Trying to explain my consultant had a treatment plan and that would be followed to the letter. Now I'm waiting for full hysterectomy with zoladex injections, tramadol to help with the pain. So all I can say to you is listen to your body, rest up when you can and believe in how you feel. Endometriosis and all the other symptoms we suffer are horrendous at times, but we're strong. Good luck.

[310717 in reply to Rocket14]

thank you, this is so reassuring. I hope everything gets better for you! 🤍

[Vim84]

I am exactly the same. I have mine booked in for the 19th and i was considering cancelling it for exactly this reason but ny husband talked me roun. Hope you get it soon

[310717 in reply to Vim84]

I’m so glad i’m not the only one! I hope everything goes well for you🤍 I’m now booked in for next month

[Vim84]

Hope it goes well!