Should I try something else?

[Crazycatladyjones]

Havent been diagnosied yet awaiting lap

For years ive struggled with left sided pelvic pain and always fobbed off with constipation ibs etc. Periods were always bad and remeber having all kinds of tabs and mefenmic acid I remembered having a lap when I was about 18 (20ys ago) don't think anything was found and was palmed off with the pill few yrs later I wasnt on anything and got caught pregnant. (14 yrs ago and a terrible prengnancy bleeding all the time then a prem birth which sadly my son passed away). Following this I got the nexproxen implant and stayed on this until 18months ago when I felt ready to think about trying again for a baby during that time I didnt have periods at all hardly ever. My bowles were still all over the place and would often get pain in left side and again always told ibs. Then i started the lowfodmap diet and it absoultey changed my life i havent been constipated since. When I got inplant out and periods started OMG the pains and heavy bleeding was horrible. I thought at 1st its probably cos I havent had any for so long its so bad but then after a few months i thought this isnt right horrific pain around ovulation and constant dull ache in left side and if I went for a poop during period i felt like i was going to die in the toilet it was the worse pain ever. Saw GP luckily a really good one she suspected endo and sent for scan and referred to gyne. This was Last April. They sed around 9 mths wait to see gyne so i thought i cant deal with this so paid to see a private endo specialist. He was amazing and too suspestcs endo and put my on his nhs list for a lap ( i wont be anle to afford the cost of the lap private) i also decided to get the inplant back as there was no way i could face another period this has stopped the bleeding thank god but not the other symptoms still every month its like i still have a period and ovulate its been well over 6 months now so im a bit gutted as thought i would help but now I dont know weather to try something else but then am worried I mite bleed again.😪 ps they GP had done all other tests too to rule out any else like bowel cancer etc and basically said nothing more she can do as I need the lap now im guessing its at least another 6 mths til I get that. Sorry for the long post just this is taking over my life now I feel like got noone to speak too about it! And i feel like I have learnt so much from this page all about it. Its a horrible thing and I just want answers now! The last 2 weeks the pain has been cosntant and at its worse and have struggled all week. So basically my question was should i try something else to help or just stick with this, is anything even going to help ! I hate messing about with hormones n painkillers

[Laurak26]

Hello

I’m new here and haven’t been diagnosed, just waiting for my gyno referral.

I’ve primarily had pain in my left side (tummy, back, leg) which feels like someone is twisting my insides. It has been pretty constant since the start of January, although it does peak and trough. I’ve been taking naproxen and paracetamol and codeine, although I’m not sure they’re making much of a difference. Have you tried taking mefenamic acid in the run up to your period? I do find it helps me - I’m on the pill, so it’s probably easier for me to know when to start taking tablets.

Also maybe try a hot water bottle? People on here talk about tens machines too, although I don’t have one.

I feel the same, I live by myself and don’t want to seem like I’m whinging to others. Many a tear has been shed recently…

I hope you get some answer soon x

[Crazycatladyjones in reply to Laurak26]

Hi Laura yous symptpms exactly same as mine x horrible feeling like a fist had hold of my insides twisting it n wont let go! Its madness. Yes I do all the usual taking para naproxen and have stronger pain killers too but I try not to take as my work involves driving so they make me drowsy. Im trying to keep working as much as poss as when I eventully do have Lap ill need to keep my sick leave which is a joke also isnt it. Hate all this. I thought the implant would have just stopped it all but it hasnt mite speak to GP again and then im going to keep constantly calling and chasing up my lap x

[laura98]

Hello I’m sorry you’re struggling, it’s really frustrating waiting for a diagnosis and it feels like nobody really understands what you’re going through! I’m waiting to see a gynaecologist and have been since last May, have been fobbed off by doctors over the last 12 years. I’ve mentioned things like bleeding mid cycle, bleeding after sex, leg pain and have been told they aren’t a symptom of endo, yet reading on here it seems they’re very common 😂. Hot water bottles are life, maybe try some pain relief from your GP, and I guess just keep calling and pestering via the appointment line - it’s what I’m doing. This forum has been a big help for me, as you can speak to people who understand. Good luck and I hope you’re seen soon! X

[laura98 in reply to laura98]

And I’ve just on another thread that you’re waiting in Liverpool - me too!

[Crazycatladyjones in reply to laura98]

Hi thanks yes I was referred last May too so it should be any day now! Ill PM you about hospital xxx

[1880emma]

Have you got any pain relief from your GP? If not and it’s the pain that is the problem then aww what they can help with. I definitely recommend a Tens machine for the pain if you don’t like taking tablets, also several herbal remedies have helped my pain. Agnus Castus and recently Serrapeptase have been hugely helpful in reducing my pain, worth a Google.

[Crazycatladyjones in reply to 1880emma]

Thanks yes Ive got pain relief and have changed all my diet all kinds, but it was more wondering if I should try something else to help as the implant has stopped bleeding thank god but still got the pains like the pill or something I was all ok until I had the inplant out, but then is this just it now will anything help until Ive had surgery I just dont know!😪

[AlexaMac]

So sorry to hear your comments about waiting to see a specialist. l am at the other end of the journey of life as am 75. 4th December had an unexpected heavy bleed one morning, my daughter rang 101 for me and during the discussion he told us to ring GP Monday morning which l did and had an app within 4 hours of ringing. She sent a referral to the hospital and l had my first hospital app the following Monday with the Gynaes second in command. Had external and internal scans then had internal examination with the doctor, that was to ensure my womb was healthy, it turns out l have a 10cm cyst on one ovary.I had a referral to the surgeon 4 weeks ago where we discussed my symptoms (still having occasional bleeds) but as only having mild discomfort, l now have my next consult in 2 weeks to arrange an appointment for lap surgery to remove the cyst and both ovaries. Not got a date until then.

Please stay safe and if you feel you need to chat again please send a nudge to me 🤗

[Crazycatladyjones in reply to AlexaMac]

Thankyou I hope you are sorted to soon!Now today I have found out I am back to sq 1 i rang to see how long now i would be waiting for lap as been 9 months was told that the consultant i was under has retired so another has tsken over but he wasnts to see me 1st so I wasnt even on the theatre waiting list 😭😭😭😭i dont understand why he needs to see me as hes got all the info there I had already been assessed and seen by his colleague so why cant he just take over!!!! i called the PALs but they wernt bery helpful and basically said some consutlants like to see you again she said to contact my GP to see if they can write a letter but thatll be fun....