Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,140 posts

All posts for June 2022

Brain Mets

Hello again my warriors my sister has skull Mets lost her vision on one eye it’s pressing on her eye on that side now we think it’s spread to the brain anyone...

Hello again my warriors my sister has skull Mets lost her vision on one eye it’...

Rego-park

•2 years ago

2 Replies

CT scan results

Hi everyone. Haven’t posted for a while. I’ve been on holiday as most of you know and awaiting my follow up appointment after being on Xeloda for 3 months....

Hi everyone. Haven’t posted for a while. I’ve been on holiday as most of you kno...

Hidden

•2 years ago

32 Replies

Chat/PM not working today??

hi all. wondering if anyone else is having issues with using the Chat/PM feature? it was working fine yesterday. today, when I select 'Chat'.....my laptop...

hi all. wondering if anyone else is having issues with using the Chat/PM featu...

kokopelli2017

•2 years ago

10 Replies

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1 Radiation Treatment side effects , ladies please share your experiences

Hi ladies I received a 1 session treatment of radiation to two areas on Monday , I know it can take time but what side effects did you experience ? Any tips...

Hi ladies I received a 1 session treatment of radiation to two areas on Monday ,...

Thatflowerlady

•2 years ago

26 Replies

Social Security Benefits / Social Security Disability Benefits

Hello my fellow warriors; I need education on this. Is anyone using either after MBC diagnosis, I am exploring options as I still have to work through my...

Hello my fellow warriors; I need education on this. Is anyone using either after...

Kruza

•2 years ago

35 Replies

Current trial - hypothesis that exercise slows tumour growth.

Memorial Sloan Kettering are conducting this trial.. interesting because my first oncologist was clear that exercise made no difference to survival... ( I...

Memorial Sloan Kettering are conducting this trial.. interesting because my firs...

queeneee

•2 years ago

11 Replies

Ibrance side effects

Ibrance 75 mg side effects nervous about starting Glad to have found this group it has helped - I had stage two breast cancer 3 years ago alsnjad am axilliary...

Ibrance 75 mg side effects nervous about starting Glad to have found this group...

Tantalon7211

•2 years ago

16 Replies

Goodbye Friends

I will not be a part of this community anymore. I wrote a post last night and spent a long time on making sure I would not offend anyone. When I finished and...

I will not be a part of this community anymore. I wrote a post last night and sp...

Hidden

•2 years ago

29 Replies

How often should I do PET scan?

Hello everyone, I have stage 4 metastatic breast cancer (ER,PR+, HER2-). I have been taking tamoxifen and kisqali since 02/2022. I did a baseline PET scan in...

Hello everyone, I have stage 4 metastatic breast cancer (ER,PR+, HER2-). I have...

hopeoflife

•2 years ago

29 Replies

Doctor

My sister 7.9 tumors her playlets are very low the dr is given her a blood transfusion she had taxol the first time she was for four straight days sleeping...

My sister 7.9 tumors her playlets are very low the dr is given her a blood trans...

Rego-park

•2 years ago

11 Replies

Faslodex side effects?

My oncologist switched me to Faslodex (Fuverstrant) after 2-1/2 years on Letrozole/Ibrance combo as my cancer antigen marker went up to 50. So far some...

My oncologist switched me to Faslodex (Fuverstrant) after 2-1/2 years on Letrozo...

Woodthrush

•2 years ago

13 Replies

Campaign for cancer treatment FDA fast track

Regarding ErSO...Systems Oncology reports being ready to move forward with human trials but needs FDA clearance. So I started a campaign to help fast track...

Regarding ErSO...Systems Oncology reports being ready to move forward with human...

Kiss_my_grits

•2 years ago

20 Replies

Week off of ibrance

Hi ladies. Just wondering if anyone else feels More crappy on week off of ibrance. I also have a lot more joint pain everywhere. It always scares me. Thanks....

Hi ladies. Just wondering if anyone else feels More crappy on week off of ibranc...

marianne88

•2 years ago

24 Replies

Overwhelmed

Four years ago, when I was eighty-one, |Following the advice of the oncologist, I had six sessions of radiotherapy in weekly doses after a lumpectomy but was...

Four years ago, when I was eighty-one, |Following the advice of the oncologist, ...

MarsiJay

•2 years ago

22 Replies

Iblation of liver lesion or not??

I have a single 7mm liver lesion. One oncologist says ablation is risky and to leave alone as ibrance might keep it stable for some time. Another oncologist...

I have a single 7mm liver lesion. One oncologist says ablation is risky and to l...

Hopedog1

•2 years ago

34 Replies

Final words

I have MBC and have lost my mother and younger sister to cancer. My father aged 87 yrs, is quite unwell with terminal prostrate cancer and has decided on...

I have MBC and have lost my mother and younger sister to cancer. My father aged...

Claireperth

•2 years ago

27 Replies

Long term survivors

Mental health still an issue for me. (Brother died just before my cancer diagnosis, too much all at once). Can I hear stories of people who are long term MBC...

Mental health still an issue for me. (Brother died just before my cancer diagnos...

susiemarmite

•2 years ago

19 Replies

Piqray withdrawal

Are there withdrawal symptoms when stop taking piqray

Kfhh

•2 years ago

7 Replies

Great research!

Hi all. This was shared with me yesterday. It's VERY heavy reading, I understood 25% of it at a push, not being medically trained. There is a great section on...

Hi all. This was shared with me yesterday. It's VERY heavy reading, I understoo...

Winner123

•2 years ago

4 Replies

Xgeva and dental implants

Hey Ladies, are any of you on Xgeva who also have dental implants? I have had a few dental implants over the years and have read they may be risk factors for...

Hey Ladies, are any of you on Xgeva who also have dental implants? I have had a...

Trissh

•2 years ago

18 Replies

Update: I am withdrawing from this board

Hello. When I found this board almost 4 years ago, it was a Godsend. I learned a lot from brave, thoughtful, irreverent, compassionate informative women, some...

Hello. When I found this board almost 4 years ago, it was a Godsend. I learned a...

Hidden

•2 years ago

91 Replies

My greatest fear about dying

...has been dying when our country (US) is so full of anger and divisiveness! The televised 1/6 committee meeting last night reassured me a bit that our...

...has been dying when our country (US) is so full of anger and divisiveness! T...

PJBinMI

•2 years ago

39 Replies

How to Find my Posts in this Community?

I can’t find my previous posts in this community. Where are they? Thank you 🙏❤️🙏

I can’t find my previous posts in this community. Where are they? Thank you 🙏...

hopenowandtomorrow

•2 years ago

6 Replies

Xeloda and another drug

Hi everyone. I wonder if anyone is taking Xeloda with another drug. I recently got a surgery to remove endometrial cancer and the biopsy showed spread to...

Hi everyone. I wonder if anyone is taking Xeloda with another drug. I recently ...

Cureforever

•2 years ago

27 Replies

Anyone experienced episodes of red, hot, itchy face lasting up to 4 hours?

Hello! MBC (lungs, bones) for 1 yr and on Letrozol and ribociclib since. Recently frequent episodes of red/hot and itchy face lasting up to 4 hours. No...

Hello! MBC (lungs, bones) for 1 yr and on Letrozol and ribociclib since. Recentl...

Iguanaf

•2 years ago

8 Replies

Scan Anxiety & stress

Scan Anxiety.. I keep delaying my pet ct scan. Its been over 2 years. Was scared of going to the hospital due to covid. In 2020 i was in complete metabolic...

Scan Anxiety.. I keep delaying my pet ct scan. Its been over 2 years. Was scared...

SRud

•2 years ago

17 Replies

Radiotherapy to the chest.

Hi all, me again! Susie and I are having a pretty tough time ATM, she's really struggling to breathe, low O2 so she can't really move. Weve come into hospital...

Hi all, me again! Susie and I are having a pretty tough time ATM, she's really ...

Winner123

•2 years ago

16 Replies

Hi All

Feeling pretty bad after not tolerating piqray twice then ibrance not working and hormone blockers not working I have more lesions on my bone and will be...

Feeling pretty bad after not tolerating piqray twice then ibrance not working an...

elle3054

•2 years ago

7 Replies

Want more energy or feel better?

Hello beautiful ladies! I’ve have been studying this doctor Michael Klaper for many, many years! He is the real deal and such a sweetheart! He inspires me like...

Hello beautiful ladies! I’ve have been studying this doctor Michael Klaper for m...

SunShineEveryDay

•2 years ago

20 Replies

Incidental finding

Hi am newto this post. I live in New Zealand and had a folowupmammogram but no symptoms, was on a recall list, thankfully. So it was a big surprise to be...

Hi am newto this post. I live in New Zealand and had a folowupmammogram but no s...

November1944

•2 years ago

15 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for June 2022

Brain Mets

CT scan results

Chat/PM not working today??

1 Radiation Treatment side effects , ladies please share your experiences

Social Security Benefits / Social Security Disability Benefits

Current trial - hypothesis that exercise slows tumour growth.

Ibrance side effects

Goodbye Friends

How often should I do PET scan?

Doctor

Faslodex side effects?

Campaign for cancer treatment FDA fast track

Week off of ibrance

Overwhelmed

Iblation of liver lesion or not??

Final words

Long term survivors

Piqray withdrawal

Great research!

Xgeva and dental implants

Update: I am withdrawing from this board

My greatest fear about dying

How to Find my Posts in this Community?

Xeloda and another drug

Anyone experienced episodes of red, hot, itchy face lasting up to 4 hours?

Scan Anxiety & stress

Radiotherapy to the chest.

Hi All

Want more energy or feel better?

Incidental finding

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